Hi, I'm new and would like to say hello!

Discussion in 'Fibromyalgia Main Forum' started by Joyce345, Sep 19, 2005.

  1. Joyce345

    Joyce345 New Member

    Hi All,
    I was just diagnosised with fibromyagia and need all the help I can get. I've had a rough 10 years, a serious fall, Panic Disorder, and lately can NOT sleep. A specialist confirmed that I do have FB but I was not comfortable with him. I returned to my primary Doc, who I have know for years, and she put me on ultracet and zoloft, which I'm familiar with. This is breaking my heart because we were just blessed with a new Grandson. Being a 4th grade teacher for many years, I know how much joy young people can bring into you life:)) I am beyond words and hope some one will give me some guidance as to living with FB.
    Thank you, Joyce
  2. jbennett2

    jbennett2 New Member

    You have come to the right place. There is a lot of information gained just by checking the board as often as you are able. You can also do searches by title or author; this way you can always find information whether it is something from months ago, or posted recently.

    To bring a post back to page 1, just hit reply, then type in bump in the title and message box.

    Good luck with your treatment. Don't be shy about asking questions - we were all pretty green when we started coming here.
  3. KJ2003

    KJ2003 New Member

    Hi Joyce,

    Welcome to the looney bin! Seriously, this is the best forum I've found for Fibromyalgia and the people here always seem to go out of there way to encourage and support its members. You're in good company :)

    As far as living with FM, I don't really know where you are at with symptoms, daily living conditions, etc.

    I do know that stretching helps quite a bit as does water exercise. Getting a good night's sleep should be your #1 priority. As someone pointed out earlier, the better sleep you get, the better your day will be...and this is so true.

    If you haven't already, taking a good Calcium/Magnesium vitamin will help. I take a few others but this one is the most important, especially if you are just starting treatment.

    If you have back problems, leg pains, arthritic hands, etc., there are a ton of muscle rubs on the market and these help somewhat. Also, having a heating pad and an ice pack on hand is wise.

    Other than that, work out a good plan with your doctor and take it one day at a time.

    There will be others here shortly who have much more knowledge than I do. That's why I come here. To get help from them! lol.

    Chin up,

    Kim
  4. LollieBoo

    LollieBoo New Member

    Hi, Joyce! I am newly dx, as well-- long-term sufferer, though (I'm seeing that as a strong tendency around here!).
    You have come to the right place. There are lots of caring people here with lots of good info/ advice.

    I notice that you are on Zoloft and Ultracet (me, too!), but nothing for relief of your panic disorder or sleep problems. I realize that Zoloft is considered a treatment for anxiety, but I have found that having something to take as well in acute situations, as a "rescue" measure is very helpful. I take Xanax, and with the Zoloft in my system, I need to take much less, much less often. It it worth checking out, anyway. Also, many docs prescribe something to help their FM patients sleep; not a sleeping pill, but as many FMS sufferers also have restless leg syndrome, or all-over tremors or muscle spasms keeping them awake at night, many docs use muscle relaxers or anti-seizure medication at bedtime to help with sleep. Others have another reason for their sleep problems, and find that a cpap machine, or other alternatives work best for them.

    Above all, keep in mind that you know your body best. If you don't trust your dr, find a different one. Many have found success working with a rheumatologist, but others are more comfortable with their primary physician, while still others may see a Physiatrist, a DO, or any other doctor who is most compatible with their own personal view of this illness. If a treatment is not effective for you, say so. In many ways, treating FM is a crapshoot; what works for one may not for another. Hang in there, like I said, you
    are in the right place. This is a great source of support.

    Congrats on your new Grandbaby!!!!

    Take Care,
    Lollie
  5. BLUEROSE7

    BLUEROSE7 New Member

    Just wanted to say Hi and welcome to a Great place with so many caring, supportive and understanding people. Lots of really good info here.

    As others have said learn as much as you can and dont give up.

    Look forward to reading more post from you...

    Hugs
    Bluerose
  6. jbennett2

    jbennett2 New Member

    I forgot to say - don't forget to check out the purple blocks at the top of the page.
  7. ilovecats94

    ilovecats94 New Member

    Welcome to our group and I know you will find lots of terrific info and some of the nicest people you will ever know.

    I'm sorry you have FMS (that is what I call fibro), but happy you found us.

