Help . . .TMJ pain

Discussion in 'Fibromyalgia Main Forum' started by granny1353, Jan 3, 2006.

  1. granny1353

    granny1353 New Member

    Last Thursday night I was eating a bagel and I inflammed my TMJ. It is soooo painful, I am taking motrin, pain pills, putting heat 2 x a day. Any suggestions would be greatly appreciated.

    Granny
  2. SherylD

    SherylD Guest

    I too have a terrible time with my TMJ.. I would love some suggestions.

    SherylD
  3. jane32

    jane32 New Member

    my jaw would lock and everything for days at a time. I started wearing a top retainer and that helped move my teeth back and the # 1 thing I also bought from my dentist was something called an NTI. They are the best for TMJ! One TMJ specialist also gave me some lotion that I put on my check near the jaw but the NTi works way better. You sleep with it. I rarely have problems now. Actually only when I eat a lot of small things or something I need to chew a lot-like M & M's or fritos.
  4. Juloo

    Juloo Member

    I'm into my 2nd NTI -- only because my inlaws' dog chewed up my first one!

    I can also suggest (after you get the inflammation down a bit) checking out Clair Davies book on Myofascial Pain self-help which has the points to massage to relax the masseter muscle.

    Also check out an acupressure book for info on points to deal with this area.

    I'm sorry I can't be more specific -- I posted both books' full titles and the exercises from each, but I don't remember how long ago that was. If I have time to dig around here in the next day, I'll post a link.
  5. jake123

    jake123 New Member

    I went to a dentist who specializes in TMJ - its all he does. He also gave me some cream to rub on my joints. I thought it really helped me.
    I also did the ionophoresis which is using a very low dose of electricity to push medicine into the area where your TMJ is. I really liked that - very relaxing and a great relief from pain.
    I also got an appliance for my teeth. It is so thin that I can wear it all day and it doesn't interfere with my talking.
  6. SherylD

    SherylD Guest

    I have been going to the dent. for my TMJ now for a couple of months..

    I had a splint made.. I was to only wear it at night.. MY jaw got worse. So when I was there before Christmas he took it from me and I am to go back tomorrow.

    I have gotten a little better not wearing it.. but the headaches and pain is not good.

    What is NTI?? And do you know the name of the cream you had?

    If I know what these things are I could ask about them tomorrow when I go.

    Thanks,
    SherylD
  7. Zzzsharn

    Zzzsharn New Member

    I sing in a group.. At a recent performance my jaw locked.. I could not close my mouth.. jokingly I said do we have a chiropractor in the group.. Much to my suprise we did!

    She found the spot that locked and was able to rub it in a downward motion to get it to unlock.. Then she told me that the easiest way for me to relieve it myself is to massage it from the inside.. So I stuck my fingers in my mouth and was able to feel the "knob" that had made my jaw lock..It hurt like a mo fo, but it does work.

    That was over 4 weeks ago and It's just started tightening up again, I massage it every few days and it is helping some.

    Good Luck,
    Sharon
  8. Katkeyper

    Katkeyper New Member

    I understand there are different types of TMJ - I have the muscle type - tight, clenching, grinding which are also typical of FM patients.

    I initially had a mouth guard that was very thick and required heating to fit properly - it was too big and caused more headaches and jaw pain. It also cost $500!

    I complained and the mouth guard was replaced with one that is very thin and flexible and only cost about $75. If you have never had a mouth guard...ask for the thin, least expensive one. I can also wear it at work when I need it and can still manage to talk without spitting on my coworkers!

    I also do stretching of the muscles where the jaw connects under your cheekbone. Basically press on the muscles while you slowly open and close your jaw. It helps.

    Interested in what NTI and the lotion is...I have other facial pain that I need to tackle...I wonder if those would help?
  9. jake123

    jake123 New Member

    My TMJ treatment, splint, cream, ionophoresis, visits to dentists cost $2400 not covered by insurance.
    I have no idea what the cream was, I even tried to get it refilled later and they wouldn't do it. It worked though. I got it from a compounding pharmacy.
  10. bigmh

    bigmh New Member

    Granny...I have had TMJ for years, and it finally was so bad that I went to a dentist who specializes in TMJ.

    He told me the your diet is extremely important. Try pureeing things in the blender for a while...even meat and veggies. This will give your joints a rest, and by doing that, mine is MUCH better.

    Also I wear a nightguard made for me by the dentist, and practice relaxation of my jaw muscles (pretend that your face has no expression...your jaw drops and relaxes. Hold for 5 seconds, and repeat a couple of times each hour).

    These things really helped me....good luck to you and the others who are suffering! B
  11. Juloo

    Juloo Member

    I don't know if they'll work as is or if you'll have to paste them into your address window:

    On bruxism and the NTI-TSS --
    http://www.immunesupport.com/chat/forums/message.cfm?id=330468&B=FM#330468

    Acupressure for the jaw --
    http://www.immunesupport.com/chat/forums/message.cfm?id=332242&B=FM#332242

    I thought I did another post on Clair Davies' trigger point therapy, but I can't find it!
  12. SherylD

    SherylD Guest

    Did you guys have terrible dizziness when your TMJ was bad??

    I have dizziness and I am trying figure out what it is from. It's something in my head..

    Thanks,

    SherylD
  13. jane32

    jane32 New Member

    Sorry I don't remember the cream name. But, if he is a specialist he should know abotu it. The NTI really helped me. I spent $1250 for mine-way too much. I was totally taken advantage of but when you can't open your mouth for a month you will do anything. Since then I switched dentists and he only charges $225-big diffference!!!!
  14. DFL

    DFL New Member

    I have not had a piece of gum in my mouth for about 10 yrs or more. that makes it so much worse. i also wear a retainer at night if I'm in a flare, which is usually when I'm stressed out over something. If it locks I also massage it out.Good Luck,Donna
  15. victoria

    victoria New Member

    Then I found a dentist who does functional orthodontics. They have an organization:

    http://www.aafo.org/

    I had been to the 'grandfather' of TMJ dental treatment wayyy back in early 80s and everybody since, until I found the one who did the functional orthodontics.

    The difference was that they learn a wide range of handling people individually; before that, everybody had a theory of how to handle it, ranging from it was all psychiatric (really!) to dryneedling trigger points (gave me a seizure) to grinding down 'high points' on teeth... except no matter what I did, pain always came back. Until the last dentist....

    I have been TMJ pain free now for over 10 years :)))

    I had had to quit several jobs because of the pain caused by talking - had been in sales while in school, then was a hypnotherapist - so of course both involved a lot of talking :((

    While I did go thru 2 years of wearing a splint to let jaw stabilize, then 3 years of orthodontics to be able to not have to wear a splint, and it did cost a lot ($5K back then), it was worth every penny!

    (The major cost was from the major orthodontics in order to maintain what the splint had achieved; if I'd wanted, I could've just worn a splint for the rest of my life.)

    Hope this helps someone achieve the relief I have had!

    All the best,
    Victoria
  16. granny1353

    granny1353 New Member

    everyone, I will give these ideas a try, although today it does seem a bit better.

    You guys are great
    Thanks
    Granny