Hi Dara, Klutzon and Stacey, just find out that

Discussion in 'Fibromyalgia Main Forum' started by kooky, Jul 6, 2003.

  1. kooky

    kooky New Member

    Well, what a joke doctors are.... thanks for your your response. Anyway, I knew that something was definitely wrong and looked thought copies of my medical records which I have at home.

    I looked at results from an echocardiogram performed in September 2001. I noticed that I have left ventricular dysfunction and mild mitral valve regurgitation. This explains the 50% ejection fraction which is not normal.
    I WAS NOT TOLD OF THIS BY THE CARDIOLOGIST.

    Apparently the mitral valve regurgitation can stay mild or develop or turn into serious need for surgery or heart failure! The cardiologist is supposed to recommend regular echocardiogram at least one a year to monitor this. Instead I was discharged from the cardiology clinic!!!!!

    HOw do I know that the mitral regurgitation is not becoming acute if my GP does not recommend another echocardiogram?
    I simply do not trust doctors any longer. I live in the UK where we do have socialised medicine. Budgetary cuts are now affecting long term sufferers as well as those with private health care. Lack of resources, and medical specialist means that it is best to go abroad for medical treatment!

    You are right about the blue nail, this indicates lack of oxygen. It could be caused by many things though and unless GP willing to investigate, which she is not really interested in doing, well, I supposed I shall have to wait for an emergency to occur.

    I am thinking of changing my GP but might well end up with a worse physician that this one.

    Well, thanks for your views, very much appreciated. Kind regards and best wishes. Kooky/.

  2. klutzo

    klutzo New Member

    Since I guess you cannot afford to go to an alternative doc and pay for it yourself, there are some things you can do right now to help your Mitral Valve Prolapse symptoms lessen.
    1) Drink a quart of water daily for every 50 lbs. you weigh. (Sorry, I don't know how that translates into stones)
    2) Take at least 60 mgs. daily of COQ10.
    3) Take at least 400 mgs. daily of Magnesium, preferrably at bedtime.
    4) don't lift heavy weights.
    5) don't stand up for long periods in hot weather.
    6) keep your chest and neck well covered in cold weather.
    7) insist on another echo at least once every 3 years
    8) Be sure you have an antibiotic to take prior to all dental work, even cleanings, and any other procedures involving blood. If you have surgery, be sure to tell the surgeon you have an MVP with regurgiatation.
    Best wishes,
    Klutzo