** HERNIA / Treatment / Symptoms == Seeking HELP

Discussion in 'Fibromyalgia Main Forum' started by S-Elaine, Aug 14, 2011.

  1. S-Elaine

    S-Elaine Member

    Hi all,

    I have been through months of extreme pain in my legs for the last 2 to 3 months & I am still seeking help to find out ----- WHAT Do I Have???

    I am at a point where I can barely function anymore. I am almost immobile.

    A battery of tests have been going on for months and still no definite ----- DIAGNOSIS.

    -- Problem ……. I cannot stand for more than 2 to 3 minutes without my legs starting to burn with terrible pain & I have to sit or lay down with my legs elevated.

    My next step in being to be able to go out of the house would be a WHEEL CHAIR, possibly.

    I think I have a -------- HERNIA in my groin area & I believe it has gone undetected for quite some time.

    It may even be the reason WHY I can no longer stand or walk without being in horrific pain.

    Peripheral Neuropathy was ruled out along with many other issues.

    My Doctor is over looking the 2 lumps or areas on my lower abdomen. On the right & left side.

    I would describe it as ………

    == It looks to me like 2 BLUE (ish) colored veins or protruding ares.

    == Both about 3 to 4 inches long that run vertically on my very lower stomach & they are very noticeable to the eye.

    == When I stand, they stick out more, where I would call them “bulges”.

    == I first noticed them a few days ago & my entire very lower abdomen was bruised all across the front of my body & both of these areas are “inflamed”.

    == They just appeared out of no where. (So it seems, but I am not 100% positive.)

    == Perhaps they were there before and when I was on Lyrica my stomach always looked a bit “bloated” so I could not see them.

    == Due to all of my recent medical problems I have lost about 15 pounds & I do look very “unhealthy”. Way too thin where my clothes are so baggy on me.

    I was extremely frustrated and shocked when my FMS Specialist completely dismissed it. He said it is a Hernia & it SHOULD NOT be a problem.

    …… Well, the problem to me is SOMETHING has drastically affected my health to a point where I cannot function. I only leave the house if I have a doctor’s appointment.

    I have had issues with ongoing constipation, water retention of 15 to 20 pounds. The water attention is finally under control.

    My legs are unstable.

    My legs now feel like 2 incredibly painful limbs (or body parts I have) that are filled with severe cramps, burning sensation, throbbing, complete numbness at times where I am now becoming ------- “fearful” of what tomorrow may bring me.

    With the symptoms I have listed, does anyone know if this could be a Hernia??

    Any guidance would be appreciated.

    Best wishes,
    == Elaine
  2. justjanelle

    justjanelle New Member

    Elaine, although I don't really have an answer for you on the hernia question, I wanted to reply anyway, especially with your problem about the doctor completely dismissing your concerns. At the very least you deserve to be heard and have it checked out further.

    I don't really know much about hernias, but I do know some of them can be very serious.

    For some reason, while I was reading your symptoms related to your legs, I wondered if you could possibly be having sciatic nerve problems -- that can also lead to incredible pain in the legs.

    It is also possible you could have spondylisthesis (I know I've spelled that wrong) which is a condition in which when you stand, step or lean forward, one or more of the vertebrae in the spine slip (usually forward) and can press against the nerves in or coming out of the spine. This can also lead to very bad pain in the legs although I think it also usually has some back pain associated with it too. This condition is diagnosed with a *standing * xray (side view, standing, leaning forward from the waist )-- not a lieing down xray.

    As I said, I don't know much about hernias, but I've recently had a much-too-complete education about back issues. I hope you can track it down and get some relief!

    Best wishes,
  3. earthdog2000

    earthdog2000 Member

    Dear Elaine,

    I saw your post and thought wow, this sounds really scary! I'm sure that you are freaking out a bit but understand that not all drs. know what they are talking about and just want to give you a dx. The fact that your dr. does'nt even seem concerned or think it's serious would really bother me and I would definetly get a second opinion! Maybe like Janelle said it could be sciatica or something neuropathic. I would go on the web and just look up "severe pain in legs with some numbness". You will be surprised to see what comes up! I don't know much about hernia's but even if your dr. is right it can be a very serious condition.

