HELP ....I HEAR EVERYONE TALKING ABOUT PAIN MEDS ....

Discussion in 'Fibromyalgia Main Forum' started by JLH, Mar 3, 2003.

  1. JLH

    JLH New Member

    I'm still fairly new to the board ...and I read about everyone taking their pain meds. What type of pain meds does everyone take? Narcotics? Arthritis-type? What? And, how do you get your doctors to prescribe them? I have had fibro, lupus, arthritis, etc. for 15 years (but officially diagnosed in 1996) and my internal medicine doc and rheumy will NOT prescribe narcotics. I have tried Daypro, Vioxx, Celebrex, Bextra, etc., but none of these touch the pain. I have been taking 600-800 mg. of ibuprofen for a long time. I have been trying to get into a pain management clinic in a major city, but my appt isn't until early summer. I managed to get in to a local Pain Management doctor today due to a cancellation (this was just pure luck!!!) and guess what. She confirmed what my other 2 docs say, which is ... "I want to to take physical therapy" to control your pain, this is all that works for fibro. She was very clear in stating that her clinic does NOT prescribe narcotics for fibro or lupus pain; however, since I brought copies of 2 CT scans showing severe spinal stenosis in my back, buldging disks, bone spurs, severe degenerative disks (which is arthritis), and a bunch of other problems, she gave me a month's worth of DARVOCET!!!!! I guess this is better than nothing, but it won't faze my pain. I had to sign an agreement stating that I will not seek narcotics from any other doctor in the U.S. and if I go to the ER or have surgery and someone else gives me a script for pain pills, I must report it to her immediately. I go back in April for a "re-evaluation". So ..... how do you all get these "pain meds" that everyone talks about? I would like to know what type of pain meds so maybe I can ask her for something else that might work better, because I know the Darvocet won't help that much. Please let me know. I'm in so much pain some nights that it hurts to sleep--I have to get up and sit in a chair to get some relief, then back to bed, then up in the chair -- a neverending battle!
  2. allhart

    allhart New Member

    go back and talk to the dr who gave you the davocet and tell her they are not helping,it very very hard for most of us to get the pain meds we need,you may need to find new drs who are commited to helping you find relife from some of your pain,the peice of paper you signed is a pain contract and they are becoming more common its the drs way of protecting themselfs and you,
  3. Lau

    Lau New Member

    I have also tried the meds you mentioned without much success. The last 4-5 months have been using Ultraset, and it does give me some relief-better than any of the others I've tried. The regular Ultram made my headaches worse.

    Hope you find something to help.

    Lau
    [This Message was Edited on 03/03/2003]
  4. clueless

    clueless New Member

    I got my pain meds which includes oxycontin,neurontin and lortabs for breakthru pain from a pain SPECIALIST who only deals wth the pain. I don`t know if a rhematolagist sp. would give you the narcotics or not , mine did`nt. You will have to convince some doctor that you absolutely cannot stand the pain. I am sitting here tonite in pain even after taking my meds. I can`t imagine even existing without the proper pain medication. You deserve better than that!
  5. starstella

    starstella New Member

    should results in an improved quality of life for you. If your darvocet is not helpful, you must go back and explain how much your activity has been restricted due to pain. Sleep issues also should be discussed, as bodies in pain need sleep time to heal. Be very specific about the amount of pain relief you get from the darvocet, the amount of activity you are able to accomplish on the darvocet, and a description of your usual sleep pattern as you described herel. If your doc is not sympathetic to your problems, you may need to make a move to a diffrent doc. Have you interviewed the other pain clinic regarding their standard practices of care? Im curious whether they will be just as restrictive regardng medication use. Phyical therapy is a good avenue to take, but the PT must be very knowledgeable regarding how to treat your symptoms amd have some expertise in appropriate therapy for FM sufferers. I don't see that as the only means of pain control, maybe after you have been through an intensive pt program that was sccessful.
  6. sierrasioux

