Hi Everyone I am new here

Discussion in 'Fibromyalgia Main Forum' started by mer66, Jan 23, 2007.

  1. mer66

    mer66 New Member

    Hello,
    My name is Maria, I am a 41 year old woman, and Iam married
    and I have five children, first born were my four daughters, and then I had my son. My husband and I have been married for about 19 and a half years. My children's ages are from 18 yrs to 5 yrs old.
    I am very very glad I found this message board! I have read some of the postings and I have been very encouraged already!

    I am wanting to actually find some answers and I think I may have come to the right place because alot of the things that I have been reading from the message boards that people are going through are similar to what I have been going through. You see I was a very active person before I became
    pregnant with my son, from that pregnancy I was really sick, and I haven't gotten better, or back to what I use to be like. I go through bouts, or episodes of total exhaustion,
    and with it comes weakness and chest pains and circulation
    problems especially on my left side, tingling in my feet and hands, dizziness and wanting to pass out, then i end up
    in bed for several weeks, not being able to take care of my family, they actually end up taking care of me. Then when I do get better, I have to pace myself, can't do a heck of a lot or I end up in bed again. I sit on the couch for several hours not able to do any daily activity, showering takes so much out of me even brushing my teeth! Having to tell my son I can't play with you right now mommy has to rest.
    I try and try again to exercise but then I get another bout of exhaustion,and the cycle goes around and around again!

    I have visited alot of doctors trying to find out what is wrong with me, they take tests and they say everything is alright, I don't understand it, I ended up in the hospital one time because I felt like I was passing out and then my husband phoned an ambulance because my speech was becoming slurred, but the emergency doctors did alot of tests and sent me home because they said nothing was physically wrong with me, my husband then took me to a walk in clinic, and the doctor there said I was just having a panic attack, yet when the ambulance had come to the house they said I was low in oxygen.
    My brother got me in to see his family doctor, again HE did
    alot of tests, the only thing that come back not normal was that I had a high inflamation level, but HE finally referred me to an internist because he thinks I have Chronic
    Fatigue. I am still waiting though to hear from the internist office, it has been about six months.
    I guess what I really want to know (and see if I can get some feed back from everyone) is....is this really Chronic Fatigue? I haven't really gotten any other type of diagnoses. Sometimes I think this is all in my head, and I don't have anyone to talk to that really understands what I am going through, everybody avoids asking me how I am now, because I'll tell them exactly how I am doing and I think they are tired of hearing it all. Sometimes when I am feeling good I will think maybe I am not sick after all, but then I overexert myself and I get another bout of sickness again, and end up in bed.
    My husband thinks that I just have to come to terms with it.
    I guess it's really hard for me to say that I am sick, and I am not the same very active person that I was. That is the hardest!
    I also go through alot of pain with the bouts of exhaustion,
    alot of flu like symptoms, right now my neck is hurting and the pain just won't go away.
    Anyways, I would really appreciate some feedbacks, I just would like to know what's going on, and praying that the internist's office will phone me really soon, so perhaps she may have some insight on this?

    Oh another thing that really gets to me is that people will say they get tired BUT it is not the same tiredness!
    And I haven't mentioned all the brainfog too!!!!!

    Looking forward to hearing from everyone!
  2. mollystwin

    mollystwin New Member

    Welcome to our board. There is lots of info here!

    It does sound like you may have Chronic Fatigue Syndrome. There are other things that should be ruled out first though. You said you had many tests already. Did you have any tests for MS? An Ingenix test for lyme disease would be a good idea as well.

    The post extertional malaise (sp?) really makes it sound like CFS. You feel good so you do some stuff and then Bam! your down again!

    I understand what your saying about people avoiding the issue. They just don't understand. Lots of people including doctors think it's all in our heads. They don't understand that the fatigue is so much more than being tired!

    I hope the internist you are seeing can help you with this. It's important to find a good doctor, but that is not easy! Good luck to you!!
  3. Catseye

    Catseye Member

    The first things you can do to feel better are to drastically change your diet. Give up wheat and dairy - search this site for "food intolerance" and start eating lots of vegetables. Boil them in chicken broth if you don't like them.

    Get a really good vitamin and mineral supplement from the health food store, one with easily absorbable forms of vitamins and minerals; you may have to ask. You should probably take extra magnesium and make sure you get enough calcium, but not from milk anymore.

    Search this site for "Heart Disease Secondary to Mitochondrial Malfunction", it lists the nutrients your body uses to make energy.

    Spend time here reading.

    You're already off to a good start!

    karen
  4. NyroFan

    NyroFan New Member

    mer66:

    I would wait for the results first. If the signs direct you to a FM doc (or the one you have) I, speaking for me, would go for the doc to take me as a patient.

    I hope you do stay with the group and take in some info just in case you need it later.

    Welcome!

    nyrofan
  5. mollystwin

    mollystwin New Member

    I agree with what Karen says. Search for this topic and try the nutrients suggested. It did help me quite a bit with my fatigue.

    Just type this in the search on the top of this page and you will get lots of info on this.
  6. TinaJones

    TinaJones New Member

    Maria - Hi, welcome. Sorry we have to be here, but it's a VERY supportive board. I could have written your post almost word for word. Although I was diagnosed many years ago with Chronic Fatigue Syndrome, I didn't want to believe it, got better after about a year - and went on to have six children.

