Hi Everyone - New and Looking for Support

Discussion in 'Fibromyalgia Main Forum' started by PolarBear, May 28, 2004.

  1. PolarBear

    PolarBear New Member

    Hi Everybody - I've been lurking for some time now and have really appreciated all of the knowledge and first-hand-experience shared by this community. So, I have finally decided to join in the fun.

    As you can tell by my profile, I'm working although for the last few months it has become more and more difficult. I am on intermittent FMLA at work. My Rheumy has recently started talking about my taking a medical retirement. I have 25 years in with the State. My fear is the financial impact this will have on me and my family. It will be quite a bit less than I am currently making.

    Also, I finally had the experience that so many of you have expressed when going to your Dr. I went to my Rheumy's office yesterday and saw her new nurse practitioner. Well, as many of you can relate, I have been in so much pain the last couple of months that I have had to miss quite a bit of work and have not been able to exercise. I used to walk every day at least 20 minutes, not to mention running around work and taking care of a household. Anyway, this nurse proceeded to ask me if I had tried physical therapy. I told her that I had in the past but it seemed to cause more pain and it was expensive. She said, "Doesn't your insurance cover it?" I said, "Yes, but not all of it and it is still expensive." She then went on to tell me the benefits of exercise and how when she doesn't quite feel like exercising herself and has pain, her friends call and go running with her. Mind you, she is skinny, in shape and does not have FMS. Well, I finally told her that the doctor had told me to take it easy when I was in this much pain. I also told her I had contacted a pain management specialist a couple of days ago with hopes that my pain would be better managed so that I could exercise. I came home in tears, needless to say, because of the built-up frustration. When I see my Rheumy in a couple of weeks, I plan on letting her know about this.

    I originally had gone in yesterday because I have been having numbing, tingling, weak knees and elbows and thought it might be due to the Arava. Her nurse thought it was probably just part of my disease and not due to the med. I still don't quite believe that. Also, I had a bladder infection a couple of times, recently and was on Macrobid for it. I feel like it hasn't gone away, so she just handed me a prescription for another round of Macrobid, without a test. Seems to me if it did't clear it up the first time, it won't this time. Not only that, but should have taken a urine test to find out. Good grief! :0)

    Anyway, thanks for letting me vent the first time posting. I really needed it. I hope you all are feeling well and look forward to hearing from you.

    Hugs,
    PolarBear

  2. MsE

    MsE New Member

    We all have "lousy doctor/nurse/therapist/etc. stories to tell, so you came to the right place for support. This is a good group of people. Welcome.
  3. Shirl

    Shirl New Member

    Glad you have decide to join our little world here, the more the merrier :)

    So sorry you are having such problems with the nurse practioner. My daughter had a problem with one of them, and I was told here at the board, to be sure when she made an appointment with her DOCTOR, that he/she was going to be in, not the nurse practioner!

    Again, welcome to the board, and will be looking forward to hearing from you often.


    Shalom, Shirl

  4. nikd

    nikd New Member

    Welcome, sorry to here about your trouble but that's what we're here for. Anytime just vent or share or ask, go ahead.
  5. catgal

    catgal New Member

    Greetings PolarBear~~What a cute name! You've found a Wonderful, knowledgeable support group. Feel free to make this your Second Home!

    Sorry you were treated so badly by the nurse practioner, and we can all relate to that experience. Just always make your appointments with the Rheumy and pass on the N.P.

    I am glad to hear you are going to a pain management specialist. They are really the best at helping you with medications to ease your pain.

    All of us here learn from each other, and I hope you keep coming back. Blessings to you and Welcome! Carol....
  6. PolarBear

    PolarBear New Member

    Thanks for your kind words, encouragement and advice. It is so nice to meet all of you. Catgal - I noticed in your profile that you practice Qi Qong. I am seeing a counselor who recommended this to me. Do you find that it is helpful?

    Again, thanks and let me know if I can be of help to any of you.

    Hugs again,
    PolarBear
  7. NevadaRN

    NevadaRN New Member

    I am new to this site. I typed in Nevada and found your posts. I live in Northern Nv. also. I am now medicaly retired at 46,just last month, from CFS. I am a RN. I noticed your delemia with PERS and wondered how that turned out for you. I to worked in the PERS system. Two years ago our hospital went private. I am now disabled and don't qualify for ssd,not enough credits in the right time period. And since I was not actively employed with a PERS entity when I became ill, I didn't qualify for that either. Anyway I wound up having to take early retirement at a horrible penilty. this happended to my good friend also. She died last year. Anyway I just wanted to contact you since we have some things in common. I haven't seen any recent posts from you. Hope you are surviving!