HELP CPP Disability Form Question

Discussion in 'Fibromyalgia Main Forum' started by abcanada, Nov 1, 2006.

  1. abcanada

    abcanada New Member

    My situation is rather complicated, and of coarse I'm trying to do it right the first time. I have not been 'officially' diagnosed with anything, but my doc is well aware of the chronic pain I live with, and is desperately seeking me answers. My health situation rapidly declined during and after the birth of my last baby which further complicates matters. My pregnancy was also complicated. I was thinking of attatching a letter explaining in detail what I went/am going through. Is this a good idea, or should I only answer the questions asked? Any other suggestions are welcome. Thanks soo much, Laura
  2. victoria

    victoria New Member

    hope you get some answers!

  3. Britt2

    Britt2 New Member

    I am waiting to hear this week if I am going to be covered or not...
    I was diagnosed thogh with CFS......can your GP not send you to a specialist for you to get a proper diagosis? Where in Canada do you live? Otherwise, I would attach a letter I think because don't they need a note from your dr anyways?
    Hoping you get it...
    good luck
  4. Pianowoman

    Pianowoman New Member

    CPP is really interested in details of what you can and can't do, i.e. how the illness is affecting you. A letter may be helpful if it's worded in those terms. I agree, though, that a diagnosis could be helpful, although it may not be essential if your doctor's letter is very specific.

    Good Luck
  5. Redwillow

    Redwillow New Member

    I see here you are applying for CPP disability.

    What diagnosis are you applying under? My rheumy diagnosed me with Fibromyalgia but in her report she said I had "Chronic Pain Syndrome". She did it this way because she believed that CPS was more acceptable to insurance companies (if you are applying for LTD and CPP) then the words Fibromyalgia.

    It is my opinion that all medical information that you send to CPP is better written from a doctor. Especially a specialist. Do you have anything in writing from a doctor about your complicated pregnancy?

    Have you been to a specialist like a rheumatologist to get a specialist report?

    When I went to the rheumy I told her about my IBS, my migraines, my pain, all the things that made me unable to work. Even though she only saw me for one visit she put all of this information into her report. She even wrote that I was seeing a neurologist for a sleep study in her report even though I hadn't been there yet.

    The only two reports I sent to CPP were this long 3 1/2 page letter from the rheumy and the report from the neurologist. My GP didn't even fill out the doctor's report that they send in the package.

    I also had a CPP consultant (retired CPP employee who now runs a business helping people get CPP) who helped me fill out my part of the paperwork properly. I would be glad to share with you what I wrote in those boxes if you have any questions.

    hugs Redwillow

  6. mindbender

    mindbender New Member

    The letter worked well for me. I was surprised.

    I know i don't need to tell you this abc, I typed it and printed it as my hand writing is illegible.

  7. mindbender

    mindbender New Member

    I thought you were talking about a letter to your Dr.

    I was confused aout the whole CPP thing
    <br>[<i>This Message was Edited on 11/02/2006</i>]
  8. abcanada

    abcanada New Member

    My family doc has been sending me out to different speciaslists, and I'm now waiting to see a Rheumatologist. I also had an MRI on Monday night, but don't know results yet. Maybe later today. I also saw a Neurologist and an internal med specialist. Both claimed they didn't know what was wrong with me....I have had tests for rheumatoid, Lupus, and various other things. The Neurologist I saw 2 weeks ago mentioned Fibro, but wanted to see MRI & made arrangements for me to see a Rheumatologist. They are all aware that I have a chronic migraine disorder. Actually I'm in chronic pain all over my body almost every day. I go to doc this afternoon, and will drop off forms, hope fully MRI results are back. She thought I might have MS. Every where I keep reading it can take years to get an official diagnosis. Every doc I've seen has told me they didn't want to give me an incorrect diagnosis, as this would be no help to me. I highly agree. My problem, is that it's gone on for nearly 2 years, and money is running out! How much longer before I get things figured out???? I'm affraid the CPP people won't take it seriously if I don't have a diagnosis. I know my doc will do everything she can for me. Since I'm in chronic pain, I'll talk to her about that, and chronic migraines as well. Seems that I have the same symptoms as you Redwillow. I also have IBS, and have chronic diarhea!( do you take anything for IBS, other than Pepto) I feel like it never ends. If it's not one thing, it's another, or all at once. To what extent are you disabled? Maybe I just have to be patient, and wait for these future appointments. oh yah, I also saw a Hemotologist regarding a blood clotting disorder that was found after I had blood clots during last pregnancy. Not sure about where you are, but I've waited 4-6 months for specialist appointments, and 6 months for MRI. I feel it's hard for a specialist who does not know me to make a conclusion about me, especially since I'm one of these that gets'you look so good',(not sure what planet they're on!) Yes, a doc in her office was the one who delivered babies. She has all my issues well documented. Pretty sad as I go to the doc, 32 years old and my chart looks like a binder. The reason I want toapply for this is so we can get some help in my house, as I have 4 kids. I feel they deserve much better than this. There are also a bunch of forms , as they would get an extra benefit. Thank you for listening, and the info. This is going to be a project and a half! Laura Take care and have a great day!!!
  9. mindbender