    I've had FMS for 10 years. I have spent hours here just reading. There is so much helpful info here. I like to post too, but sometimes the reading takes us most of my time that I am able to be online.

    Again, welcome!

    Hugs,
    Faye
  8. gramaT

    gramaT New Member

    good luck with getting the meds you need and try to keep a good attitude. It isn't as bad as some things.

    take care and God Bless,
    Carolyn
  9. JPach007

    JPach007 New Member

    Hi Joyce,
    I know the pain you are in. I think the worst part is actually having to accept the Fibro. I have had it for about 10 years also and was diagnosed last week. I have Restless Leg Syndrom (Insomnia also), and it seems some of the medications tie together. I think actually hearing...Chronic and never getting over it and having to "manage it" was the hardest, and I'm still working on that part.
    I can suggest a few books that have helped me greatly..Fibromyalgia For Dummies, The Complete Idiots Guide to Fibromyalgia...both greatly informative. This message board has helped me also. Its important to know you arent the only one with this terrible thing. If you are like me, you cant explain it right, or family doesnt get it, in my case co-workers think its a joke I have to leave at 5 instead of 5:30 to go to water pilates everyday.
    Hang in there, keep talking to us, and know there's tons of people just like you!
    Hugs,
    Jessica
  10. brit_17759

    brit_17759 New Member

    just wanted to say hi and welcome to the board. You will find lots of info, advice, support and understanding here.

    hugs
    brit
  11. ckk

    ckk New Member

    first of all congrats on your new grandson that is wonderful! my mother always says that being a grandmother is great because you can spoil and not worry 'cause you give the child back to the parent! so enjoy with him. second, i am 35 yrs. old and i was just diagnosed myself, i feel i am way too young to let this slow me down, even though it does, i do everything in my power to help it. i take vitamins like b,c,zinc, multi and walk and try to have a good attitude. dont get me wrong there are days were i get soooooooo tired i cant move and i hurt soooooo bad but i have to keep moving 'cause i have young children. i also am on ultram and vicadin. ultram helps for my day to day so that is a great start for you. good luck with everything and i will be talking with you.
    ckk
  12. Joyce345

    Joyce345 New Member

    Nanjee, thanks so much for your supporting words. Would you believe I ACTUALLY got some sleep last night knowing I found a group that is GREART:))) As far as the hubby is concerned, he also is disabled and is not a Happy Camper. He tries to keep his wonderful sense of humor going but when he's having problems, he tells me it's all in my head. I truly believe he gets scared that I won't be able to do the things I can do when I'm having a good day.
    AHHH, maybe I'll have to find that key and lock him in the closet again! LOL Just kidding!
    Luvs & Hugs,
    Joyce
  13. Joyce345

    Joyce345 New Member

    Hi, how in the world are you supposed to read this small font when you're typing a message. After all, I'm not a "Spring" chick any more and need glasses and the darn things still aren't working! Maybe I'll try a magnifying glass. LOL
    Also is there a spell check?? It's hard to believe that I taught 4th grade for TOOOOOOO many years and still had to take the spelling test with my class! ROFL
    Seriously, any help would be extremely appreciated.
  14. Joyce345

    Joyce345 New Member

    Hi Kim,

    You gave me so much information and I'd like to say Thank you. As far as my symptoms as concerned, they range from one area, mostly the ankles and legs, to my ENTIRE body. The serious " Flare" ups started after my Grandson was born and I know STRESS was a huge factor. I spent more days in bed because I was so tired and ached from the top of my head to the bottom of my toes. As quickly as it happened it would disappear as I used my breathing methods and relaxation tapes from my " attacks" with Panic Disorder.
    Sometimes I feel like a hypochrondriac ( sp) but when this is happening, it's REAL! I've always had aches and pains but not this bad and I wonder if my Panic attacks were also related to FM. I must also note that I was one of the first people diagnosised with Lyme's Disease back in the late '80's.
    Yes, I do use ice packs, heating pads, meds but the frustration is not knowing how you're going to feel the next day. I take vitamins but need to add more as you suggested Calcium/Magnesium.
    Well, I'm glad to be part of the Looney Bin, but as I remember, the last time I was there, they really need to redecorate those rooms! ROFL!! JUST KIDDING!!!!
    Luvs & Hugs,
    Joyce