HI MORGANA....

Discussion in 'Fibromyalgia Main Forum' started by tes, Nov 2, 2002.

  1. tes

    tes New Member

    Noticed your posting earlier today. I guess your are one of the lucky ones.(just kidding) So you suffer from these horrible chest and rib pains as well? How long have you had fm? Where are you from? Is there anything that you take for these pains. Please, I would love to know. Shannon and I are enjoying each others company very much. On this fm message board, we all suffer imensley with pain and fatigue, but we are all different with our symptoms. Shannon and I suffer so much alike, it enables us to relate to one another better. Anyways, thanks for posting and hope to hear from you soon.

    God Bless
    Tes
  2. tes

    tes New Member

    Noticed your posting earlier today. I guess your are one of the lucky ones.(just kidding) So you suffer from these horrible chest and rib pains as well? How long have you had fm? Where are you from? Is there anything that you take for these pains. Please, I would love to know. Shannon and I are enjoying each others company very much. On this fm message board, we all suffer imensley with pain and fatigue, but we are all different with our symptoms. Shannon and I suffer so much alike, it enables us to relate to one another better. Anyways, thanks for posting and hope to hear from you soon.

    God Bless
    Tes
  3. morgana

    morgana New Member

    Hi Tes
    Sorry that I havnt replied sooner but have had some major problems at home which caused me to get very stressed and in return ...yep you've guessed it I ended up in a horrible flare up of my symptoms.
    I have had fibro for many years before i got diagnosed I broke mt neck in 1985 The bone that your head rotates on .. the, one that breaks when you get hanged :( C2 the adontoid process.
    After spending almost a year in a nuero hospital in London and after having most of my neck bones fused.I came home .after about a year I found that I was exhausted all the time and spent weeks in bed with muscle aches and pains....the doctors said it was nervous exhaustion..
    I kept feeling like this for years always tired always in pain.the drs said that it was psychosamatic(sp)and was basically all in my head.
    After having my second daughter my symptoms worsened and they tested me for all sorts thyroid,IBS,Aneamia etc, etc I had telescopes down my throat...
    I had to swallow this radioactive stuff and had to do the tilt table and also barium meals etc...they Then put it down to IBS and SAD syndrome and depression..
    I do have pernicious aneamia which is B12 deficeincy I have shots every couple of weeks for that ,but that is hereditory.I also have neurofibromatosis.Well after years of going to the drs I was given a new GP a young dr from Germany (I live in England by the way.I went to him as I was in terrible pain in my shoulders,hips,neck knees etc and every where I touched hurt especially all the tender points he said straight away it is Fibromyalagia....You also have some trigger points...which is why you are getting the pain elsewhere.He referred me to the hospital to get a proper diagnosis.
    At last someone who didnt think I was mad and making it all up.
    I had a very severe flare last year I was so ill I thought I was dying I had severe dizzy spells I developed bad sinuses like never before I had TMJ and I was in a dream world I developed major panic attacks esp at night.I used to wake up and think I had stopped breathing..The Dr put me on Inderal and prothiaden for the panic attacks and depression I couldnt stop crying I was in a right mess.And to top it all I was in Pain everywhere.Ive had neurontin /amytriptiline and also alot of the narcotic meds.I try to do with out meds as much as possible half the time they dont work anyway I might as well take a pkt of M+M's lol
    This rib pain that I have is like a burning, achey pain,sometimes its a stabbing shooting pain. I get it about 3 inches from my armpit and its behind my breast under my breast and under my ribcage on the left mainly.....the sternum hurts like mad if you touch it just lightley.......I get the pain just below the ribcage too on the left more in to my abdomen its a hard pain to describe...but mt ribs and abdomen is full of lumps as are my arms and thighs and back......they are ropey like and hurt to touch ,hurt too much to rub out.I also get pain in my upper back and shoulder blades....And i'm so tired all the time and cant ever get a good nights sleep!!
    Oh I cant believe ive waffled on this much.I am a single mum to two teenage girls.....they are such a help and understand that I cant do as much as I used to.
    please tellme about how you got diagnosed and how you deal with your rib pain. Thanks hope to hear from you soon take care Morgana
  4. tes

