Help with Fibromyalgia

Discussion in 'Fibromyalgia Main Forum' started by jpsimon, Jul 31, 2003.

  1. jpsimon

    jpsimon New Member

    I'm 25 years old and a Male with Fibromyalgia. I was diagnosed in late February with it after having pain throughout my body for two months. I still believe this anti-biotic caused it too because it had a possible side effect of inflammation of the intestine. It was being taken for these nasty boils on my face but messed me up for good now. Its been hard dealing with the pain. Some days aren't too bad but lately its been kind of bad. I've tried taken pain relievers like Advil, Tylenol but they don't seem to help too much. I use Aspercreme some too but can only spend so much time applying it. What can I do to treat this widespread pain better? Tonight my Mom took me to Osco Drug to buy some MSM but I don't know if it will help or not. I just wish I could get the pain under control so I could enjoy life like I used to do. Its not fun living with this pain all the time and I don't feel like doing much lately. Please help me, thanks!

    Regards,
    Jeff
  2. shoshi68

    shoshi68 New Member

    I'm sorry to hear you're in so much pain. I was given flexeril, and ibuprophen, and vicodin at different times to find pain relief. I take motrin daily and when it gets really bad, flexeril. I only use vicodin if i'm knock down, drag out in pain. Your doctor should give you something- Have you seen a dr. who specializes in DD's like FM? Rheumatologist i saw was really knowledgable but no bedside manner... this is the best i can offer. you've come to the right place for answers....

    shoshi
  3. FranWi

    FranWi New Member

    I do wonder if it's more intestinal than fibro, especially if you just got off a round of antibiotics. Jellybelly posted a good deal of information a few posts below titled: LEAKY GUT, Parasites and Bacteria. You might check that out. I think the first thing I was told when I started to chat with other fibro patients is to make some definite diet changes, avoiding empty carbs, refined sugars, and even dairy if that's a problem. Eat meats, and (depending on your bowels) raw veggies, and some fruit. Keep your energy up during the day by snacking on protein foods like nuts or meat. Avoid alcohol, caffeine, sugary drinks. Try this diet change for a few days and see if you notice a difference in how you feel. I'd also recheck with your doctor if you continue to have abdominal pain - check out jellybelly's post, many times doctors don't listen to those kind of complaints and you'll have to convince him that something's not feeling right in your intestines. Since IBS is a popular symptom of fibro, they tend to ignore gut-pain as a cause of your pain/fatigue.

    There are plenty of suggestions here, so you have a lot of reading to do to find out what sounds right for you.

    :)

    Fran
  4. jpsimon

    jpsimon New Member

    Shoshi,
    Yeah I saw a Rhemetologist in February, that's when I found out I had Fibromyalgia. He just gave me this printout from some medical site which told about it. They weren't too helpful as far as treatment, kind of made me mad! I asked the nurse what could be used to treat it, she just told me they have a lot of patients use Effexor and I was already taking it. I had stopped for awhile but started up again, it didn't help that much if any. I have a prescription for Flexil and I take it sometimes. I bought some Tylenol 8 hour last night but disappointed with it because I took some tonight before Supper and it didn't help the pain one bit. Its still hurting in my fingers and legs as well as knees, I hate it. I saw a Psycharistist about it and he gave me a sample of Remeron, stuff was crap! Made me so drowsy and I was sleeping the whole day away, threw the stupid samples out. I refused to take anymore. His nurse told me to increase the dosage and that was supposed to help the fatigue but I didn't believe her. Never tried it either. He finally told my Mom I could stop taking it. Does Motrin work better than Tylenol or Advil? I've never tried it. Wish something would work because this is misery suffering like this, feel like an old person.

    Regards,
    Jeff
  5. Mikie

    Mikie Moderator

    Welcome to our board. I am sorry you are in so much pain. See if you can find a good specialist in your area. If not, consider seeing a pain specialist to help with your pain. Rheumys aren't too good with helping with pain.

    Learn all you can about your illness. There is a lot which can be done, like the diet changes suggested above. You have come to the right place. Stick around and you will learn about what we are doing to help ourselves. It will be a trial and error thing because what works for one will not necessarily work for another.

    Love, Mikie
  6. Mrs. B

    Mrs. B New Member

    Sorry to hear you are in such pain. When you were diagnosed did the doc start you on some pain meds? I use icy hot sometimes and that helps. So does a hot relaxing bath. A bath with epsom salt and peroxide actually are proven to ease pain in more ways than just relieving stress. Some people have rice sewn into small type pillows. They can be microwaved to provide a moist heat to the area that hurts. A massage might also help. All of the things I mentioned can be found in more detail along with many other helpful ideas by typing in key words at the top of the page in the search box. I hope you feel better soon.

    Lisa
  7. jpsimon

    jpsimon New Member

    What does IBS stand for? I don't know so please tell me. When you said to avoid caffeine, does that mean I can't have any? That's hard to do if that's what you mean because I enjoy drinking Vanilla Coke, sometimes Coke and Wild Cherry Pepsi. There are only limited soft drinks with no caffeine in them. Could a fall off a bike cause Fibromyalgia? I remember in December I was riding my bike home after it had rained then froze on the street, I fell off and hurt my knee really bad. I was cursing because it hurt so bad. I just wondered if that could have any effect on the cause or not. For awhile I was also questioning if Echinachea or Zinc could cause a problem with the Immune System too but that was only based on some research online. Do you think it could? I was taking Echinachea late last year. I still take the Zinc though because I had tried not taking it to see if the pain would go away but it didn't have any effect so I continue to take it. I hope to get help here. I like this Message Board, nice people here :)
  8. jpsimon

    jpsimon New Member

    No the Doctor didn't start me on any pain medicines. He just did a Physical exam to see where the pain was and to find out if it was Rhemetoid Arthritis like I had thought it was at first. But it proved not to be. I've tried Blue Emu Oil, and Joint Ritis. But Joint Ritis isn't so great as they say because it stinks too much and I don't like people knowing I have stuff on so I returned it. The Blue Emu Oil is good but costly if its not on sale so I haven't bought anymore. Plus there's not too much in it. I just use Aspercreme mostly and sometimes take Flexil. Has anyone had results with Glucosamine and Chondrontin? I just wondered if that would help. I had tried some from Walgreens but only took it a few days, didn't seem to help too much so I returned it. I hope something will help me and others on this board.

    Regards,
    Jeff
  9. FranWi

    FranWi New Member

    IBS is irritable bowel syndrom - causes bad cramping, gas, bloating, pain in the gut/intestines, diarrhea or constipation. But these same symptoms can be associated with other gut problems.

    FMS can be triggered by trauma, or stress, or viral infections, there's a variety of sources that could cause your problems. A build up of yeast after being on antibiotics for a while could cause some of the same symptoms as fibro and be misdiagnosed.

    My best suggestion is to read some of the articles and other's experiences and keep an ongoing list of things you want to ask your doctor on your next visit!

    :)

    Fran

  10. pkay51112

    pkay51112 New Member

    Jeff, I have fibro as well, and I was diagnosed in December of 2000. My doc didn't give me anything for fibro, only something to help me sleep at night. I went a year and half with no pain meds, It was terrible. I was referred to a specialist at the U of M hospital in Michigan, and I have been helped with pain meds, ultram I take and i take it up to 300 mg a day. And if it wasn't for that I would be miserable. Won't your doc give you anything??? You should go to a rhumeotologist. They usually can help with that. WEll I hope you find help in your pain relief. Keep us informed, Your friend Pam