    mindbender New Member

    Our stories are very similar except I've never given birth to anyone

    I feel like crap today again so i dont feel like typing

    but feel like I could give some useful information

    I just don't have the will to type it, mabye tomorrow.

  10. abcanada

    abcanada New Member

    Dan, Sorry to hear you're having a crappy day. I don't feel so well myself, but have am on an adrenaline rush as I will get MRI results later this afternoon. I just went through about a six week period of alot of symptoms every day. Feeling soo sick, wondering if I would feel better, or if I was gonna croak. Laying in the MRI machine the other night I had the eeriest feeling, just soo sick...was a really strange experience. Almost like a dream looking back. Well, one good thing, I must have a brain as the scan took 25 minutes! Take care, and hope you have a better day tomorrow. Laura
  11. Redwillow

    Redwillow New Member

    Hi Abc

    I am in Ontario.

    I haven't been able to work since Aug 2001. It took until 2004 to finally get a diagnosis and July 2004 to get my CPP disability. I was one of the rare ones who got accepted first application.

    You are right wait times here in Canada are terrible to see specialists. Part of my problem is that I live in rural Ontario and my GP was so over worked.

    He would say that he would send me to a specialist and then forget to make the appointment. I would keep going back and back. Then you have to wait months to see the specialist. My longest wait was 14 months to see the neurologist to get the results from my sleep study!

    I think you are smart to apply right away. Even if you don't get accepted first application that is then your start date that they have to go back to when you are finally accepted. I waited, couldn't believe that something couldn't be done....

    I know it seems weird to go to a specialist who has never seen you before an expect a diagnosis but in my case that is what happened.

    My cousin who is a nurse and also has FM told me to stop taking my pain meds a couple of days before my appointment. And to get someone to drive you as you are going to feel really crappy. She wanted the doctor to see the real me without any candy coating.

    When I walked into the Rheumy's office I felt so nauseous and sick with pain that I could hardly hold my head up. I sat in the chair with my head leaning in my hand on the arm rest. Told her my 80 year old father had to drive me because I was to sick to focus.

    After so many years of being told everything was all in head it was a shock to finally have someone agree that I had FM. The doctors now believe the FM was set of by a serious car accident when I was 17. Since I was 45 when I got the diagnosis that was a long time to be ill with nobody believing me.

    Abc It seems to me that you have several diagnosises. Chronic Pain, Migraines, IBS, a blood clotting disorder and more..... You just need someone to document all this and explain that you are unable to work. Pull all your medical information together and get started.

    If you have any questions when you get to filling out the boxes on the form from CPP that you have to do yourself please let me know. This form gave me 40 fits. I am glad I had help!

    hugs Redwillow

  12. karen99

    karen99 New Member

    Hi Redwillow,&lt;BR&gt;
    I don't know if you are still around. Too make a long story short, I was diagnosed with depression in'85.Then again in '05. Last sept. I was diagnosed with bipolar depression, ADHD, PTSD, panic attacks and anxiety disorder. I have only seen my recent pschyiatrist twice. Today I asked if he would fill the disability forms for me and he laughed saying he doesn't even hardly know me. He likes to wait a year or so to get to know the patient.Someone told me not to wait, just give them to him right away. Did I feel stupid. I signed on for ECT in May.&lt;BR&gt;
    I had alot of trouble filling out the questionnaire, I'm not very articulate and can't explain things well. Even though I can't work because of this illness, I put down that a few days are not so bad. Now people are telling me to put the worst possible things down that affect my day. I've redone them so many times I'm sick to death of it. I really need some help filling out those boxes. I don't know what they want to hear.Can you give me some guidlelines please. Any help would be appreciated because I plan on taking these forms to my GP.&lt;BR&gt;
    Please help me.&lt;BR&gt;
    Karen 99