help sleep meds aren't working anymore.

Discussion in 'Fibromyalgia Main Forum' started by dani78xo, Jun 14, 2006.

  1. dani78xo

    dani78xo New Member


    ah i know i just posted, but i forgot to ask about something else.

    my primary doctor told me that ambien and the other sleep meds wear off after a time, and don't work as well.
    has this happened to anyone?

    i was on ambien, but all of a sudden i couldn't sleep anymore.
    i've been having to take nausea meds with the ambien so i could actually fall asleep.

    and now they switched me to lunesta,
    which seems to work even less.

    i'm not getting to sleep early enough,
    so i'm sleeping in until about noon.
    i usually NEED twelve hours of sleep to function,
    and i feel sick alot at night from lack of sleep.

    has anyone experienced this and found a solution?
    i can't stop the sleep meds, or i don't get to sleep until five in the morning, and then i only sleep for three hours.
    help!!
  2. intensemom

    intensemom New Member

    bumping for replies
  3. lurkernomore

    lurkernomore New Member

    But I do feel your pain! Nothing worse than total sleep deprivation and your entire system not knowing whether it is day or night. My rheumy has had me on Temazepam, (generic Restoril) for years now. Yes, it is supposed to be addictive, but it still works and I have never had to up the dosage at all. I pray you get some help with getting quality sleep soon!
  4. JLH

    JLH New Member

    I hate it that you are having such a bad time trying to sleep!

    I saw from your bio that you are 16 years old. Are you on your parents' medical insurance plan?

    If so, and they cover sleep studies, you definitely need to take one! It's not a bad experience, but it is expensive if you don't have insurance.

    A study would give you doc a lot of helpful info on your sleeping patterns and what he needs to do to help them.

    I found out from my study that I definitely did have obstructive sleep apnea and I now sleep with a CPAP mask and oxygen. It's been a godsend to me! I can't sleep without them now!

    Has you doc ever wanted to try you on anti-depressants? Elavil is normally the first one a doc will try you on. It helps with chronic pain as well as helps you sleep. In fact, most people say it is too sedating--that is why you start out on a "baby" dose of around 10 mg.

    There are dozens of anti-depressants that are given to help people sleep. Talk with your doc about one of them.

    Hope you find something that helps for you.

    Hugs,
    Janet
  5. Scapper

    Scapper New Member

    So sorry to hear you're having such difficulty. You are definitely not alone.

    My first suggestion would be to type in "insomnia" or "sleep" in the search box at the top of the board. This topic is a common problem for many of us. This will give you a wider range of options.

    I personally take meds and naturals for sleep. I have to change my regimen frequently, because my body becomes accustomed so easily.

    Currently I take Remeron (med, very sedative); lose dose klonopin (benzodiazapine, very helpful, but difficult to come off); calms forte (homeopathic); and then I vary my natural remedies depending upon how severe my insomnia is.

    I'm currently trying L-tryptophan. Not sure if this is helping yet.

    I seem to have treatment resistant insomnia, but I keep trying.

    I pray you find something that works for you. Being up all night and sleeping all day is the worst!!!

    Hang in there, scapper
  6. AnnJ

    AnnJ New Member

    Hi,
    I just got a new Dr and he took me off of Amytriptylene and Trazadone and put me on Flexeril and now I sleep like a baby!
    AnnJ
  7. mdjaj2231

    mdjaj2231 New Member

    Hi Dani,

    I took xanax for a while to sleep because I wasn't getting any sleep at all. I had a sleep study on it and did pretty well, but the dr. warned me that I would have to keep upping the dose and he was right. He told me to do the most intensive exercise possible 4-6 hours before going to bed. At first it was nightmarish, I could barely move. But it got better and better. The bad news is that after about 8 months on xanax it put me into a horrible depression. I went off it cold turkey and kept up the exercise, plus magnesium (natural calm) and peppermint tea with stevia right before bed. Also no tv at all for a few hours before bed and a hot shower a half hour before bed. This would not have worked if I hadn't taken the xanax when I did. I needed some intensive drug therapy to retrain my body to sleep, but it did have its price. Good luck to you. We cannot improve without adequate sleep. It will get better. Hugs.
  8. millennia

    millennia New Member

    I've taken Ambien, Lunesta, even resterol which is a controled substance and should be super strong! I just lie there. For a few days I got results with nyquil. It stopped working too, but a few nights of good sleep was soooo nice.
  9. caroleye

    caroleye New Member

    I've been alternating sleep meds for years, and eventually nothing works. Just about the time you think you have a good one; bingo, it stops working.

    Problem for me is finding a Dr. who's willing to do the RX change routine due to their lack of knowledge.

    I'm in one of those places right now, so off to a new Rheumy and hope he thinks "out of the box".

    Yaawwnnnnnnnn.................Also, these long days & waking up with the sun is of NO help right now.

    LIGHT******************carole
  10. dani78xo

    dani78xo New Member

    jlh,
    one psychiatrist i saw told me he was recommending a sleep study done, and possibly to get me on xyrem. my primary care doctor didn't like the idea at all. i don't know if it was that she didn't want me on a date rape drug or if she just didn't want me to do a sleep study for whatever reason, but she wrote that suggestion off.

    and yes, i've been on alot of anti-depressants to help me sleep, and they help somewhat but not a whole lot, and they don't work at all unless i'm on some type of sleeping pill to begin with {ie. ambien, lunesta.}

    katemac329,
    i have the same problem with sleeping meds. i don't sleepwalk, but i hallucinate. HORRIBLY, to the point of sitting in bed crying sometimes {but it only got that bad with ambien} on lunesta, i still hallucinate, but at least i don't have my furniture jumping at me.

    i've also had recurrent nightmares since the hallucinations started, and they just lessen the sleep i get even more.

