Hi I'm Jan from the UK

Discussion in 'Fibromyalgia Main Forum' started by jan42, Jan 19, 2006.

  1. jan42

    jan42 New Member

    Hi everyone,
    Struggling with a really bad ME relapse since Nov, I've had ME/CFS for 15yrs. I have had really good spells where I can be 85% well and then through massive traumas fallen into relapse for months at a time, is there anyone else out there who relapses badly through stress?
    Could do with making some new friends, very sad and lonley here
  2. suzetal

    suzetal New Member

    Sorry you are not well and feeling sad and lonely.

    You have come to the right place .This board is wonderful.Full of caring friends.

    Please fill in your profile so we can get to know you.

  3. Kinsie

    Kinsie New Member

    Welcome to the board. You'll get a lot of good information from a lot of nice people. Coming here everyday helps with the lonliness.

    About stress....yes, major stress can really get the ball rolling for a flare-up.

    Your friend,

  4. darude

    darude New Member

    Did you write a book and have a website.
  5. shelbo

    shelbo New Member

    Welcome! I'm in the UK also. I'm in Liverpool. Where are you? Why don't you fill in your profile and tell us a bit more about yourself? You'll love it here. There is so much help, support and friendship!
    Love Shelbo
  6. smiffy79

    smiffy79 New Member

    hello there.
    pleased to meet you im from the uk too,east anglia.there are a few of us brits on the board :)

    i hear what your saying about stress,adds to the fun :D
  7. darude

    darude New Member

    I'm a brit too from North London. I now live in Canada and have been here 25years!!!!!!!! Boy time flies.
  8. Pianowoman

    Pianowoman New Member

    I have had CFS/FM for 15 years as well. I have had my ups and downs. The past few years have not been as good but I am improving again. Major stress really can set us back.

    I hope you stay around. This is a wonderful place and you will get lots of support.

  9. bct

    bct Well-Known Member

    I was born in Bedfordshire, and lived in Berkshire for a number of years. Live in California now. How I miss England!

    I have ME also. Have had for about thirteen yrs.
    ANY stress wipes me out, knocks me down.

    Also have Chronic lymphocytic leukemia, unexplained chronic macrocytosis, bunch of other stuff...

    The ME (CFS) is what really gets me down though. This board helps me in many ways, not the least of which is the feeling of community.

    Best wishes from Barry
  10. Smiffy

    Smiffy Member

    Hi from damp grey Wiltshire! I've been housebound with severe M.E. & fibro for 19 years, & certainly know what you mean about relapses & feeling sad & lonely.

    Have you also found the Brainfog & Sleepydust message boards?

  11. KelB

    KelB New Member

    Hi Jan. I'm in Dorset (sunny at the moment). I'm a relative newcomer to CFS, only having had it for 18 months. I find that the slightest departure from my normal routine throws me out for days. Stress can lay me flat out for weeks. I haven't had a major relapse yet, but there's plenty of time for that yet!

    I'm not too badly off as I'm able to work part-time, so at least I can get out of the house and spend time with other people. Not sure how much longer my employer will put up with my limitations, but I'll enjoy it while I can.

    Hope you find this board helpful - there are loads of really good people and info here.
  12. Cromwell

    Cromwell New Member

    so you can see this board is like Little Britain sometimes. Hi, I'm Anne from Cheshire living in USA on and off for 23 years. Love both countries. My diag in UK of ME was changed to Lupus and FM here. Welcome from very mild Upstate New YOrk, where it normally would be very cold and snowy but this year is mild and green. Hope the whale gets back safely.
    Love Anne
  13. Rosiebud

    Rosiebud New Member

    I'm from Scotland. Just coming out of really bad M.E. flare myself, had a terrible time last year.

    What part of UK you in?

    I dont know what causes my relapses most of the time, cant really put it down to stress as I'm in house most of time.

    You'll get a lot of support here Jan and there's always the chat room too.

    Maybe see you in there one day.

  14. lilking

    lilking New Member

    hi jan i am from the uk born in the east end of london
    now living in boston lincs i have bad flares due to
    stress i look after my 94 year young mum it can be
    stressful at times.i find it very hard to relax
    have you a support group near you that you could go to
    they are a great help.
    take care of yourself
    god bless lillie
    [This Message was Edited on 01/30/2006]
  15. belper

    belper New Member

    Hi Jan.
    I have FMS and am off work right now. I also live in the UK,and feel lonely at times, can't sleep which only adds to the discomfort it's like a vicious circle, pian keeps me awake which = disturbed sleep = pain ect ect. feel like banging my head against the wall and screaming LET ME SLEEP!
  16. spmary

    spmary New Member

    Welcome Jan to the USA and to this wonderful board. I don't post much because by reading other posts I usually find out what I was looking for. But ask any question and someone is sure to have ths answer. I'm from the southern coastal city of Charleston, S C. But I now live in Virginia. Visit often....LOL, Mary
  17. MusicTeacher

    MusicTeacher New Member

    I'm from East Anglia in the UK. Battling, on-going, with CFS and Fibromyalgia.

    Welcome to these forums - take care of yourself.

    Music Teacher (UK)
  18. jan42

    jan42 New Member

    Thanks everyone for your kind welcome, I have filled out a profile, not well enough to stay on here for more than 10 mins at the minute, but hopefully will improve soon. Anyone taking remeron? doc has just changed my meds and I have never really heard of anyone taking this one, I think it was originally called zispin.
    Hopefully I'll be more chatty next time round
    Jan xx
  19. smiffy79

    smiffy79 New Member

    i didn't know we were neighbours, shout over the fence to me :)
  20. jan42

    jan42 New Member

    Hey there music teacher, not far hey........... I'm having a really rough time here, the doc has changed my meds, I don't honestly know what planet I am on, hope you are ok? see ya next time around

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