    tes New Member

    Wow, I almost forgot about you. I was shocked to see a message from you, and glad to see you responded. Oh my, how we suffer so alike. I am 31 years old and have had these problems for about 9 years. Like you, my complaints to the doctors only ended up with the same conclusions...."it's all in you head or stress. I started off with stomach and severe chest pains along with difficulty breathing. I had every test imaginable done on me and of course the results were.....NORMAL. I developed severe panic attacks due to the fact that I was convinced something serious was wrong with me. I had to leave my career(which I just had started and loved so much), and continued to live in horror for many years to come. I got married at 25 and have had 2 boys since then. They are 2 & 4 and they are so adorable. I still continued to search for answers when I got into bad flares and eventually I found a doctor years ago that suspected I had fm. I am now waiting to see a specialist. I also have horrible fatigue, dry eyes, trembling, I think ibs, neck pain, sore throat and the list goes on. About 4 months ago I developed this rib pain. Mine is pretty much in the same areas as you. Below the breast and down. I was doing good for about 2 weeks and it started all over again this morning. I was so upset. Flares really cause me major depression. I took an advil extra strength and it only took the edge off...I still feel pain still but not as bad. I'm also seeing a naturopath now and he has promised to help me(we'll see about that). How long does your rib pain last for before it starts to get better and what do you take for it? This illness is so hard to live with because nobody understands. They figure if you look good, it's not an illness. Anyways, I look forward to taking to you again, so please write back. How old are you? I also get the feeling at night that I've stopped breathing. I had it last night. I wakes me up in my sleep and I gasp for air because I feel like I stopped breathing. Are you asleep when this happens to you. It's really scary. And you mentioned that this is all from panic disorders.WOW!!!!

    God Bless,
    Tes
  5. tes

    tes New Member

    bumped up for Morgan.
  6. morgana

    morgana New Member

    Hi Tes,
    how are you today? Have you still got your rib pain? Mine seems to go on for days then gets better and then BANG it comes back .Im just wondering if my shoulder bag and also my bra may be triggering it somehow who knows lol.its just another horrible symptom of fibro. I dont suppose well ever get to the bottom of this.I dont really take anything for the pain I have tried codiene,co proxamol .co-codamol dihydro-codiene,Advil, and anti anflamatries some times they just take the edge off my pain and sometimes they just dont do anything besides making me sick lol, cos i've taken too many.

    Yeah it is so scary waking up and feeling that you are not breathing...I get to feeling the old sense of panic to set in the cold feeling comes in my chest and I think im gonna die or I am dead looking in on my self,does that make any sense???
    I also have the trembling especially in my arms if I have been asleep..I have the sore throats and post nasal drip almost constantly.I wake up feeling worse than when I went to bed and my feet are so sore and painful when they hit the floor.There isnt a day that goes by really where i can honestly say I feel truely well.today I have my ususal aches and pains but my IBS has been really bad been on and off the loo all day and have terrible gas Do you get that??
    My gas usually collects around my left side underneath my ribs.I have also gained alot of weight I left my last job in 1999 and have put on so much since......and its a nightmere to try and lose :(
    When do u see youre specialist??I hope that you get to see him soon.I was thinking about going to see a chinese medicine dr to see if he could advise anything different.Ill try anything once.
    How does youre family cope with youre illness??Your children are alot younger than mine I know how hard it is to do things with your kids when you are tired and in Pain.I think mine understand quite well and they do help around the house and help do the shopping etc.I had a parents evening at the schoolyesterday and had to see 14 teachers which took almost two and a half hours and that did me in I have paid for it today...and just felt soooooooo exhausted.
    My friends know about my fibro but I dont think They understand as I dont really look ill and they tend to expect too much of me.My other friend has MS and was diagnosed within 2 weeks of developing the symptoms I explained to her alot of fibro symptoms are the same as MS but she still doesnt understand you feel like shouting out for goodness sake just listen to me will you.
    I wish id never gotten in that car and then I wouldnt have broken my neck...and ended up like this,Oh well you dont think like that when youre 18 do you ??
    Thank you for replying to me its good to talk to someone who has the same pain as yourself I hope we become really good friends....if you want I can let you have my email address let me know ok!!
    take care Tes and write soon (((((((((HUGS)))))))Morgana
  7. morgana

    morgana New Member

    How are you sweetie??
  8. tes

    tes New Member

    How are you today? I am absolutely horrible. I had such a rough night like never before. I must have major gas built up in my stomach because the feeling I had all night was just that. Pressure, cramping and all kinds of noise going on in there. I actually started to cry because it was scaring me. I still feel like this today. Never had it this bad. It's in my lower ribs and belly button area but more left sided. I didn't want to wake up my husband for comfort because he was sleeping so soundly. I miss those days where I'd go to bed with no pains or fears. I am getting so depressed lately. I feel for my 2 young kids because they don't understand what's going on and I hate them seeing their mommy like this. What am I going to do. I just took a gas-x tablet hoping I can start to pass some gas. Do you ever get these kinds of pain and do the feeling last for days? I'm seeing my naturopath on Tuesday with some blood results and I guess we can talk then. My doctor suggested I do a barium enema to see what's going on in there. I've heard it's a pretty nasty test and I'm horrified to do it. I'm just sick and tired of doing tests...I have done so many I've lost count. My chest is even starting to hurt now...what's next? I hate the way my life has become. I still find it very hard accepting this. I also take no meds right now, so it's a constant battle for me. All I do is cry....not that it makes it any better. Sorry for my babbling on but sometimes you just need someone who understands to listen. Hope that you're doing better than me. Do you work Morgana? I'm a stay at home mom right now. Don't think I can handle anything more. Anyways, hope to hear from you soon.

