hi i'm new here... phew.. happy to have found everyone

Discussion in 'Fibromyalgia Main Forum' started by asherahca, Dec 18, 2006.

  1. asherahca

    asherahca New Member

    hi everyone,
    I've just had a 2 hour nap so i'm feeling a little bit better so I can actually type properly.
    I have CFS. Ok it just took me 3 tries to type CFS.
    somedays I swear i'm goning nuts!
    I can't remember who ppl are or names of things or ppl.
    I can't remember places I was supposed to go.
    I leave the oven on... I forget things in the microwave... *shakes head*
    I'm so tired some days that just breathing is a huge effort.
    I have had lots of bloodwork and they say there is nothing wrong with me.
    If I hear take a nap. or I'd be tired to with 3 kids too..one more time i'm going to scream.
    or when you pour milk in the bottle and then put the nipple on the jug of milk.
    My 5year old is my gopher now. hehe
    Anyway it's nice to meet ppl with the same problems as me.
    Amanda
    [This Message was Edited on 12/18/2006]
  2. Kimba4318

    Kimba4318 New Member

    GLad you are here... Welcome to the family. Kids will really run you down wont they???
    Best of luck to you,
    Hugs
    Kim
  3. AllWXRider

    AllWXRider New Member

    Brain fog, depression all lumped together as "cognitive dysfunction". "Been there, forgot that".

    I finally started getting help when I switched to a D.O., my M.D. couldn't help me. The D.O. found two viruses (epstein-barr and cytomegalo) but there are many.



    Welcome to the forum...and tell us more about what you've tried and works and doesn't work.
  4. asherahca

    asherahca New Member

    I guess I haven't tried much as of now. I have no idea what I should be doing since the doctor here said there's nothing wrong with me.
    Here's what they tested.

    Kidney function - normal (have birth defects with them)
    Platelets - normal
    White cell - normal
    iron - normal
    Thyroid - normal
    He listened to my heart and said it sounded normal
    I've cut out all aspartame etc.. gives me horriable headaches and I dont need more.
    We bought a new bed so i'm helping that helps when it gets here.
    My husband suggested sleeping pills because he figures if I could sleep through the night I would feel better.
    amanda

    btw what is a D.O ?
    [This Message was Edited on 12/18/2006]
  5. ladykew

    ladykew New Member

    Amanda,

    I'm glad you found this board, too. There are many wonderful people on here who are encouraging and knowledgeable and are eager to exchange ideas and share new information.

    I, too, have CFS, as well as FMS/MPS and MCS. At this particular time, I'm fighting to not go into a CFS flare. Holidays are very hard on me.

    When you say that just breathing is a huge effort, I know exactly what you mean. Mine got so bad that I started trying to find out why. I went through a sleep study, and now have a CPAP machine. Many of us have sleep apnea.

    I've had oxygen studies and found my oxygen levels low enough to qualify for oxygen to sleep with. I just had a blood oxygen gases test, and it too registered a bit low. My breathing tests could have been better.

    I'm a non-smoker, and when I'm anywhere close to cigarette or cigar smoke, I can hardly breathe. I believe I'm very allergic and have allergies to many things environmental.

    I was just wondering, what type of tests have you had? Do you have other illnesses with overlapping or related symptoms?

    Wishing you the very best, and hope you enjoy the group. You sound great...looking forward to getting to know you better!

    Best of luck!
    ~~Lew




  6. asherahca

    asherahca New Member

    The blood tests are all i've had so far.
    I have asthma aswell. I was born with birth defects in my kidneys so I get infections in my right kidney alot. Tho I haven't had one in months. *yay*

    I dont know why or if it has anything to do with anything but if I get woken up suddenly by someone or something I will have a racing heartbeat for a few minutes. It's done that for years.

    My mom and my sister both have Fibro... so there's that in the family to.I dont have alot of pain .some in my knees or fingers. It's mostly the exhaustion and the heart palpations.. and I get dizzy when I look up.. yeh that makes sense..

    sigh

    Anyway thanks for responding everyone.
    amanda
  7. ladykew

    ladykew New Member

    Amanda,

    Just wondering if you've ever had your thyroid tested?

    You probably have, but when you have CFS, sometimes the thyroid gets missed somehow. An overactive thyroid will cause some of the same symtoms of CFS, the racing heart and palpatations. An underactive thyroid will also cause some of the same symptoms, I'm told. Mine was overactive.

    I've had FM for 20+ yrs and CFS for 10 yrs. I still know very little about either one, except how I feel...we all know the answer to that! I'm getting my education being on this board! ha-ha The doctors I go to in my town know a tiny bit about Fibro and zip about CFS.

    We all get the brain fog...it's just a normal thing here on the board. Typos are ok here. Must be nice to have a 5 yr old to help fetch things. Sure takes a load off, doesn't it? And he/she probably loves to do it. How old are your other children?

    Sleep well. Grab your rest when you can! See ya around!

    ~~Lew
  8. Shirl

    Shirl New Member

    Very glad to have you join us. Lots of wonderful, helpful, compassionate people here. I know you will make lots of great friends, and find a lot of helpful information.


    Again, welcome!


    Shalom, Shirl
  9. RedHeadEMT

    RedHeadEMT New Member

    Hi Amanda! I'm glad that you found us. I think you'll find in the coming months that everyone on this board is super supportive and you'll be able to pick up a ton of info about your CFS here.

    Again, welcome!


    K
  10. PVLady

    PVLady New Member

    Believe me, there IS something wrong with you - you just need to find the right doctor who understands CFS and knows how to test you.

    I don't know where you are located but you might try to find an infectious disease specialist who treats CFS. There is a excellent doctor in Torrance CA - Dr. John Chia who has researched and treated CFS for over 10 years.

    There are other doctors around the country but you have to search to find them. Those doctors who do treat CFS are trying very hard to educate their colleagues that CFS is not all in the head - but they have a tough time.

    Many people here with CFS have experienced improvement with various treatments, medications, dietary changes, lifestyle changes, etc.

    Recently a doctor I heard speak on CFS said her patients improved with the "brain fog" by taking Carnitine. (a supplement).

    There is also a drug called Provigil that helps alot with fatigue. I have used it and it really does work.

    Take care
    [This Message was Edited on 12/19/2006]
  11. lin21

    lin21 New Member

    Hi Amanda,

    Just wanted to say Hi and Welcome!!! I remember how I felt when I found this board and everyone was really nice to me and has been there for me in the best and worst of times.

    Lin
  12. blueski31717

    blueski31717 New Member

    D.O. is short for Doctor of Osteopathic Medicine

    The DO Difference

    DOs are complete physicians who, along with MDs, are licensed to prescribe medication and perform surgery in all 50 states. But DOs bring something extra to the practice of medicine. Osteopathic physicians practice a "whole person" approach to medicine, treating the entire person rather that just the symptoms. With a focus on preventive health care, DOs help patients develop attitudes and lifestyles that don't just fight illness, but help prevent it, too.

    DOs are trained to be doctors first, and specialists second. The majority of DOs are family-oriented primary care physicians. Many DOs practice in small towns and rural areas, where they often care for entire families and communities.