Help finding a good doctor Northern California

Discussion in 'Fibromyalgia Main Forum' started by CelticAngel, Oct 22, 2006.

  1. CelticAngel

    CelticAngel New Member

    I recently moved to American Canyon... which is near Vallejo/Napa Valley area. I am looking for a doctor in this area who is knowledgeable about CFS and immune deficiency disorders..... any suggestions?
  2. winsomme

    winsomme New Member

    there is Dr Montoya at Stanford. he is an infectious disease Dr who is trying antivirals to treat ceratin patients with CFS.

    maybe someone who has seen him can say more.

    if you need contact info let me know.

    if you do a search for montoya on this site you should find some info.

    thanks
    bill
  3. mrdad

    mrdad New Member


    I'm in S.F. but very familiar with the Amer Canyon Area.
    Liked it much better when the Cows greatly outnumbered
    the people. Anyway, you are about equi-distant to Sacra.
    from where you are so you may want to consider that dir-
    ection also.

    See: http://pages.sbcglobal.net/choandjewel/cfids/docs.htm

    http://www.co-cure.org/usa ca,htm

    www.cacfsfms.org

    Are you familiar with a genetic "Celtic" blood disorders
    that have very similar symptoms called Hemochromatosis?
    Or "iron overload" ? If you're Celtic you may want to
    consider it as a possiblity.

    Thanks and welcome to the Board!
    MRDAD
  4. mrdad

    mrdad New Member


    Thanks! MRDAD
  5. CelticAngel

    CelticAngel New Member

    I will definately have to check into that... and the cows are being outnumbered by the people I'm afraid!
  6. 69mach1

    69mach1 New Member

    you can google for info on him.

    jodie
  7. mrdad

    mrdad New Member


    Glad that you saw my reply last nite. Have you actually
    been diagnosed with one or both of these disorders? Many
    other illnesses can have similar symptoms but the "iron-
    overload" hemochromatosis is easily detected thru a blood
    test as they look for high levels of ferriten and iron.

    Website: http:www.americanhs.org/genetictesting.htm
    They are in Florida, so attempt to reach them
    during the Hurricane "off-season" Oh boy, hah?

    Best Wishes my Celtic Cousin,
    MRDAD
  8. CelticAngel

    CelticAngel New Member

    No, I haven't been diagnosed with anything yet... the closest thing the Rhuemetologist has said is "lupus like immune deficiency disorder".... but of course he has "said" that, not committed to it in my file. I've had posative screenings for lupus but it's negative when they do further testing.... I've had posative tests for sjogren's syndrome, anticardiolipins, epstein bar and a few other things I can't remember at the moment. I had to quit my career in social work because the stress of course made things worse, I was able to continue to work for a few years after in a less demanding, less fullfilling job but had to eventually leave that as well and I have been unable to work for 2 years now. I have my 3rd appeal pending a hearing through SSI. My Rhuemetologist, who is supposed to be one of the more knowledgable in CFS, is not aggressive enough... he does some tests, tells me to come back in 2-3 months, we sit and talk about the results and then he orders more tests. My ex husband who was supposed to cover me under his insurance until our divorce is final, lost his job (and our insurance) so currently I'm on MediCal and can't find any doctors who both take the insurance and are seeing new patients. I've also had trouble getting my medications because they have to pre approve some of them and although I've been on some for several years (for diabetes), they are not covered and they won't approve them...... so that hasn't helped much either. I've had a pretty bad flare up for the past few weeks. I am getting ready to go out of town for a few days so I will talk to you more when I get back...... thank you for your replies!!
  9. mrdad

    mrdad New Member


    Thanksfor your reply! Now I have a better understanding
    of your situation. When ya get back from your trip, be
    sure to get back to the Board as there are very knowlega-
    ble, experienced and helful people here. Just keep
    "bumping" your Post up to the First page and look for
    additional responses. Don't know HOW you did Soc.Work
    feeling as you did (do)?

    Take care!
    MRDAD