    Take care,
    Tes
  9. morgana

    morgana New Member

    Oh sweetie,how you have my sympathies trapped wind and gasses can be so painful and can take a hell of getting rid of.i get alot of it during the night and sometimes it has me doubled over in pain.I usually get up and walk around or try and rock back and forth on all fours to try and shift it.I did have some tablets that I took for it (the ibs) a couple of years ago but for the life of me i cant remember their name but i will look for you they may help.
    The barium eneama is where they empty you out and look inside with a telescope its not pleasant.But can see whats wrong...I had the telescope down my throat and then refused the other ended one....
    I hope your natropath can help you in some way.
    I know what youre going through with the crying all the time ive been there last year I was convinced i was dying and i hadnt got fibro at all .
    I started envisioning all sorts of diseases and the dr was so lovely and we tried so many different depression meds till he found one that suited me...and I still get severe bouts of depression but the tablets seem to take the edge off it.Do you take any depression meds??
    i know its hard but try not too cry too much in front of your kids i was just bursting into tears in front of mine and I couldnt stop myself and I think I scared them half to death....it is so hard.....Im beggining to suspect that my eldest may have this too.she has all the pain ,sore throats nail ridges sinuses chest pains etc so im gonna try and get her a refferal to see someone.She is always at the hospital for some muscle thing or another and always at the physio......I know somethings not right.
    how is your chest pain today?? you said you felt it comming back in your post,maybe the stress of the horrible night you had brought it on a bit.
    You know im sick of this disease everything you do seems to trigger another symptom I wish I had a magic wand to wave and just give us fibrolites a GOOD day wouldnt that be wonderful??
    I have found a small lump in the top of my mouth today so im worrying sick about that..I have neurofibromatosois as well so im going to look to see if you can get the growths in your mouth.it was probably from the ice i ate the other day I think i might have bruised the soft tissue....But any new symptom or lump i get I always think the worse...is that the same with you??Do you worry like this??
    By the way i am 37 years old and my girls are 12 and 14....and im a stay at home mum at the moment..If you would like to email me my ad is celeste@cheerful.com.wecould talk more then and go into things a bit more deeper.
    i hope that you will soon feel some releif fromyour awful pains.thinking of you write soon Morgana
  10. tes

    tes New Member

    Morgana for caring. Thanks for all your kind wishes and advice. I do take an antideppresant(nortriptyline), but for the pain. I take 10mg. I hope this feeling subsides soon. I still have all the intense pain in my lower ribs. Sometimes I wonder if there's more to this pain I'm having. Could it be my stomach, liver, gallbladder...etc. I had an abnomen ultrasound done, upper gi, chest x-rays, rib x-rays, blood work...everything has come back normal so far. I'm having an endoscopy done in Feb. 2003. I don't know what to think. My husband is very supportive and at times I feel so guilty because I feel he deserves better. He puts up with alot. I have had this rib pain since July and until 2 weeks ago it was constant. The last 2 weeks were much better and my spirits were going up again....then Sunday it all started bad and more intense. This illness is so confusing. I have a friend who had stomach cancer and she didn't even suffer this bad. She had stomach pains and severe fatigue, but it was her elevated white blood cell count that made doctors suspicious. People with fm/cfs suffer to much pain and I can't seem to understand why. I'm sure you feel the same way sometimes. How have you been. Are you in a flare or are you feeling better. Can you explain to me(if you can), why gas pain hurts so bad and why it last for weeks. So, how do you spend your days...my days are preoccupied with the little ones. Sometimes I wish my kids were older. There is so much I want to do with them and I can't. I feel like I'm cheating them of an awesome childhood. Don't get me wrong, we do alot together but I find that I don't feel well and I don't put 100% into everything. How is the weather in England. It's gotten pretty cold here.(Toronto, Canada). I just mailed out 40 Christmas cards to family & friends. I have a big family and many friends. I am not enjoying this holiday season. I'm to worried about my symptoms. Until I get all the tests done, my mind won't rest. I'm convinced something terrible is wrong with me. I do worry about everything. I also have a bump in my mouth and it hurts. I can't be bothered though. Are you ready for the holidays? do you have alot of family in England? I hope your daughter will be o.k. I can't imagine any of my kids going through this in their life. Anyways, it's 8:30pm and I'm going to get the kids ready for bed now. I'll check in later.

