Help with ME

Discussion in 'Chronic Fatigue Syndrome Main Forum' started by Mandyspike, Apr 30, 2015.

  1. ljimbo42

    ljimbo42 Active Member

    Hi Mandy- I just went up from 2 to 3 capsules a day of charcoal. It seems like the longer I take them the more they help. Let me know if it helps you. The prebiotic I'm using is called acacia fiber or acacia gum. I heard it is a very good prebiotic from Dr. David Perlmutter.

    He is a neurologist but has researched the gut extensively because he discovered that gut problems often cause significant problems in the brain. I continue to improve and feel better and better!:) That's fantastic that your hot flashes stopped! Are they still under control with the meds?

    The prebiotics should feed the good bacteria in your gut, so they multiply and push out the bad. With a little good luck you might be able to get rid of the minor CFS symptoms you have with the prebiotics. Wow, 2.5 hours of dancing!! That's like running a small marathon!!:D Sounds like soooo much fun!!

    I will talk to you again soon. Take good care Mandy! ...... Jim
  2. Mandyspike

    Mandyspike Active Member

    Hello Jim, it is really nice to know that you are feeling better. I haven’t tried the Charcoal yet but have been having prebiotics. My symptoms seem to have subsided a little these last few days which is a relief!
    Yes hot flashes under control thank heavens! It’s a great feeling not to be burdened with them. My sleep is a little better too so things are looking up for me.
    I’m still doing my dancing. I really can’t get enough. This sounds disgusting I know but by the end of the night last Thursday I was saturated!! I danced that much. This week I am going Wednesday and Thursday. I am a glutton for punishment lol
    What is happening with you this Christmas? Are you doing anything with your Son? How is he by the way? Is he still with the girlfriend?
    I have made a start regarding Xmas, I have bought one or two presents but quite a few to go. You will never guess what we are doing Christmas Day? We are going to visit family in the morning then my Husband and I are going to go to our favourite Indian restaurant and have a meal there. Just the two of us.
    I have a lovely piece of beef cooking slowly in the oven so I am off now to prepare some veg to go with it. It smells delicious!!
    Have a good evening Jim
    Keep well
  3. ljimbo42

    ljimbo42 Active Member

    Hello Mandy- Did your symptoms improve from the prebiotics or was it something else. I have been feeling really good the last several days as I continue to go up on the dose of prebiotics. I dug up some computer parts I had in storage and put together a second computer, just in case something happens to my new one.

    The problems you have been having with sleep could be either from CFS, which is extremely common or from menopause or both. Glad to hear they are improving! I use to dance a lot before I got sick. I too would dance until I was drenched in sweat!:D I loved it!

    My son should be coming by on xmas and spending some time together. He is doing well and still with his girlfriend and her daughter, I think she's 7 years old.

    Xmas morning with your family and a peaceful dinner with your husband, at your favorite Indian restaurant sounds like a really good xmas.:) I need to ask my son if he wants a blu-ray dvd movie for xmas. He has a big collection and loves watching movies.

    Take good care Mandy and enjoy the dancing!!:) ........... Jim
  4. Mandyspike

    Mandyspike Active Member

    Hello Jim, how are you today?
    I am just the same as usual. I continue to have mild cfs symptoms most days lately but I am coping with them and not letting the problem get to me too much. I am still not sleeping very well. I’m averaging around 4.5 hours a night so not good. I do think the HRT is helping me. If I wasn’t taking it and still having hot flashes I would perhaps only get around two hours so it definitely helps there.
    Change of plan this Christmas. My brother says he will be on his own so asked my Hubby and I would we like to go celebrate with him. A couple of friends have also invited us. Anyway we have decided to go to my brothers house, he is great company and a fantastic cook. We will have an Indian meal some other time. Best laid plans and all that!
    Have you met your Son’s girlfriends little boy or hasn’t it come to that yet?
    That’s a good idea creating a second computer. It’s wise to have a back up plan, it also keeps you occupied too. I bet you get great satisfaction by putting it altogether yourself.
    Are you getting any exercise lately? I know how you enjoyed your walks.
    The temperature over here is around 8c at the moment. I can hear that it has started to rain now. What’s it like in your neck of the woods?
    I shall go and prepare our dinner now. Spaghetti Bolonese tonight. Yummy!
    Have a great afternoon and evening Jim
    Bye for now
  5. ljimbo42

    ljimbo42 Active Member

    Hi Mandy- I am doing well I'm happy to say! There are some very safe herbs you can take if you want to, that will help kill off some of the bacterial overgrowth that I believe are causing your cfs symptoms. The herbs thyme and ceylon cinnamon are both very good for gut health.

