HELP! KAISER, SAN FRANCISCO, BAY AREA

Discussion in 'Fibromyalgia Main Forum' started by sheelanagigs, Sep 3, 2002.

  1. sheelanagigs

    sheelanagigs New Member

    Hello, I am new to this site. I have had CFS since 85 or 86 and was diagnosed in 86 or 87. I am 49 years old and have tried lots of remedies, medications, therapies for CFS and FM over the years.

    I also have Kaiser Permanente medical insureance[or alleged health care, in my experience]. PLEASE if there is anyone in the KP system in or near the Bay Area of San Francisco who has a Kaiser health care provider who knows and understands CFS and is willing to be creative in the treatment, please let me know. I am totally exhausted with "fighting the system" and have seen twelve MD's in 3 years, with little help. I went outside the system to see a great MD in Hayward and his recommendations were not followed by my latest doc.

    HELP!

    sheelanagigs
    Oakland CA
    [This Message was Edited on 09/03/2002]
    [This Message was Edited on 09/03/2002]
  2. sheelanagigs

    sheelanagigs New Member

    Hello, I am new to this site. I have had CFS since 85 or 86 and was diagnosed in 86 or 87. I am 49 years old and have tried lots of remedies, medications, therapies for CFS and FM over the years.

    I also have Kaiser Permanente medical insureance[or alleged health care, in my experience]. PLEASE if there is anyone in the KP system in or near the Bay Area of San Francisco who has a Kaiser health care provider who knows and understands CFS and is willing to be creative in the treatment, please let me know. I am totally exhausted with "fighting the system" and have seen twelve MD's in 3 years, with little help. I went outside the system to see a great MD in Hayward and his recommendations were not followed by my latest doc.

    HELP!

    sheelanagigs
    Oakland CA
    [This Message was Edited on 09/03/2002]
    [This Message was Edited on 09/03/2002]
  3. MicheleF

    MicheleF New Member

    you'll find lots of info from the supportive members here, and also info on your DD in the library.

    I'm from Maryland, just wanted to say hi and welcome. If you're not getting the responses, either make a new post mentioning San Francisco, or edit this one (you'll see the edit/delete in red beside your message. You can also try under the doctor referral section on the home page, good info on finding a dr. and a link to the co-cure.org board which lists patient (usually) recommended drs from your area.

    Best wishes. Michele
  4. Shirl

    Shirl New Member

    Hi Sheelanagigs, welcome to the board. We do have many members here and I am sure some must have insurance with Kaiser.

    Just stopped to welcome you.

    Shalom, Shirl
  5. woppini

    woppini New Member

    Hi there. I live in the bay area too, near oakland. I can tell you all you need to know about kaiser, cause I went through the same thing. I dont mean to sound negative, but kaiser will do nothing about cfs. They are generic western medicine in my opinion. I do have a freind with cfs, and she saw a doctor in sacramento in the kaiser system. At the time, he was the ONLY one heavily envolved with cfs. Unfortunately, he wasnt able to do much with his hands being tied.
    I wrote letter after letter,asking them to reimburse for another opinion outside their organization. It led to no where but tears and total frustration. They wont cover homeopathy (not considered medicine in their views) Kaiser is good only for preventive medicine, and your typical illnesses or accidents. What you might consider, is getting a good doctor there, that listens and believes your health issues. He can perscribe what is needed, but dont be surprised if its anti-depressants. Since there isnt one clear way to help the symptonms, they put their hands in the air and say "we dont want to deal with it, yet we wont pay someone else to" I have them now, and i am sorry to say that. It is health care which is better than nothing.
    I am sure there is one or more here that has worked for them, or still do. I dont mean any hard feelings to any of you. I am just pissed at them for the red tape and crap they made me and others go through. I dont know if what i said helped, maybe i went off the subject a bit. I just wanted to let you know that this is what you can expect from them.
    My email is in my profile. Feel free to email me if I can help you with your/our situation. Best to you :O)[This Message was Edited on 09/03/2002]
  6. sheelanagigs

    sheelanagigs New Member

    my kaiser experiences have been frightening and have done nothing to improve my symptoms...hours of phone, computer, office time, waiting for nothing except another loud public outburst from me....at least i have learned that being noisy in a public alleged health care facility SOMETIMES gets results.....if there is anyone out there with more positive kaiser results than the two of us, i will gladly apologise.

    tomorrow i ask for adrenal function and ritalin...sometimes asking for something reeeeeeeeeeeally far out gets the very thing i originally wanted.....it is ridiculous to play these games with physicians, in my opinion. for instance, asking for iv vitamins (which work great for me) finally got me an order for organic foods and spring water..god only knows what i'll ask for when i need iv vitamins.


