help-how long transfer factor?

Discussion in 'Transfer Factor' started by gbean, Jun 5, 2003.

  1. gbean

    gbean New Member

    Hi out there,
    For anyone who has had success with transfer factor for fibro, how long did it take to work and how long were you so sick?
    It would mean a lot if someone would help-I got a bottle yesterday and have taken many of the pills-far far more than I'm sure anyone else has because I want it to work. I'm on day two and feel no improvement at all. I have a lot of pain and fatigue and have had fibro for thirteen years.
    Thanks,
    Gena
  2. spacee

    spacee Member

    I read somewhere on this site that it takes 3-6 months to show improvement and a year for the full effects. Hey, Rome wasn't built in a day, I guess. I have started with on transfer factor that my mother had. Have taken it about a week. I am starting the Prohealth ImmuneC tomorrow. I have been sick 17 years but was having good results with Kutapressin. That is no longer available do to financial problems with the company. I think for me the transfer factor is better than nothing...I would probably be housebound if I had not had the Kutapressin. Hate to see it go....

    Smiles,

    Spacee
    PS. I have more of a CFS problem, slight FM[This Message was Edited on 06/19/2003]
  3. gbean

    gbean New Member

    I'm so sorry that kutapressin isn't available to you anymore.I couldn't imagine having something work and then not being able to get it. Have you thought about trying to get it in Canada. I hate having to give things up to a year to work. I believe that if they were going to work you'd feel something at least in a few weeks.
    Good luck. Gena
  4. spacee

    spacee Member

    I'm back (obviously). Ok, first I tried the transfer factor my mother had. It was something sold by 4life and not specifically made for CFS/FM. It was better than nothing and I felt like it would keep me at the level that Kutapressin. I was taking 2 tablets twice a day (twice the normal dose). But there were highs and lows during the day.

    Now, I am on day three of Transfer FactorC sold by ProHealth. For me, so far, it is wonderful stuff. I am feeling better then I did on Kutapressin. It is expensive but the cheaper ones say that you should take up to three tablets so the price isn't that much different.

    This transfer factor is more for CFS than FM in my opinion.
    It works against viruses, bacteria, fungus.

    I was wondering if you have tried the guaifenisen for your FM. I was going to try it... read the book, started using the sal-free stuff but then I finally decided that my problem is much more CFS and just a little FM. Mikie was taking morphine for her FM and no longer has too with the guai.

    If that doesn't work, I wonder if you are seeing a pain management specialist. I know when I am in pain, it is very hard to do anything...Madwolfe has posted that that is his opinion on pain too.

    Smiles,

    Spacee

    PS. The Transfer Factor is good for folks who test positive to viruses which I do.
  5. spacee

    spacee Member

    First bad day in 6. Much better than I was doing. I think I over did it on the treadmill. Walked 5 whole minutes!
    I better stick to swimming. I can go swimming about every other day and swim 10 laps. Feel soooo good afterwards.

    Smiles,

    Spacee
  6. gbean

    gbean New Member

    Spacee,
    I'm so sorry that I didn't reply earlier. I've been in a severe flare with a sinus infection on top of it.
    so you feel like the transfer factor is helping you?
    I think that is marvelous and hope that it is doing the trick.
    I ordered a plain transfer factor from another company and took the whole bottle and didn't feel any improvement.
    I've had fibromyalgia/cfs for thirteen years. I came down with the beginning form after contracting the chicken pox and a bad case of giardia at the age of twenty one. I managed to work full time and attend some college for the next three years. After that, I was shot. I lived with my parents and didn't work anymore. I went through one quick marriage where he didn't believe that I had an illness called fibromyalgia. Some years later I met my current husband and he took me with fibromyalgia-not working and all.
    I have tried yeast medicines-anti-candida diets-vitamins-anti-inflammatories-morphine-antibiotic therapy for mycoplasma infections theory-and antibiotic therapy for possible chronic lyme disease. None of these things helped me. The only thing that helped me was noni juice. after the first day I took it I got a bad flu (and I rarely got the flu)-it lasted a week-seemed to be a healing crisis -and then I was well. I went to work for one year and then for some reason it stopped working. I've tried it again and again and it doesn't help anymore.
    when I get blood tests they always come back normal except for high cholesteral. However, I had my immune system tested twice. One doctor told me I had a hyperactivated t cell immune system probl em . The next test I got showed that my natural killer cells were very low. When I took noni and got retested my nk cells went up.
    To me, this proves that if one can balance the immune system in the right way one can get better. These are classical cfs symptoms. For the first ten years my symptoms were mainly pain/fibro but in the last three years I have developed very bad fatigue.
    Oh, I've also been trying guaifenesin for four months with no improvement. I took it for a little while at one time but it does nothing for me now. This makes me wonder if it has a seperate affect on the immune system. Now I am trying the chinese med approach for a bit. A friend of mine had severe fibro and got better with mineral i.v.'s and herbal teas prepared by a chinese doctor. So far, I seem to feel worse on the teas-which goes to show that what helps one person may not help yourself. I'm running out of things to try. I'm having a phone consult with a doctor who prescribes naltrexone which can triple your nk count. It has to be the answer for me. If not, I will travel to Colorado to be put on high t-3 thyroid meds -based on theory that fibro symptoms can be caused by thyroid probs even if u test normal.
    Well, my hands are killing me.
    Please hang in there and keep me posted on how u r doing.
  7. James

    James Guest

    Please give transfer factor 30 days to start to kick in. Many TF formulas if given 90 days will have helped your immune system to start flushing viruses. Most treatments will not be given a fair chance if you only try them for a few days..
  8. spacee

    spacee Member

    When I took Kutapressin (which acted against the EBV and HHV6 also), it took months to get the full effect. Another friend said it took a few years for her with some bumps along the way.

