help me understand

Discussion in 'Fibromyalgia Main Forum' started by majic, Sep 9, 2002.

  1. majic

    majic New Member

    that all the doctors that are so called specialist and have the so called cure for us. why is it that they are so expensive? who have they cured? with all the test all the supplements that are sold and all the medical scripts that are written. who is well? i have been reading for a long time and researching and no where can i find that the fibro is better or goes away. so are we just spinning our wheels on false hope? you can tell i'm really mad about this. i'm just so tired of all the false hope that is being sold to a lot of sick people. if they are one person on this board that has been pain free for 6 months please let me know what you are doing. venting and in pain. majic
  2. majic

    majic New Member

    that all the doctors that are so called specialist and have the so called cure for us. why is it that they are so expensive? who have they cured? with all the test all the supplements that are sold and all the medical scripts that are written. who is well? i have been reading for a long time and researching and no where can i find that the fibro is better or goes away. so are we just spinning our wheels on false hope? you can tell i'm really mad about this. i'm just so tired of all the false hope that is being sold to a lot of sick people. if they are one person on this board that has been pain free for 6 months please let me know what you are doing. venting and in pain. majic
  3. tired42long

    tired42long New Member

    I also am upset because we are raised to believe that doctors are like wizards that can majically cure all. We know that medicine has come a long way, so many discoveries and life-saving techniques. Our life spans have increased incredibly. But, it DOESNT help us if the answers are still uncovered. I feel that the docs are with us in spinning our wheels. they don't know alot more than we. These "specialists" are just pioneers themselves, paid bigger bucks for mostly good guesses? We just have to have faith that they will band together and research will find the answer. For now, they are merely CONSULTANTS with us. We are the ones that have to push and think and beg and fight for what will make us well. It is scary to think of that, but as others have said, we know our own bodies better than those that ADMIT they don't have the answers.Supplements and general good health protocol certainly can't hurt, but I am not sitting around waiting for it to go away anymore. I am finding my anger has turned more to education and looking within....writing stuff down and trying to find MY answers. We don't know if we all have the same \basic cause for our disease. If one gets well, we are so happy and victorious! We do need to band together to help each other. Any little bit of advice may help pull one of us through!!!!
  4. herblady

    herblady New Member

    being a specialist doesn't guarantee anything. especially not with fm. so far, there is no cure. someday there will be. most illnesses, someone eventually finds a treatment for it, there just no telling how long it will take. that's why so many of us resort to natural methods. i WAS pain free for at least 6 months. i was using glucosamine and msm, i later added ester c. it definitely helped my joints and i had hardly any flares and the few i had were short and mild. then i started working. slowly i started feeling bad. and my elbow got inlammed. then i ran out of msm for a while, i was too lazy to go pick up any. then my elbow really got worse. now i'm back on it and am starting from scratch. you may want to give that combo a try, but especialy the msm, the stuff is great. but if you take it, you should take vitamin c with it, it helps it work. cindi
  5. majic

    majic New Member

    you were pain free for 6 months just by taking what? was this the only thing that you was on? i work 40 hours a week every week with this awfull pain. i just can't think that it is as simple as some say it is. majic
  6. majic

    majic New Member

    bump where you can answer. majic
  7. MicheleF

    MicheleF New Member

    No good doctor would say that fms can be cured. I feel it's important to go to a doctor to get a dx because there are many diseases that mimic these DDs, potentially life threatening diseases that must be treated.

    I know it is frustrating to spend money on tests that come back normal, I've been there. But lupus, for instance, must be treated & we must find out if we have it or not.

    Also, so many have other known conditions (ie hypertension) that make it difficult for the general population to know what supplements they can safely take; for these people talking to their dr or a pharmicist is a must.

    Also, for those that need to be on pain meds or anti-depressants for clinical depression, a dr is the only one who can give scripts for this.

    I personally have chosen to go for a more natural approach to treating this disease. But the Klonopin script for my restless legs has given me some relief, which my vit/min + herbals weren't given me.

    So to you & all that replied, hang in there. Please remember that our emotions can do us more harm than good...I too have been appalled at the callousness of some drs (incl. my former pcp), but when I dwelled on it(which I did for a time) I found out I was only making myself feel worse. Let's all just concentrate on what we can do to make ourselves feel better...that is an individual thing & from this board, I learned to prioritize my symptoms, then work on those bothering me most first. I also learned that having a positive attitude (which is a fight some days) is half the battle. I truly wish you all the best...take care Michele
  8. JP

    JP New Member

    Hello Majic,

    I can feel your frustration and understand it as well. Health care is a business built within the confines of capitalism. I have a hard time believing much of what I read, especially if there is a product being promoted. We are humans, and for the most part, are fairly unaware of what drives us. The people developing and selling these products probably believe that they are doing this type of work because they care. They may care, and the work they do puts food on the table. We are part of a capitalistic society, which is becoming more and more dysfunctional.

    For myself, the best I can do is to trust my intuition and try to do what I believe is best for me in each moment. My doctors become coaches. I investigate their recommendations and listen quietly before I make change. I do not remember a time in my life where I was pain free. I do not believe that I will ever be pain free. There is too much physical damage in my body. I have made peace with this on some level...for today.

    For some unknown reason, my belief system supports my illness experience as part of my spiritual path. I wonder what I will learn from this, how I might help another to find peace, even for a moment. This is during those moments when I can see this as part of my larger path.

    I hope that I have shared something of value.
    Hang in there...Jan