    sheelanagigs
    oakland CA
  7. Betty50victor

    Betty50victor New Member

    Just read your letter AFTER I wrote my letter regarding drs at KAISER. Go back to 9-4 @5:25 am and read it. The heading is "horrible experience w/drs" I think. Crap, only been about a min. and I forgot the exact heading but it's the only heading with horrible in it. Sorry, fibro moment, not senior.
    Betty in Valencia CA
  8. LBinCA

    LBinCA New Member

    I am a Kaiser Member in the SF Bay Area...involved for the past year with the legalities and PAtient Advocacy issues pertaining to our illness(es). I am undertaking a particular Doctor right now and would appreciate your input, your experiences in greater length, and also give you my insight~!

    I have had to seek out-of-network assistance from a Board Certified Rheumie specilizing in FMS/CFIDS who literally saved my life....Kaiser wouldnt acknowledge my name! So....I decided to fight! I dont have much strength on even a good day, but I WILL try and give you some of my experiences if your interested!

    Please email me at:



    I will be only leaving this email up briefly, do to some unsavory characters on our Board. Could you all please take note and let me know when youve got it???

    Thanks...I look forward to speaking with anyone interested in how we can collectively turn Kaiser's heads!

    Have a PAin-Free Day....Love, LoriB
    [This Message was Edited on 09/04/2002]
  9. LBinCA

    LBinCA New Member

    For those interested in discussing Kaiser Care, please email at the above eaddy address, I will take it down shortly, but feel free to contact Shirl...she has the email address as well!

    Thanks so much....Lori
  10. Copper2002

    Copper2002 New Member

    Hi All,

    I, too, am a Bay Area Kaiser member, but you sure must use a different facility than I, as I have nothing but PRAISE for my local Kaiser. In fact, you couldn't MAKE me give it up!

    One problem your post leads me to believe you are experiencing is that you have been seen by soooooo many different doctors. Many folks, apparently, treat Kaiser much like an army hospital, i.e., you call for an appointment, and get whoever THEY select for you, and probably months down the road. My husband & I have both been seen by the SAME dr. for over 12 years, and he just recently picked up our teen daughter, too. When you find a dr. you're compatible with, designate them as your primary care dr. and you will ALWAYS be assigned to their care unless you CHOOSE to try someone else.

    Also, call for same day appointments, as there is always a certain # set asside for this. These appts. are supposed to be for acute care situations, but hey, my hang-nail hurts today, ya know?

    I haven't dealt with them re: CFS as I have FMS, but our library has great informative videos, tapes and books. My dr. has sent me to an (on staff) FMS specialist, a fibro clinic, pain clinic, meditation classes, orthopedics, chiropractic, podiatry, opthamology, & neurologist, and has run ANY tests I've requested (with just a phone call, and he orders them). I've had the same neurologist for over 20 years (who orders vitamins, even!), same with GYN. I've even had surgeries recommended by occupational med dr.s there in an effort to reduce pain.

    Through the course of about 30 yrs membership, I've been to Kaisers in Oakland, Napa, Vallejo, San Rafael, Petaluma, Sacramento(2) and Santa Rosa. I find Santa Rosa is, by far, the best, followed by San Rafael. I have NEVER encountered difficulties in being re-imbursed for using an outside-of-area facility. In fact, on a recent cruise I ended up in the ships' hospital. Once home I mailed in the paperwork the ship's staff had filled out, and had check in hand within 10 days.

    Any complaints? Just one, really. Every time I use the med re-order phone system for a script with zero refills, they screw it up and I end up not getting my meds unless I go in (20 miles) to get them, then the mailed ones show up in a couple of weeks! All in all, not too bad.

    So, I hope I've offered a lite voice in this sea of negativity. ;)

    Copper
    Let Miracles Replace all Grievances
  11. LBinCA

    LBinCA New Member

    I am quite pleased you have rave reviews for Kaiser, and Welcome, by the way!

    I, for one, am not so fortunate...and am not part of the Santa Rosa facility. I am not doubting your experience for one moment. However, we as a whole (CFS/FMS) patients are cattle-herded through the Kaiser system...pawned off from one Dr. to another, and if I could tell you some of MY experiences, which I wont go into here, you would be horrified and appalled at the ramifications of a few of the Kaiser Doctors treatment of me.

    First, an Investigational Drug is being issued to me as we speak....because of NEGLECT of 3 Drs. last year....and the list goes on.

    Thanks for your input, and Welcome once again!

    Big Hugs.....LoriB

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