    sierrasioux New Member

    Where do you live? I have never heard of signing a paper like that.
    I lived in Indiana and my rheumatologist gave my oxycontin and vicodin. Actually, he gave me as much as I wanted.
    Well, I just moved to Arizona a few months ago and am looking for a new dr. I have an appt with a physiatrist the end of this month.
    I hear that some of these doctors do give pain meds, so I will see. I tried a rheumatologist here and he was the worst dr i have ever been to.
    I walked out of that office knowing I would never go back. I knew more than he did about fibro and he didn't offer to treat me at all. I also have bad osteoarthritis and he was more interested in a condition that I have that is NOT related to what I need to see a rheum for. I was so frustrated.
    If I cannot find a good dr here I will just fly back to Indiana and see my old rheum.
    I have found an internist here and at first he was reluctant to give me pain meds, but I took in my actual bottles of my old meds and showed him and told him he could call my rheum. He believed me and gave me the oxy and said he will do that until I find my pain specialist.
    So, I am hoping that the visit with the physiatrist will go well. There is NO way that I could survive without pain meds.
    I told this to the new internist I saw and I could tell he really thought it over----I told him that I feel that my rheum had obviously lived with pain himself or had a loved one-family member who lived with chronic pain-because he totally understood that I could NOT function without the meds.
    Where do you live? I hate this trying to find new doctors. I have so many other health problems, so I am going to have to find alot of different specialists. It is very frustrating and I have only begun.
    I was very satisfied with all my old drs in Indiana, but my husband retired and I chose the state of Arizona to move to for my arthritis and fibro.
    Well, I have only been here a few months, but I am still having alot of pain. I am sure it started up because of the stress from the move and then the past week we have had rain here and that is when I cannot function!!
    Good Luck----there are caring doctors out there.
  7. sierrasioux

    sierrasioux New Member

    I was just going to make a post about how it is so unfair for the ones who really need pain meds and they are not given to them because of drug abusers and drug sellers.
    I was diagnosed with fibro in 1987 and I know I had it years before then-it was called fibrositis back then.
    But I had a few experiences where the pharmacists made me feel like a criminal just to get my meds filled.
    I was so relieved when I moved here and the 2 times I have had pain meds filled they were so nice and NOT judgemental like some of my old pharmacists. It just makes you sooooo mad to have to go through so much pain and then if you go there to get your meds on one of your so called good days well, then they look at you and THINK she looks fine to me---I am getting mad just talking about those jerks now. So, I will quit for now.LOL--
  8. Judi

    Judi New Member

    hI, jlh, my name is Judi. for years all the dr`s would give me is darvacet unless I had surgery, then I would get Lortab. plus antidepression, Effexor xr is one that I will keep until there is one that works as well for me. The pain mamgement dr. sent me to a rhematolagist that I Thank God for!! she told me right off that until the pain was controled instead of the pain controling me she couldn`t help me, because I have so many problems. plus she sent me to other drs there in her office area for other problems. I can`t take anti-imflamatories anymore, my tongue BURNS all of the time, a biopsy was done & all I know it is from auto immune plus anti-imflamatories. she put me on oxycontin, lortab 7.5, I have RLS also so I am on Klonopin for that, 2 anti-depressions & zanaflex. I also had to sign a contract with DR. Codding because of what oxycontin is & the danger it can be. but I didn`t have a problem with that. as long as I can get some help where I can some kind of a life. plus I talked to her about I didn`t want any meds that cause weight gain, the first 8 or 10 dr.s that I saw gave meds & I gained so much weight & that caused another depression, I have turned down steriods the last 4 times & those dr.s go get her every time,but she says its ok. she explains what to expect next. when I have somethng new happen to me that hadn`t happen before.
    I will be praying that you can get some help where you can contol your pain, I really don`t think there is anything that will get rid of all of the pain, we have to learn how to live with what we have & make the best of life.
    God Bless You
    Judi
  9. Frogdogger

