Help needed with Immunologist visit

Discussion in 'Fibromyalgia Main Forum' started by tennisnut, Jun 19, 2009.

  1. tennisnut

    tennisnut New Member

    Hi there, I have had my doctor refer me to an Immunologist - I'm not sure why. I think it was on a desperate day. I guess I could have just as easily asked to see a Neurolgist or Haematologist.

    I would like to know if others have been there and can give me some clues about what to expect of ask for. My previous experience with specialist is that they ask their "set" questions and don't really like to deviate.

    Should I be so bold as to ask if he/she has dealt with ME patients in the past.

    I would really appreciate any comments. Cheers TN
  2. heapsreal

    heapsreal New Member

    I would ask if he believes in cfs and if he does then ask if he has experience with cfs patients, if not i would ask to check you out and rule out any other conditions.

    My own experience with an immunologist was of no use. I was told i had chronic fatigue not chronic fatigue syndrome because i was not bedridden and worked part time????? Then he suggested antidepressants and started leaning towards psychological/depression causes. I switched off from there, really p----d off that this guy had no idea, but so do most docs.

    I have a dr who prescribes me what i want, within reason and with a fist full of papers justifying what i want, lol. So i started on famvir/antiviral and have had good response to this.

    My advise is do your own research and find a similar doc to me, generally an alternative doc who doesnt mind prescibing meds as well, and 'drive'your doc to treat you the way you want.

    You probably know more about cfs then most docs. From fatigue to fantastic is a good book to guide you, even though the author seems to self promote to making himself rich.

    Good luck Dr Tennisnut
  3. tennisnut

    tennisnut New Member

    anyone else out there seen an immunologist? and what was your experience? TN
  4. heapsreal

    heapsreal New Member

    hope i havent dampened your hopes with my response, your not going know unless you go. I know i got a kick in the guts from my experience, but different time and place for you. Hope it go's well.

    Your from the USA? i would try the several cfs specialist like lerner and co. Im from Australia and dont have the variety of docs here,

    good luck with it.

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