    Ten weeks into my last pregnancy (he just turned 3), I became very ill with all the classic symptoms. I'm still really suffering almost four years later with CFS, FMS and a bunch of other issues.

    It is VERY hard to accept this illness...especially for a very active person, with lots of kids, etc. I SOOO understand. I, too, went through a "denial" about it for awhile. But, like you said, you KNOW the difference between being tired from having lots of kids - and complete, debilitating exhaustion. Feeling like you have the flu - but it doesn't go away. All the aches and pains, etc. Feeling too wiped out to take a shower, etc. This isn't the normal "tiredness" that comes from normal life, even life with lots of kids.

    I'm sorry that I don't have any "answers" really...I just want to say that I can relate and it really does sound like you have CFS. There is so much good information here...I hope you can find something that helps you. I also encourage you to find a good doctor that understands this illness and will work to help you control your symptoms as much as possible.

    Take care, let us know how you are doing. --Tina
  7. deliarose

    deliarose New Member

    may indicate a virus. Have u had any virus tests done?
    A lot of people with CFS will have a very irregular result on a Natural Killer Cell activity test.

    This is one of a few tests that come back abnormal in people with CFS.

    Where do u live? Maybe if you filled out your profile, people could recommend a good doctor in your state/area.

    If you have CFS, you might get some relief from antioxidants and Vitamin D.

    Please read up on Majid Ali's ideas on oxidative stress and check out Ken Lassessen's "For What It's Worth" CFS protocol.

    Just google his name and the name of his protocol.

    If you suspect CFS, you could begin by taking a bunch of supplements that help relieve oxidative stress: Vit E, Vit C, omega 3 and 6 oils, bioflavonoids, green tea extract, Magnesium.

    That would be one way to start, while you are looking for a good CFS doc.

    Delia
  8. kriket

    kriket New Member



    Hello and welcome to the board.


    Kriket
  9. mer66

    mer66 New Member

    Hi Molly,
    Nice to meet you! No I haven't been tested for MS or Lyme disease , my family doctor has just done blood tests.
    I would think the internist may end up doing those types of tests.

    maria

    Hi Karen,
    Iam going to do what you have suggested, I have taken out wheat, and dairy out of my diet before but haven't been to
    careful lately so i'll start being very careful again, I went out yesterday and I got a few things like the q10,calcium and magnesium, and green tea extract and vitamin b complex and b12, from a supermarket near us that has vitamins, i'll need to go downtown to the health food store for the other things for the mitochondrial malfunction, multivatimin.
    Thank-you so much!!!

    maria

    Hi Nyrofan

    I live in Ontario Canada and here the family doctor refers
    you to the specialist and then you get put on their waiting list, that's why I have to wait to see the specialist, we also have a shortage of doctors here. It's been pretty hard to just have a family doctor, lots of doctors have retired, or moved to the states.
    I will stay with the group, I have gotten alot of information already, and encouragement!!!!!

    TO Molly and Karen,

    Thank-you so much I have been to the site on Mitochondrial Malfunction and looked at the nutrients I've gotten some supplements already, this has been such a big help!!!
    A big thank-you!!!!:)

    Hi Kriket,

    Hi it's nice to meet you!!!

    Hi Tina!!!

    Thank-you so much for your post! I will stay with this group!I've gotten so much support already! Just having read your post has encouraged me so much! Just to have someone else know what I have been going through is so much help!
    And Karen suggesting supplements, it helps so much too.

    Yeah, it's been very fustrating with even doctors, I had one doctor say to me that I was so tired because I had five kids, but he wouldn't listen to me, that it was more than that! That it was a debilitating exhaustion!

    But yes it will be really good to talk to others that understand!!!!!Thank you so much!!

    Maria

    Hi Deliarose,

    Thank-you for your post I will certainly do what you have suggested, I've already have gone out and gotten some supplements, and I'll keep reading for more information!
    Thank-you
    I live in Ontario Canada, and here your family doctor has to refer you to a specialist, I have been referred to an internist, they put you on a waiting list and you have to wait until they call you, we have a shortage of doctors here, lots of doctors have retired or moved away.
    Thank-you for your post!

    Hi Joyfully!!!

    I live in Ontario Canada and here your family doctor refers you to the specialist he thinks will help you, He thinks I have Chronic fatigue so he first referred me to a rheumatologist but that doctor said he wouldn't be of any help to me and he said that I should be referred to an internal medicine and infectious diseases specialist, my family doctor has referred me to her. But you are then put on a waiting list, and you have to wait until they call you.
    There is a shortage of doctors here where I live.
    So that's why I wrote that I am still waiting and it's been six months. When I go and see her, I am expecting that she will be doing all kinds of tests, tests that other doctors haven't done.
    The doctors that I have seen have only done basic blood tests, and those have come out ok.
    The place that indicated a panic attack, the doctor just gave me some tranquelizeres (sorry can't remember how to spell that)Yeah, so when I go and see the internist I am hoping that she will be doing alot of test to rule out some things.
    I will certainly be looking to see if there is a support group in my area, that is such a great idea!
    Thank-you so much!!!!

    Maria



    To Everyone,
    Thank-you so much for your incredible response!!
    I have filled out my profile for the ones that
    have suggested me to.

    Maria