    I plan to continue to take the TF. They are not all the same. I tried some that my mother had while I was visiting her and it was different than the Transfer Immune C. It was probably ok for normals. But looking back a few of the symptoms I had before kutapresin were coming back.

    Today was better than yesterday. I need to get a room darkening shade. The sun is waking me up too early. If I don't rest well, I am not going to have a good day no matter what I take!

    Smiles,

    Spacee

    PS I am so glad you have a good hubby. Mine is understanding now but it took about 15 years!! We mellow with age.


    [This Message was Edited on 06/27/2003]
  9. gbean

    gbean New Member

    Hi Spacee,
    I sure do understand the whole sleep issue subject. If I didn't take trazadone I'd hardly sleep at all. Even with the trazadone though-I have those lovely nights like last night where even though exhausted and home with antibiotics and pred spray for a bad sinus infection I only slept an hour and have been up since two a:m. Most nights I wake up often but do get at least eight hours of sleep.
    I can't believe that Kutapressin took that long to help u and your friend. How do you believe in something so much to try it for more than a year-if even a year at that?(Also, after all of that, though u couldn't have known-and now u can't get it)- I mean I've been there and this is in no offense-I don't think I could give anything a year or more than a year at that to see if I was getting any positive results. In my early years with the fibro I gave a six month try to an anti-yeast strict diet and vitamins and diflucan. I recetnly gave one full year to being treated for mycoplasma infections as the cause (tested Positive)-and another year for chronic lyme (tested positive on a few bands but not enough for the cdc but enough for the doctor to diagnose me with it)-they are very similar treatments with antibiotics. I just kept getting worse. I've given guaifenesin almost five months and nothing. Now I'm hoping to try naltrexone at the end of the week. Now I'm worried about how long to try it-(I know we are supposed to be talking about transfer factor-but in a round about way I'm getting at that-maybe transfer factor would help me but I just haven't tried the correct one for long enough)-
    anyhow, where did u order your transfer factor spacee?
    I believe that if fibro/cfs can have a viral cause (I mean by this that I think it does it some cases but others it is something different-I think this is the first disease that doesn't have one cause of defect-)I believe it is hhv-6/ Too many people test positive for epstein virus-I tested high for that early on-but never again and have only gotten sicker. I know there is someone on the website who talks stronly about mycoplasmas as the cause-but I tested positive for that and took the correct treatment with a specialist and didn't get better. One theory may be that one infection or virus or trauma or thyroid problem may disrupt the bodies system at first but then the real problem lies with the immune system but many of us would prob. test positive for epstein barr-hhv-6-mycoplasmas and many more-they may just be coming up because of our lowered immune systems on one hand and hyperactivated on other. I believe in hhv-6 for me personally because I got sick after getting the chicken pox at the age of 21 which is a herpes virus-hh-v.
    Sorry so long-gena
  10. spacee

    spacee Member

    I buy my transfer factor from this site (ProHealth). I don't order anything over the internet so I use their 800 #
    I use the more expensive one Immune Transfer C. It cost $140 which is about the same as Kutapressin did. Also, the info says that it fights EBV and HHV6 which Kutapressin fights too. Dr. Cheney says that they both are "immune shifters". So I am thinking that they work the same.

    I am going to take back what I said about Kutapressin taking so long to be effective. I agree I don't think that I would be taking something for so long without some improvement.

    I think it was an improvement that you could tell helped some right away but that the best effect took time to build up. Also, it took me awhile to figure out that the Kutapresin was improved if you took it with B-12. A Dr. Enlander discovered that also and prescribed it together.
    I take B-12 by injection three times a week.

    There was a lady who posted about Kutapressin helping her.
    She said that she had to lie down to brush her teeth. Then slowly she could sit in a chair and look out the window. And that she was so happy to do that. Then she could move from one chair to another. Now she is able to work part time from her home on the computer but that it took about 5
    years to build up to that. I think that is what I mean by it taking awhile for the effects to build up.
  11. spacee

    spacee Member

    I am starting another post because I discovered something about the Immune Transfer C which works for me...but maybe not for others.

    I feel really good (but still not well), if I take 1/2 non-generic Ultram and 1/2 of a .25 xanax tablet with it.

