HELP.....fibro and Barium XRay pain

Discussion in 'Fibromyalgia Main Forum' started by sues1, Dec 18, 2009.

  1. sues1

    sues1 New Member

    I've had Barium X-Rays before....long time ago. Not comfortable at all, but I tolerated it.

    After a day of Popsicles and broth, I took pills and drank the yukky stuff last night. I became so very weak. This AM I had enemas. I thought I would not make it to the hospital. I did,I felt I was barely able to exist .. but
    I could not tolerate the test and they dismissed me. I have not talked to my Dr. yet on this.
    It felt like a gas nozzle at a gas pump up me. My fibro started really acting up trying to comply to all on that metal table.......neck, arms, leg cramps. Enough on that, you get the picture.

    I used to be "tough", my pain tolerance is lowering, mentally and physically. So many years of this. It gets harder for me all the time.

    I had Breast Cancer ..operated on 30 months ago. Large tumor. All is okay there. I am tested a lot. Of course with this problem I am concerned about my bowels and I can not ignore it. My Dr. is concerned that I might have a "damaged", for lack of a better word, section in my bowel and have part of it removed.

    I do not know if they would do this proceedure if I would be put out. I have tried many things for Fibro (I also have CFIDS), all had an adverse reaction. I take nothing for it.

    I am not one that needs "my hand held", nor a feel sorry for self person.......but I do not know how to deal with this. Anyone out there had a similar experience or have a suggestion?

    I have not been here often at all for a long time. Not much energy for it. Miss many of you and I send Blessings and prayers often to all of you...... SUSAN
  2. FibroFay

    FibroFay New Member

    I've had very painful sigmoidoscopy and colonoscopy in thge past. My last colonoscopy I was under general anesthesia in the hospital for it. Only out for 20 minutes or so. That test was the easiest I've had done. I was wide awake and walked out of the hospital when I was discharged an hour later. Have you had a colonoscopy instead of the barium? Maybe that would work for you.

    Good luck,
  3. sues1

    sues1 New Member

    Please forgive me for not responding in a timely manner....I got flu like for a few days.

    CT shows a problem in the bowel....sigmoidoscopy and colonoscopy will not show all, as it is narrowed there. I have had sigmoidoscopy and colonoscopy in the past....all went okay.

    My problem is that after battling Cancer (30 mos. now since I had breast removed) and soooooooo many yrs. of Fibro and CFIDS........I just can not face anymore hurting. I am at the end of my rope. I have always been strong and a great patient. WAS. I have not been able to sleep last night from hurting....when they went to do Barium X-ray it hurt and I said I could not go through it. I could tolerate it if I was "out", I could cope with recovering from an operation........but some things I just can not do anymore........

    Dr. says I have to be awake for it..........THANKS AGAIN......Bless You........Susan
  4. sues1

    sues1 New Member

    BUMP....hoping to get more responses.......I read my favorite friends here now and then, but have not been active on the board for sometime. Susan
  5. sues1

    sues1 New Member

    But there is apparently a damaged part in my bowel and scope can not get only Barium, they say, will show what is wrong and if something needs done. They think I will have to have part of my bowel removed.

    In records and tracing it back, I would say I've had this for 20 yrs. I've had polphs (sp?) removed twice and my records showed I had that problem then. BUT my husband nor I never remember being told this. They say I was advised to have a Barium X-ray both times......I am a little angry for I sure would not forget that. I could of don it then. But body just is at a breaking point on what I can endure. My first doctor is retired and I was advised by the specialist that took over the practice.....

    It is hard to explain, I have never had a problem before in having tests and such....I am worn out from Fibro.................Thanks and Blessings...........Susan
  6. sues1

    sues1 New Member

    I just Googled "Virtual Colonoscopy.........I have not read it yet......will do that next......

    Maybe there is an answer in all of this..........So wonderful that you took the time to send this info................BLESS You.....MUCH...........Susan
  7. sues1

    sues1 New Member

    I live in a smaller city, it does have its own hospital. On a whim I added my city on my google request.......I will remove the city, just to keep who I am more private....this is part of what I found!!!!!!!!!! :

    Home(City deleted) Healthy Aging
    Is a Virtual Colonoscopy Just as Good as the Real Thing? (city deleted)
    Avoiding a colonoscopy because of its uncomfortable invasiveness? A high-tech procedure may eliminate a lot of this discomfort while still giving your doctor a good peek inside. Virtual colonoscopy combines a CT scan with computerized enhancement programs, and allows your doctor to take a tour of your colon, without the probes and sedation that are a part of a standard colonoscopy in (city deleted).
    =================I am doing a happy dance! Hopefully I qualify for such.

    You gave me a priceless gift.....I can not begin to Thank you enough.....Blessings.....Susan