    Do not feel like you should just try and live with this pain and do not discount it. What if it is something serious? I would want to know and would go see a specialist. See if your dr. can refer you to a neurologist. I just have a feeling that it may be neuropathic I don't know why. I am not a dr. and am just saying what I "think" it could be. If I were you though, I would get on the phone tmo and get a referrel to another dr. or specialist for sure.

    I'm so sorry that you are suffering so badly and I know that it's the fear of the unknown that is the worst part. With those of us who have fibro though, the pain will usually be worse than in someone who does not have it because we have a lower tolerance for pain. Please call your dr. tmo and keep us all updated. I will say an extra prayer for you tonite and hope you feel better real soon. take care,

    Faith, Peace and Comfort, Julie
  4. Sacajawea2

    Sacajawea2 Member

    So sorry to hear of your immense pain and that they haven't found the cause...I do have a friend that had varicose veins in her groin that proved to be so painful she couldn't walk. She had to have surgery...could that be a possibilty? They can pop up anywhere on the body...I wish I was still in contact with that friend so I could tell you more but if it's not a hernia, it could be that since you are seeing blue veins!

    When I had intense burning pain down my legs it turned out to be several herniated disks. It first happend when I was 14 and I could only take a few steps and then would have to wait for the intense pain and tingling to work through me, then could take a few more...at the time I blamed it on a back brace I was wearing for scoliosis but it go better after a time on its own, possibly w/ a cortisone shot, hard to remember now. But then a few years ago when I had mri's they told me I also have severe spinal stenosis that I most likely was born with and that it probably wasn't the brace after all. I can barely walk anymore, but my pain is not as severe as yours right now. Get a wheel chair, even if only needed temporarily...and don't give up~ I hope they find the problem soon!


  5. munch1958

    munch1958 Member

    Some doctors said it wasn't a big deal and to leave it alone but this thing was driving me nuts. I couldn't stand up for long periods without this area bulging. It was having a big impact on my life so I got it fixed. I developed a hernia in the laproscopy incision (scar) in the abdominal wall.

    Does the area swell up more at night? then lie flatter in the morning?

    If so this is the main sign of a hernia which makes it that much harder to diagnose. Simply because most doctors see patients during the day and a hernia flares up at night. Very annoying!

    If you do indeed have a hernia then I would recommend seeing a bariatric or weight loss type surgeon the kind that do bypass operations. I say this because most of those docs have hernia repair experience due to the sheer number of people who develop hernias from being 100+ overweight and have weak abdominal walls. It's not uncommon from the severely obese to have 3 or 4 hernias at once and it is common for people with bypass surgery to have a hernia afterwards.
  6. momsherry

    momsherry New Member

    Hi Elaine, I remember your name when I use to pose on here yrs ago. sorry about your bad pain and hernia problems. I agree with Julie, I have neuropathy very bad in my feet and legs. Lots of burning, pins and needles, cramping, hard to walk and hard to stand for a long time like in lines. I have numbness all the time. Herniate dics and sciatia can cause lots of leg pain and leg problems. Hope you can get some help so your life can get better soon. I will be checking on here to see how you are doing. Take care, Sherry
  7. momsherry

    momsherry New Member

    I agree to some of the other ladies replies, I have herniated dics in my back and siaticia in my hips, which radiates severs pain down in my legs. One thing can cause lots of other things like domino attect. I need back surgery but I had polio in my spine so won*t have anything done to my back. I will be replying to you again to check on you, I recognize your name from yrs ago. Take care, and I Pray you will feel better soon, Sherry
  8. Granniluvsu

    Granniluvsu Well-Known Member

    I just wanted to pop in and say that I have been thinking of you. Hope things get better soon. I guess you have quit the Lyrica. How long have you been off. Did you notice any changes in how you felt at all, after you were off it for awhile?

    I know fron others too that neuropathy can be painful, for one thing. I can't believe that the docs or some of them don't seem to be that concerned. Keep working at it. I know it is frustrating when you feel badly and haven't gotten any answers yet.

    God bless you Elaine! Hope they find the cause really soon.


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