    That takes care of some pain I have and the sensory problem of light and noise

    I am feeling so much better that I am able to go to the pool and swim 10 laps 2 or 3 times a week. That really helps me too. It is like a massage only better. I rest in between the laps to get my heart rate down like Dr. Cheney thinks we should do.

    Gena, I am just not sure if transfer factor is for FM or just CFS. But you do say that you have tested positive for EBV. I think I would have the doc test again for the viruses and if they show activation, then I would take the transfer factor for 3-6 months.

    Smiles,

    Spacee
    [This Message was Edited on 06/28/2003]
  12. gbean

    gbean New Member

    Spacee,
    . I'm way too sick to write too much today- I just wanted to let u know that xanax helped me a lot to reduce my pain and give me energy. However, I was taking four mg. throughout the day and i had a paradoxical effect where I got anger outbursts and some amnesia. It's also very addictive and I had very bad depression comung off it. You shouldn't have such a problem on the low dose and I'm sure it is helping along with the transfer factor. Ultram didn't help me. Remember that fibromyalgia and chronic fatigue are very closely related if not part of the same disease.
    I talk to a new doc about trying naltrexone today. Cross ur fingers for me.
    Gena
  13. spacee

    spacee Member

    Hope your drs. appointment went well...

    I had one yesterday and got a RX for Famvir. I really do like the Immune Transfer C. It does as much for me as the Kutapressin. I have a good quality of life but I cannot work.

    So my thinking is, that if I added another antiviral, maybe I could do better. I wouldn't stay on the Famvir all the time but use it for holidays and when the kids/wives are here for a week. I am pretty optomistic right now. I took 250mgs and had a bad herx so I cut back to 125mgs. Trying it at 3 times a day.

    I am really thankful for all these meds. If I had not had them, I would have been homebound for the last 17 years. I have a severe case, I would say.

    Spacee
  14. gbean

    gbean New Member

    Hi Spacee,
    Thanks for wishing me well on my doc.'s appt. It was a telephone consult which is a lot easier than going in person. I am going to try naltrexone as soon as I get it in the mail from the compunding pharmacy.
    Famvir is one drug I don't know a lot about. Is it an anti-viral?
    I'm glad trans factor helps u but sorry not enough to get u working.
    I have a very-very bad case of fibro. The scary part is that it has gotten way worse as the years have gone by. For instance, if I even just try to go out to eat or a movie (really not any walking-just from car into place and then the sitting involved)-I get super sicker than I already am-I literally feel as if I should be in hospital or like I'm poisoned and literally dying. I can't understand how such a little bit of activity can flare me so bad-even though when I do nothing for a month i'm still very sick. Normal people seem to be able to build up on activity and get over being sore in three days. I don't recover atall and it's frightening.
    Take care-
    Gena
  15. spacee

    spacee Member

    I am really sorry to hear that you have FM so bad. I sure wish they could figure out something that would treat it better. Some of us seem to have mild cases or some treatment helps but others have terrible cases..

    Have you tried SamE. On another board a woman went to an Arithis, FM seminar and the nurse gave a talk about it helping FM. It used to thought that it just helped depression. I have seen it a the store and on the box it says it help joint and muscle pain.

    Anyway, I'll be praying for you to find something that helps. Pray for me too if you remember.

    Spacee
  16. gbean

    gbean New Member

    Hi Spacee,
    Thanks for being so kind.
    I've tried Sam-e and it unfortuantely does nothing for me.
    I have tried strict diets, vitamins, herbs, morphine (did nothing along with ultram-vioxx-etc.) antibotic therapy for mycoplasma infections for one year, antibiotic therapy for supposed chronic lyme disease (neither year helped)-guaifenesin for the last five months with no improvement.
    Like I've said a few times before-I'm getting ready to try naltrexone. The med should come in tomorrow. It's based on the idea that in auto-immune illness there are a lack of endorphins and this helps with that-also it raises your natural killer cells which I'm sure u know r low in both fibromyalgia and cfs (the two illnesses really are basically the same)-I have fibro and debilitating fatigue.
    It is supposed to work rather quickly and I will keep u posted.
    Take care-
    Gena
  17. spacee

    spacee Member

    I sure hope the new med helps....it has been recommended to me by someone on the message board because of my low T4Cell count...very intersted in how it helps you. I am beginning to feel like a walking pharmacy....

    Smiles,

    Spacee
  18. gbean

    gbean New Member

    Hi Spacee,
    Sorry I haven't answered back -I've been too sick to get on the web.
    I've been on the naltrexone for thee days and so far it is just making me more tired. I'll keep u posted. If it helps me then itcould help u. I have had extreme fatigue along with fibro-
    Gena
  19. spacee

    spacee Member

    Take care and rest...so sorry you aren't feeling well.

    Spacee
  20. Wormboy

    Wormboy New Member

    Gbean, I wasn't sure from your post, but it sounded like you had really loaded up on the TF. I'd be careful with doses on ANYTHING. More is rarely better, especially with meds. ALmost all meds are a balance between effective dose concentration range and side-effect dose concentration range. In other words, almost everything is toxic at a high enough concentration, and not necessarily in ways that you might think. Patience is a virtue....