    millenia,
    i've also tried some stuff like OTC benadril, which worked for a while, but of course it stopped working afte ra while. i've never tried nyquil or tylenol pm or any of that, but i can't take stuff like tylenol regularly anyways, and i don't know how nyquil would affect me.



    caroleye,
    yes, it seems like everything i've tried has stopped working, or doesn't work as well as it used to.

    first i was on benadril, which then of course stoppeda as the insomnia got worse, and then, when i went to a rheumy and he learned that i couldonly get to sleep at around four in the morning, he put me on lunesta, which worked, but then the insurance company wouldn't let us get anymore, so i switched to ambien.

    then the hallucinations started, and eventually that stopped working too, and now i'm back to lunesta, which takes almost two hours to kick in, and doesn't really do that much for getting me to sleep.

    i guess it is all the name of the game, but the game is ROUGH. =].

    -danielle
  11. HppeandMe

    HppeandMe New Member

    Dani-

    I am up to so many sleep medications at night. Some quite heavy ones as well. Trazadone I think works on just about anyone but it makes you extremely groggy the next day (at least me). You may want to ask your doctor about Xyrem. It did wonders for me for quite sometime (since July or August). My insomnia has gotten a lot worse though and nothing seems to help anymore. I hope you never get like this.

    Some people have been on Xyrem for years and never experienced the wearing off like I am. Some people I have spoken to have had their life change for the better because of Xyrem. I have heard story after story.

    In any case, let us know what you try and how it is working for you!

    Good Luck!
    Hope
  12. Scapper

    Scapper New Member

    Have you tried any natural remedies?

    I've recently added L-Tryptophan and it helps somewhat. I'm not up until 4:00am, which is unbearable, as you know.

    You can do a search on this if you're interested.

    Those hallucinations sound absolutely horrible!

    scapper
  13. jane32

    jane32 New Member

    Here our a couple of things...

    I am seeing a CBT sleep specialist, taking lunesta-2 mg and gettign acupuncture.

    -take lunesta 2 1/2-3 hrs. after your last morsel of food.
    -keep your regular bed time and wake time-force yourself up and try to stay awake.
    -take Melatonin-I take 5 mg sublingual now and works well (you may feel drowsy the first few days)
    -do not nap
    -If you wake up do not lie there for more then 30 mins. get up until you feel sleepy again.
    -If trying to fall asleep play some word games in your mind or relaxation techniques. the games work for me b/c if I tell myself to relax I just get more annoyed that I can not sleep.

    I had the same problem as you. My sleep is much better but of course still needs some work.

    good luck! It is not easy to practice these.
  14. spiritsky

    spiritsky Member

    See my posting on my progress and recovery. (Do a search on this site for "Progress Notes") A big part of my problem was sleep. You might want to try some of the things I'm doing for sleep.

    One other thing that you can try which I know works for a friend of mine is the herb "Ashwagandha". I tried it myself but it made me too groggy the next day, but it doesn't bother my friend. It depends on the person. Anyway, good luck, I know how miserable it is not to sleep.
  15. dani78xo

    dani78xo New Member

    hppeandme,
    i've heard alot of people mention this trazadone and having it work for them...what exactly is it?

    and i think my doctor would only let someone put me on xyrem in a very extreme circumstance, she doesn't want someone as young on me being on a med that she doesn't know hardly anything about.

    scapper,
    does the L-tryptophan have any side effects? or none because it's natural?

    it's worth a try =].

    jane32,
    the melatonin-I you say? can you get it in like a regular vitamin store or is it like a prescription?

    anything to help me get to sleep would make things so much less exhausting.

    and i'm also on lunesta, three mg.

    -danielle


  16. PVLady

    PVLady New Member

    I am having excellent results with Restoril. It also helps with insomnia. I have been reading about this drug on other forums and see nothing but positive.

    I try not to take it every night. I may do two nights with Restoril, then Ambien and Benedryl on other nights.

    I am on 15 mg Restoril - what a happy feeling to sleep and also wake up, feeling somewhat normal (no anxiety).

    I had this anxiety going on for months, to the point I am in therapy twice a week!!

    I hope your doctor lets you try this. For this class of drug, it has a very low tolerance potential according to what I have read.


    [This Message was Edited on 06/22/2006]
  17. jane32

    jane32 New Member

    just regular melatonin..order it online though vitamin shoppe you get it the next day. I like the one by source naturals...I actually buy the 2.5 mg and take two of them.
  18. baanders

    baanders New Member

    Lyrica is excellent for sleep, pain, and anxiety. I'm taking compazine sometimes too for sleep. How about "the shake"...look it up under "Stormskeye". This shake has gotten her into a remission and she does a whole lot of other things. She said the shake helps with sleep issues.

    baanders
  19. Scapper

    Scapper New Member

    I realize how horrible this insomnia is and it's enough to make you crazy. But, I think you need to be careful with taking medication at such a young age.

    Some people here are suggesting some medications, but I'm not sure they realize how young you are.

    Melatonin can be found in any health food store. You can give this a try and see if it helps. Sometimes people are deficient in melatonin. If this is the case with you, it will help.

    L-tryptophan is actually an amino acid that can induce sleep. There is more information regarding this on the board. You can type the title into the search box and read up on it. I purchased the "Source Naturals" brand at the Vitamin Shoppe.

    I hope you are able to find something to help with this. Unfortunately sometimes it takes trying multiple things to find the right "fit" -- I pray you find some relief SOON!!!

    scapper
  20. lovethesun

    lovethesun New Member

    trazadone is an anti depressant that works better on sleeping than on depression.I've taken it for a year and it works well on me.Flexiril is a muscle relaxer and I also take this at night.Linda