    Frogdogger New Member

    HI, JLH, I'M SO SORRY TO HEAR ABOUT THE B.S. YOU'RE GOING THROUGH. MY EXPERIENCE WITH A PAIN MGT DOCTOR HAS BEEN TOTALLY DIFFERENT. I'M A NEW ONE TO THE BOARD, ALSO. YOUR STORY IS BIZARRE. I CAN'T BELIEVE YOU WOULD BE ASKED TO SIGN A CONTRACT FOR DARVOCET!! THAT DOES NOTHING FOR MY PAIN. ALL THE ANTI-INFLAMMATORY MEDS YOU LISTED DO NOTHING FOR US BECAUSE FIBRO IS NOT AN INFLAMMATION. DON'T KNOW ABOUT LUPUS. I ALSO HAVE ARTHRITIS AND SIMILAR PROBLEMS AS YOU DO. I HAVE C4 & C5 DEGENERATING, HERNIATED DISK BETWEEN, ARTHRITIS IN THAT AREA ALSO. I RECENTLY STARTED SEEING A PAIN MGT DOC, ALSO. HE'S AN ANESTHESIOLOGIST WITH SPECIAL TRAINING IN PAIN MGT. HE'S BEEN THE ONE THAT'S THE MOST KNOWLEDGABLE AND UNDERSTANDING OF MY PAIN. THE ONLY THING HE REQUIRES FOR NARCOTICS IS A MONTHLY VISIT (THIS IS A FEDERAL LAW, I BELIEVE)BECAUSE OF THE TRIPLICATE THAT IS SENT TO THE D.E.A. MINE SPECIFICALLY SAID THAT PHYSICAL THERAPY WOULD NOT HELP MY SITUATION. HOWEVER, SINCE MASSAGE DOES HELP ME, HE RECOMMENDS THAT. HIS ATTITUDE, THANKFULLY, IS WE KNOW YOUR BODY'S WEIRD BECAUSE OF THE FIBRO SO WE WILL TRY DIFFERENT THINGS AND HOPE SOME OF THEM WORK. HOWEVER, I HAVE BEEN APPROVED FOR CRYO AND STEM THERAPY. BUT THAT IS JUST TO HELP MANAGE THE PAIN, NOT THAT IT WILL IMPROVE THE CONDITION. I THINK THIS LADY IS A JERK. I'M JUST VENTING NOW, BUT I FEEL SO BAD AT THE WAY YOU'RE BEING ABUSED! TRY TO FIND A SUPPORT GROUP IN YOUR AREA AND ASK FOR REFERRALS FOR AN AREA DR TO MANAGE YOUR PAIN. I HAVE BEEN REFERRED TO A RHEUM. DR. BY MY INTERNIST FOR MY ARTHRITIS, SO WE'LL SEE WHAT CHANGES HE MAKES. I AM CURRENTLY TAKING ZANAFLEX AT BEDTIME WITH MY ELAVIL (WHICH HELPS DAMPEN THE PAIN) AND A SPECIAL COMPOUNDED 10 MG. HYDROCONE FOR PAIN DURING THE DAY. I HAVE REQUIRED SOMETHING STRONGER WHEN I HAD AN ADVERSE REACTION TO A PROCEDURE, BUT MINE IS MANAGEABLE WITH THESE DRUGS. MY INTERNIST CURRENTLY PRESCRIBES ALL BUT THE ZANAFLEX AND THE HYDROCONE, WHICH MY PAIN DOC DOES. (I HAVE THE HYDROCONE COMPOUNDED BECAUSE OF THE LIVER DAMAGE FROM TYLENOL) ANYWAY, HANG IN THERE!!
  10. JLH

    JLH New Member

    Thanks everyone who replied about the type of ped meds they use. I live in Northeastern Kentucky. The doctors around here will not prescribe pain meds because eastern Kentucky is known for their doctors who "overprescribe" Oxycotin (to the drug seekers, and drug dealers). Selling any type of pain pill is BIG business in this area. In our county alone, there are currently four doctors waiting to go to trial for illegally dispensing oxycotin, percocet, Xanax, etc. Each of these doctors have admitted to writing scripts for more than a million doses of oxycotin over the last year. All of these doctors will be going to prison. They all had prescribed pills that contributed to 8-10 overdose deaths in this area (can they be blamed for a person taking too many pills? well, they are). Anyway, this is why all of the doctors in this area are running scared on prescribing any narcotic and why I had to sign a contract to receive Darvocet. I plan on informing this new pain mgt. dr. that the Darvocet doesn't touch to pain and see what she will give me next. The doctors that I mentioned that are awaiting trial would charge $250 cash for the appointment and give you a script for whatever type of drug that you wanted--they never examined you, ordered tests, required copies of previous tests, etc. Their office manager and secretary are even up on charges because they knew what was going on and did not report it--their "accessories" now. These doctors reported seeing 300 people per day! There was a story in our paper not too long ago about another doctor's office in the area where there is someone stationed in the parking lot who sells fake MRI's to those who want them--they alter them to show your name, etc. This is how bad this part of Kentucky is. These doctors and pain med. dealers are ruining it for all of us who are legit in our needs for pain medication. Again, thanks to all who replied. I'll search for that post you mentioned so I can take it to my doctor, too.
  11. LindaLoonyTunes

