Help Should I keep going? Failed all my medical tests this week

Discussion in 'Fibromyalgia Main Forum' started by ceili, Aug 13, 2005.

  1. ceili

    ceili New Member

    Had to go for a mammogram, bone density test and thyroid scan.

    Nurse, not doc, called me to say:

    1) I have osteoporosis: suggested taking calcium and magnesium along with vitamin C. Also rx'd actonel that I'm supposed to take once a week.

    2) Mammo showed I have a lump...she called it a positive cyst, in my right breast. They will call to set up another "spot scan" for me in the next week or two. I should not ignore it.

    3) My thyroid (which I only have 1/2 on left side due to a goiter 3 years ago, is showing enlargement with 3 nodular lesions.

    Great.

    And Monday I have to go for a consult on my colonscopy scheduled. {cry}

    It's like every test I take, I fail. No wonder I feel so bad all of the time. My body seems to be failing me at every point they test. :(
    [This Message was Edited on 08/13/2005]
  2. Diagoras

    Diagoras New Member

    but at least with respect to the osteo and thyroid the doctors have found what's wrong and will be able to tell you what to do about it. As for the lump, here's hoping it's harmless but if it's not hopefully they can just remove it and be done with it. If you stay on top of everything maybe you'll start feeling better. Good luck!
  3. ceili

    ceili New Member

    my blood tests keep coming back that my thyroid levels are fine. Maybe for someone else, but I've gained weight, been tired and aching, and the docs still say, I'm ok.

    I have to go and find the new parameters to show the docs. What may be ok for someone else, may not be good for ME!!!

    Thanks for the good thoughts.........I'm just so tired of medicine who only seem to bill me for tests and then do nothing to help me.

    Just like the rest of you, I'll bet. :(
    [This Message was Edited on 08/13/2005]
  4. irish13

    irish13 New Member

    Do not give up! Go get a second opinion.Do research on the internet. Go for a long walk on the beach, whatever it takes do not give up! About 6 years ago I came close to giving up and said no more pain! I am so glad I didn't. I didn't have your symtoms but my life was a living h____! I'm no doctor, or shrink, but this is what I would do--Start drinking green tea, find things to laugh about. If friends have done to you what mine did to me, and disappear, find new ones. Yes they are out there. If you can't do regular exercises, start doing stretch exercises. Don't give up, there really is so much to live for! Irish13
  5. darude

    darude New Member

    Had lots of tests lately and all have shown something. A year ago they did not. MRI showed tumour and lesions. Sleep study showed apnea. Chest xray showed vessel or scar overlying rib. I am waiting for results now of EEG and Lung test for COPD. Hope they are OK.
  6. Mikie

    Mikie Moderator

    That you have so much to deal with all at once. I would find a good endocrinologist to help with the thyroid. The lab tests for thyroid hormone in the blood do not mean that the body is able to ulitize it efficiently. Sometimes, the doc needs to treat the patient and not some set of lab numbers.

    Do get the colonoscopy and tell them you need to be put out completely. If it's done right, you should not have problems.

    I've had a cyst in my breast for 20 years. It's been x-rayed and I've had ultrasound and it's benign. They just like to keep an eye on these things.

    It's a good thing they caught the osteoporosis. In the old days, there was nothing which could be done. Now, there are several drugs which not only stop the osteo but actually help you improve your bone density. This will prevent your becoming a hunchback and having dangerous fractures.

    I know that right now, it's hard to put a positive spin on these things. It's just too much to handle all at once. Please keep us updated. My prayers are with you.

    Love, Mikie
  7. KelB

    KelB New Member

    Late last year I was being put through the battery of tests they do to discount enerything else. It seemed like every time they sent me to a specialist, they found a new problem that was unrelated to the CFS.

    In the first three months of this year, I had:

    - Formal diagnosis of CFS
    - Breast lump removed (took a fortnight after the op to confirm it was benign)
    - Allergic reaction to post-operative morphine
    - Gastroscopy
    - Colonoscopy
    - Half a dozen blood tests (they'd be no big deal if I didn't hate needles so much!)
    - Recurrent bouts of intense pain caused by a hypermobile shoulder joint (felt like they were much worse than I'd ever had before)

    I was making the breast lump wait as I'd already been told it was "likely" to be benign. But the guy who diagnosed my CFS pointed out that even with that little bit of doubt, it'd still be preying on my mind and making the CFS that bit worse. I'm sure it's the same for you. At least if you face your other problems now, you won't have them nagging away at you in the background.

    You have an awful lot to deal with right now ceili, but hang in there. In a few months time you'll likely be past all this and will be able to concentrate on dealing with the CFS/FM again. For now, just try to go with the flow.

    I'm thinking of you.
  8. nina2

    nina2 New Member

    You may have failed some tests but you are finding things that can be corrected and treated. Good for you!

    That's so much better than not knowing and having a condition worsen.

    Stay strong sweetie,and try and get through this. I know it isn't easy but you have a lot of thoughts and prayers around you.
    (((hugs)))
    nina
  9. Musica

    Musica New Member

    That is a lot to deal with all at once. There isn't much to do about the osteoporosis except vitamins and pills, but I remember thinking about the possibilities just bending over, especially right after dx (February).

    I have severe osteoporosis and was put on Fosamax, calcium and Vitamin D. My PCP told me that although the blood test for Vitamin D was normal, it doesn't mean enough Vitamin D has been making it into my bones. So, even if that shows normal, ask about it.

    The thyroid and mammo situations sound scary, even though they are super careful about mammo readings and call you back for anything questionable. It is still scary because you just don't know. I hope yours is benign. I don't know what to say about the thyroid. I know it does affect how you feel a lot, but you have already had a lot removed.

    Hang in there. I hate all the diagnoses I have gotten in a year's time, but I guess it is better to know and be able to deal with it.
  10. ceili

    ceili New Member

    So nice to be able to come here and have people understand. Of course, I will perservere and do what comes next. What's the alternative? Oh well, another week, another test coming.

    Thanks again for all of your good thoughts and suggestions.

    Ceili
  11. backporchrags

    backporchrags New Member

    I know how frustrating this must be for you. To go through all that testing just to learn more bad news, urrrgghh.
    Try to think on the things in your life that still work. I know it is much easier said than done but try to think on what is working for you. Try to count your blessings and write down every day at least 3 things you are grateful for.
    I started a gratitude diary and it really helps me to put things in prespective. Some days I just can't think of anything good to write down. One particular day I could only write that I was grateful to still be able to move my fingers without pain. It was not much but just trying to meditate on the posative lifted my spirits.
    I am so sorry for your struggle Ceili,
    You are in my prayers.
    A
  12. jfrustrated

    jfrustrated New Member

    Hey! You did not fail your tests: you received some score and you made it to the test - in my books that's a pass. After my first mammogram, the x-rayers actually asked me to be a model for their students - my breasts had so many lumps for a 40 year old that I was the Elle McPhersen of the mammogram set. Now, ten years later, even with CFS, by plodding along, and slowly working on new things to try, with care, and finding good doctors, I have reached the stage that that part of my body at least is "perfectly normal." Now, I only have to worry about digestion, thryoid, colon polyps, obesity and CFS. By the time I die, I'll be healthy. Hang in there. We all have up and down times, and you currently have a down time. So, probably none of this will help at all. But try. You do not go through all of this alone.