Discussion in 'Fibromyalgia Main Forum' started by street129, Nov 25, 2009.

  1. street129

    street129 New Member

    I have a bunch of viruses, and lately, i've decided to get scripts for valcyte, but i am not using it because of the negative things i hear about it.

    i also have valtex, but got a script of that and began useing that and Diflucan.

    two days straight, i've been feeling just bad, are these two drugs are the cause of me feeling like this.....ANY help on this matter is needed.

    diflucan...anti-fungal for candida
    valtrex...simpex 1

    they are for different things.... valtrex 1 twice daily
    diflucan, i take 1 a day.........should i discontinue these drugs.......any one with any advice.
  2. ladybugmandy

    ladybugmandy Member

    could you post your antibody titres to EBV, HHV6, CMV, etc?...the tests will show whether the viruses are likely active or not.

    the drugs can cause you to feel bad but so can a viral die-off reaction.
  3. street129

    street129 New Member

    as of my last blood work....10/9/09......ebv IGG...3.10 H... RANGE IS 0.00- 0.90

    as of my last bloodwork...10/16/09......cmv IGG...1.40 H.... RANGE IS 0.00-0.90

    as of my last bloodwork..11/5/09........hhv6 IGG....1.40 H... RANGE IS 1.10
    [This Message was Edited on 11/25/2009]
  4. ladybugmandy

    ladybugmandy Member

    hi street,

    are you seeing a good infectious disease specialist? may i ask why you feel that you have a candida infection?

    if it were me, in light of the XMRV finding, i would continue the valtrex and get tested for XMRV as soon as possible.

    sue there a way you can increase your valtrex dosage? dr. lerner, an expert on chronic herpes viral infections, prescribes 4 g a day or more of valtrex for active EBV.
    [This Message was Edited on 11/25/2009]
  5. street129

    street129 New Member

    im not seeing a good dr in that respect that takes my government insurance.

    i see regular mo joe that dont know anything about cfs......i used to see susan levein, when i had the good insurance, i left her a message today..... for some reason she dont like me very much anymore. i know her since 1995.
    my tongue is white, and i have gut issues, i take 500mg of valtrex....

    i took the lower dosage of ldn last night for the first time since i stop taking the higher dose, im not feeling too bad today, i might start taken back the valtrex tomorrow friday.[This Message was Edited on 11/26/2009]
  6. ladybugmandy

    ladybugmandy Member

    hi street...can you increase your valtrex dose?

    dr. levine doesn't seem to like anyone lol..she is bizarre in my opinion.

    please call VIP Dx and order the XMRV test. it is very important.


  7. street129

    street129 New Member

    i thought i was alone with dr susan levine and how she acts, i am so relief to know that you know where im coming from pertaining to dr levine. i wish she was more plesant, so i can go back to her and give her my money knowing that she likes me. she can be so cold. its funny how she wants to aide in helping people with cfs, yet at the same time be so distant, and she do act weird. that's my opinion on her too. lol

    increase the valtrex dose from 500mg 2 daily to 4 times a day, i can do that, but doesnt valrex has some side affects

    for the test..i did call about 3 or 2 weeks ago, spoke with a nice lady, they put me on a waiting list, but im scare of what that test might say.

    thanks for corresponding with me, sometimes i feel so alone, i know my family cares and they understand, but its not the same[This Message was Edited on 11/27/2009]
  8. goodguess25

    goodguess25 New Member

    I know when i was on diflucan I was extremly tired and exhausted It also made me feel disorntied spent the week in bed. The good part was It had the drug high effect on my pain. Never would of thought a medcine to treat yeast worked better than my painkillers and muscle relaxers. So I got some deep sleep and after the medcine was done. I went back to normal.
  9. ladybugmandy

    ladybugmandy Member

    you should read my old posts regarding susan levine. seeing her was a nightmare! i only saw her once.

    dr. lerner prescribes approx 4 g of valtrex a you would have to take 8 pills a day of the 500 mg ones.

    i am scared too....but what can we do? it's better to know if you have XMRV so you can start some meds and at least stop disease progression.

    maybe if we start to feel better our mind set will change...?


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