    LindaLoonyTunes New Member

    I went for 15 years with no substantial relief for my low back pain. Even though I have a 15 inch Harrington rod in my back for scoliosis (at age 19) and a slight curve in my lower back. I knew what I really needed was muscle relaxers and pain meds but NO ONE would prescribe them. I was not a young person either. I told them my muscles in my back would get soooo tight that my husband could not touch them yet alone massage them! Even my clothes hurt at that point. It was the new practice (not my current physician but same practice group) who finally prescribed the vicodin (but I really don't like it - makes me nauseaus unless I take only a half-which really does not give the full pain relief). Now I take Soma for muscles, Ultracet to maintain pain relief (whether needed or not 3 x a day) and nortriptylene to help me sleep. Oh, and synthroid of course for Hashomoto's!!!!
  12. Bambi

    Bambi New Member

    again pain relief and diagnosis' of
    everything from anxiety to fibrosistis, I finally found a DO that did the initial elimination tests and then prescribed meds for each symptom. Then she sent me to a
    pain specialist where I have been ever since. He also does Sports Medicine and he's a surgeon. He's a
    really compassionate guy and listens
    to you if you speak up. I had problems speaking up after years of
    doctors that would just dismiss me or
    ignore my descriptions of all my symptoms. It took him a few visits to
    trust me (they all get the druggies
    out to fleece them so have to be careful) and it has taken me five years to trust that HE won't flake out on ME. Now I am finally comfortable in telling him how it is.
    So, I'd advise any doctor that deals
    with chronic pain, like a sports medicine or pain specialist..they go
    under different listings. Arizona is
    on the Good States list for being more open minded about letting doctors decide what their patients need so I am surprised one poster is
    having problems there. It takes some
    looking, and probably the best bet is
    to CALL around and ask if they work
    with chronic pain patients. That might turn some off, but if some do
    they might just say so. Good luck!
    Also, if you have or can find a good pharmacist they do know what doctors are better about treating chonic pain. Hugs, Bambi
    [This Message was Edited on 03/05/2003]
  13. CindyC43

    CindyC43 New Member

    My jaw was on the floor reading about you having to sign that pain agreement that you wouldn't seek pain meds from any other doctor in the US! That is just ridiculous. CHANGE DOCTORS. In my opinion, pain management clinics simply do not provide the pain relief we with Fibro need on a daily basis. There is no reason on this earth that you should be denied the pain meds you need to be able to simply FUNCTION during the day. I have a wonderful osteopath doctor in Georgetown, Texas who prescribes 120 Hydrocodone a month for me. I take 4 a day. 2 in the mornings, then 1 4 to 6 hours later, then another one in the late afternoon. When he has had med students come into the examination room with him during my visits, he has told them that I am the worst case of Fibro he has ever seen, so he prescribes narcotics for me because that's what works for ME. Some people might say I am "addicted" to the Hydrocodone. That couldn't be further from the truth. I am certainly "dependent" on them so that I can simply function and get through my days with a few good hours in me. I just got my prescription refilled for the month of March, and I still had 20 pills left over from February, which means that I didn't have to take 4 pills a day every single day. I only take them when I realize I am tensing up because the pain is returning with a vengeance. I also take Advil, Excedrin, Benadryl at times if I feel I need them during the day or night.