    I just remembered this. I started taking holy basil for it's effects on the gut and found it makes me very relaxed and sleepy. I started taking it in the afternoon, then switched to taking it a night because it makes me so sleepy. It really helps me drift off to sleep. So maybe thats something you might want to try to help you sleep?

    I just started taking some psyllium fiber to help my gut out too. Psyllium is Metamucil without any added ingredients. It seems to be helping. I am becoming more and more active in the last few weeks. I find myself looking around my apartment for things to do almost every day now to keep myself busy!

    So it's xmas at your son's place now instead of Indian food. Sounds like a good time either way.:) I have met my son's girlfriends little girl.;) She seems like an average 8 year old, into toys and computer games. I haven't been doing very much walking lately, instead I am doing more around my apartment. It's really amazing how much I can find to do, when I have the energy!

    I guess you don't need to any walking now that you are doing all that dancing??:cool::) How's the dancing going? You still crushing grapes?:D

    It's getting really cold here, it's -4c rate now and going down to -10c tonight. Tomorrow night it's suppose get down too -13 already!! Brrrrrrrrrrrr! The thought of winter makes my teeth chatter.;) We just got our first snowfall of about 8cm a few days ago and another 3-4cm yesterday. Hope you are doing well....

    Take care Mandy!................ Jim
  6. Mandyspike

    Mandyspike Active Member

    Hi Jim, I would just like to wish you a very merry Christmas. I hope you will feel well during the festivities.
    I will message you again in The New Year.
    All the very best
  7. ljimbo42

    ljimbo42 Active Member

    Hi Mandy- Thank you!:) My best wishes to you also. I hope you have really enjoyable and healthy, Christmas.
    I will talk to you again next year.:D

  8. Mandyspike

    Mandyspike Active Member

    Happy New Year Jim.
    I hope you have had a nice Christmas. Ours has been very nice but I am glad it’s all over. We have already taken down the Xmas decorations in the house.
    I have just been chilling out today. I have had a couple of cookery books bought me which have kept me entertained for the day. Lots of delicious recipes that I will look forward to trying.
    How have you been during the festive period. Did you get to see any family.
    My sleeping seems to have improved recently which I am glad about.
    Well all the very best to you my friend.
    Take care of yourself
  9. ljimbo42

    ljimbo42 Active Member

    Happy New Year to you too Mandy!:) I did have a good xmas. My son and his now fiance, came over and we did some catching up. I think we all had a good time. It's been absolutely FREEZING here. The last couple of weeks it's often been -23 to -26c with the wind chill!! :eek::eek:o_O

    That's during the day, of course at night it has been even colder. I'm doing really good. My health continues to improve but I still have to watch out for PEM creeping in when I do more than 4-6 hours of physical activity a day.

    Those cook books should keep you busy in the kitchen for a while.;) I know that's something you enjoy.

    Haha, your sleeping has improved and mine is a little worse.:D Not bad though. I usually get at least 6.5-7 hours and just go to bed early that night if I need to.

    How's the dancing going? You learning any new types of dances?

    Hope you have a wonderful, peaceful 2018!

  10. Mandyspike

    Mandyspike Active Member

    Hi Jim, yes we have been listening to the weather reports for over where you are. I feel the cold terribley and I’m afraid that that temperature would see me off lol.
    It’s good that you were with your Son and girlfriend at Christmas
    It’s great to know your health is improving. Let’s hope you carry on that way.
    I am doing good. Actually I am so healthy at the moment which is great but having said that I many a time experience PEM come the evening. I just put up with it to be honest.
    My sleep has really improved, but sadly yours has worsened I have been getting on average around 6 hours a night ( a bit like yourself) which for me is amazing!
    I have bought myself a fitness tracker which I wear on my wrist. It calculates all the steps I make and is able to inform me of how many hours Sleep I get along with other fitness capabilities. It is unbelievably accurate. It truly is a great little gadget. It’s called a Fitbit.
    A couple of weeks ago I went walking out during the day then went dancing in the evening and with those two activities I clocked up 22,ooo steps.
    The dancing is great Jim, I am loving bing it! It’s the same dance I am doing but I am learning different moves every week.
    Do you remember during 2016 I attended a fitness club whereby I used to go swimming? Well I have started a new membership and now i am not only doing swimming I have incorporated the gym and a yoga class. I have to be careful with the yoga because a while ago I went to a certain class and I couldn’t move for ages after doing a certain move. Do you remember me telling you that story?
    So as you can see, I am one busy lady at the moment.
    Going to put a Lasagne in the oven now. Not home made I shamelessly admitt. Looking forward to it anyway.
    All the best Jim

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