Hi another intro plus question bout disc problems?

Discussion in 'Fibromyalgia Main Forum' started by peachrie, Jul 31, 2006.

  1. peachrie

    peachrie New Member

    Hello!

    I'd like to introduce myself to the forum. I’m 20, and I have been diagnosed more than two years ago, but have suffered from pain for years before that. In the beginning, I had a lot of problems in my arms, which led to excruciating neck and back pain. Now I have debilitating symptoms all throughout my body- trigger points all throughout my body, diffuse pain, fatigue (I totally sympathize with the intermittent fatigue post), knots, visual disturbances, digestive issues, sleep disorder, muscle spasms, the list goes on… my condition has not been good at all this summer, and I have flares all the time-I’m staying at home and trying to find ways to get better! Anyone have any suggestions?

    I've gone to so many doctors, practically every specialist, who for the most part have not been very helpful. I have yet to find an FM specialist. Because of my young age it was only until really recently that a doctor questioned my spine and sent me to get an MRI (one doctor several years ago refused to write a prescription for MRI saying that I was too young!!) of my cervical spine and an EMG. MRI showed degenerative changes, bulging discs, etc., and my EMG came out abnormal. So I have this, in addition to FM. I was wondering if anyone else has disk problems and have found any relief?

    I've been reading the posts on this forum recently, and I just wanted to say that my heart truly goes out to everything that everyone says, it's so great to find a place where people sympathize and care and are going through what you are going through (although I'm sorry that we have this). I haven't been able to post although I've really wanted to because I can't type and sitting in front of a computer is a pain (literally), but I'm using voice software and hoping this will help.

    I was just wondering what things people find helpful in typing/sitting in front of the computer? Are other people using voice software as well?

    I've tried many different treatments, and I've yet to find one that works. I'm on supplements, eating super healthy (trying to protein load), doing stretches/aqua therapy/walking, going to the chiropractor two times a week, etc. I've tried many different therapies in the past, including acupuncture, moxa therapy, cupping, etc.

    Anyways, sorry this is such a long post, I was hoping to summarize it, lol! but I just wanted to say hello and I hope to be able to post more often!

    Thanks for such an awesome, supportive community! I look forward to getting to know you :)
  2. lovethesun

    lovethesun New Member

    It's wonderful to have you on the board.I use a laptop.I couldn't stay on very long with a desktop.Linda
  3. peachrie

    peachrie New Member

    Thanks for the welcome! This forum is truly helpful :)

    lovethesun- just wondering, how does using a laptop help?
  4. lenasvn

    lenasvn New Member

    I suspect she put the laptop in her lap while sitting in the couch or lie in bed?? Just a suggestion,,,LOL!

    Welcome!
  5. AnneTheresa

    AnneTheresa Member

    Welcome! I'm sorry to hear you have such pain and other symptoms at such a young age. It must be frustrating to have tried so many healing modalities without significant improvement. You've found a wonderful and supportive community and many of the individuals here could relate first-hand to your issues.

    I use a desk computer and I'm very particular about how things are set up (for example, computer screen at eye-level so as not to strain my neck, lowered keyboard, etc.) I have an executive, high-back chair with arm rests and I use a wrist support with my mouse. I also use a little stool to keep my back aligned. That set up gives me 5-10 minutes of relative comfort at which point I get up and do something else for 5-10 minutes. (I'm up and down a lot through the day a sitting or standing for more than ten minutes is not possible.)

    I look forward to reading your posts and getting to know you better,

    God bless,
    Anne Theresa
  6. joanng

    joanng New Member

    You're in the right place. I have found more info and support here than anywhere, even from my doctor(s). You're on the right track and you sound very determined but you'll have good days and bad days. I have bulging disks in my neck (3) but I've noticed that with exercise they don't bother me too much, they're still there and they let me know it but yoga (other stretching exercises too) help a lot. I've noticed by mid-afternoon my neck is killing me when I'm at work and really stressed out. I used Lidoderm patches for these areas. There is SO much info on these boards, use the Search tool and you'll be able to find specific info in case you're having a particular problem. I'm going to ask for a better chair at work when I get back from vacation. I'll let you know if it helps and what kind it is. Good luck and welcome.
  7. lovethesun

    lovethesun New Member

    I either put it on my bed tray or on a blanket on my lap.I can stay a whole lot longer than when I was ae the desktop,There I only was able to do 10 minutes or less.Linda
  8. JLH

    JLH New Member

    I just left a reply to you on another one of your posts!!

    Welcome to our board! I really hate to hear that you have so many problems at your age. How sad.

    Have you consulted with a good orthopedic surgeon? I think I would do that before I had a chiropractor cracking my back and neck that had degenerative problems!!

    I went to a chiropractor last year, but only as a last resort, to try to fix a pinched nerve in my lumbar area, but he didn't help. I was praying the entire time that he wouldn't crumble my back which was already degenerating!

    Also, have you had your sleep problems diagnosed by a sleep study? I think it's really important to have one done if you are having problems sleeping. I have obstructive sleep apnea and sleep with a CPAP machine with oxygen. It has really made a big improvement for me.

    The only other thing that I might suggest is physical therapy. PT in the water is really great if you have a facility that offers that close by.

    Hope you get to feeling better!

    Hugs,
    Janet H.