    CHANGE DOCTORS. Your doctor obviously has no idea how bad Fibro pain can be. You need to find a doctor who will be sympathetic and understanding of the pain you deal with on a daily basis (or minute-by-minute basis). There is no reason in the world why you should have to go through life with a constant tear in your eye, a furrowed brow and a wincing expression on your face because you hurt so bad you can't stand it.

    I once read about Fibro pain being explained as this: Fibro pain can be compared to having the pain of cancer, the stiffness of rheumatoid arthritis and the debilitating effects of MS (multiple sclerosis).

    One last thought:

    Fibro may not take your life.
    It just takes your life away.

    Cindy C.
  14. LITEFLAMES

    LITEFLAMES New Member

    You'r Dr could be sued if they do not suply you w/ suffent pain meds/ I to wen't around in circles for 4 yr's
    My rumo Dr didn't wan't to give me anything stonger then darvicet/ he said he didn't wan't me doppy around my kid's well like you i have been on all the med's you mentioned/ finially was fighting plresy (spelling) Went back to my family dr / witch remembered me yrs ago being a exersise nut heath nut , She couldn't beleave how bad i looked /she said lets deal w/ this curent problim first then i wan't you back hear abought this pain you'r in , she has sevrale pt w/ fobro,well wen't back 7 she know's i'm in recovery
    /But said she had presribed oxi to a few pt w/ this DD and has had great results , i was so worried abought taking it ,it sat in my cuberd for day's ,well finally took it ( Oh my I couldn't beleave the diffens/ we'v changed the dosege 30 in morn & 30 in evning/ Its given me soo much of my life back , anyway rambling!
    The point I wanted you to know is ,she told me by law , Anyone could sue her / or any Dr for not giving you releaf
    so go back to you'r family dr & stick up for you'r self then tell that pain mangment Dr to ripe up that paper you singed / and as far as it making me doppy it dosent , perhaps a little when it is wearing off/ good luck let me know how it turns out
    cindy
  15. Ellie5748

    Ellie5748 New Member

    I agree with CindyC43. Find another doctor asap. I tried, and I use the term lightly, physical therapy and feel that it only enhanced my fibro. I cried through every session and finally told my pain management doc that it was terrible. WHY in God's name would I want the pain to be increased? As for meds, I take hydrocodone-10.5 mgs up to 8 per day, and Soma 3 to 4 per day. I also take klonopin 1mg at bedtime. That may seem like alot to some, but there are days I don't need that much, so I keep them aside in case of an emergency. I did sign a pain contract with my doctor and I wasn't offended by being asked to do so. The doctors that are brave enough to treat us should most certainly be concerned in protecting themselves as well. The DEA has everyone running scared. Hope you find a caring doctor. Mine was a long time coming. Have a gentle day.

    Regards,

    Ellen
  16. lumediluna

    lumediluna New Member

    I would send your doc here so she can see how many people have to take pain meds and what mgs they have to take.

    [This Message was Edited on 07/15/2003]
  17. Mikie

    Mikie Moderator

    When the pain is too great for OTC meds. I rarely have to take it anymore, but it's thanks to the Morphine and my doc that I am where I am today.

    Love, Mikie
  18. Echos

    Echos New Member

    Is this what you were looking for because your doctor was taking you off your pain meds? Hope this is the one.
    Echos
  19. JLH

    JLH New Member

    No, I wasn't being taken off my pain meds. I wanted to know what type of pain meds everyone was on. My main doctor (an internal medicine dr.) and my rheumy will NOT prescribe pain meds to NOBODY. I went to a Pain Management dr. and she gave me Darvocet. It's not very strong and will not help much, so I wondered what type of pain meds everyone else took and how in the world they got their doc to give them to them! Thanks for replying,

    ... still in pain,
    JLH
  20. mrskbarnett

    mrskbarnett New Member

    They should go to prison! Now there are people as yourself who really NEED the pain meds & can't get them because of stupid stunts like the ones they preformed. It's not right. I've heard Oxycontin is wonderful for FMS patients & you're being deprived relief because of the mistakes others made. Darvocet doesn't touch the type of pain we suffer. Not much really does. Good luck!

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