    God Bless
    Tes
  11. morgana

    morgana New Member

    Hello Tes,
    maybe all your pains in your stomach could be down to fibro or even myofascial pain syndrome.....you know pain referred from some where else,esp if the tests youve had have come back normal.
    Or maybe it is just down to IBS trapped wind can give you severe pain under your ribs even up into your shoulders.My trapped wind/gas is much worse whern my IBS is in a flare and I think its probably due to me eating the wrong food.....
    I am in a IBS flare at the moment and the pain has had me doubled over today .Maybe you could try cutting out certain foods and see if you feel any better ie breads(gluten|) then if thats not whats causing it try dairy Your body might be allergic to some of the foods you are eating..I know one of the bowel diseases can cause muscle and joint pain Im not too sure but think it is either Crohns or celiac disease...You could try reading up on it and keeping a food diary.One way to tellif you are allergic to a certain food is if after youve eaten it your heart/pulse rate goes up.I hope this has been of some help to you.
    yes this rib pain is horrible you think its gone away and it comes back it can get you down so bad.
    Im sorry to hear about your freind having stomach cancer I hope that she is doing ok now.With pernicious aneamia. that i have I have to be checked for that (S Cancer)as people with pernicious aneamia can be at higher risk.
    If you think about the intestines as a long ,long muscle (which it is)it will tend to act in the same way as our other muscles do ie cramping etc and some foods will make it do it more....thats the best way i can describe it.
    Me how do I spend my days?? somedays I find it hard to get out of bed.If Im having a good day (rare)I try to get the house work done which will lay me out on the sofa for hours..Making the beds is one of the worst it makes my arms ache so bad .Do you have this problem hoe do you cope with house work??
    I do some work on the computer,watch some tv save my energies for the girls comming in from school.
    On good days on the weekend I try to take the girls out somewhere they understand if I have to sit and rest and if we have to come home early they are so good like that,I am blessed with 2 beautiful girls.Its unfair on them tho but we are very close.
    Dont think that you are cheating your kids out of a childhood.....you are there for them and love them and do what you can they will love you unconditionally sweetie.
    Ha the weather here??welllast night we had an ho0rrendous thunder and lightening storm (Im terrified of them!!!!)and torrential rain.today it has been fine but cold but we are expecting gales and more rain .Have you had any snow yet??
    Do you find that your fibro is worse in the colder weather and really hot weather??my skin itches so bad when it is hot and i come up in hives do you get this.
    Ive written out my cards got to post them yet I wrote about 76 of them I used to be with the military (married to some one in the army )so i have friends all over the world and I origanally come from Nottingham(the land of Robin Hood ) So most of my family is still up there.
    You are so much like me....I constantley worry about every new and old symptom i worry that it is somthing sinister and i convince my self im gonna die and i get into such a state and bring on panic attacks and severe crying bouts.
    Im worrying about this lump in my mouth now!!!!Stupid huh.
    I have to have my kids tested for nuerofibromatosis too as i could have passed this awfuldisease onto them my youngest is deaf and they want to do an MRI on her auditory nerves to see if she has tumours on them...Im worried sick about this too.
    anyways How are you today are you feeling any better??Hope your kids are ok too.write soon and thank you for caring ((((((((((((HUGS))))))))))))) Morgana
  12. tes

    tes New Member

    So nice to hear from you again. Sorry to hear that your youngest daughter is deaf. Does she have a hearing aid? The poor thing. Hope everything goes well with her. I was shocked to read that people with anemia are at higher risk for stomach cancer. My friend, who is now in remission(thank god), has been anemic almost all her life and has also suffered with ulcers from very young. Our weather is crazy hear as well. Yes, we have gotten snow already!!!! Today we have a mix of snow and rain. Gotta love it, eh.lol I still have the pain under my ribs, just below my breastbone. Thanks for all the advice. I got on all fours last night and rocked myself from side to side and it seemed to calm my pain down abit. Although, I did look pretty funny. How does your husband cope with your illness. Is he supportive? I hope so. My kids are doing well. They are both taking a nap right now. So I'm just taking some time for myself. Nice chatting with you again, and hope to talk to you soon.

    P.S. To answer your question on how I cope with housework....I am a neat freak. I think I overdue to much. I do all the cleaning, washing, ironing, cooking, bathing the kids etc. I feel guilty that I don't work, so I try not to leave too much for my husband to do when he comes home from work. This is why I'm probably always in pain. My body never rests and I have to learn other ways or I'm going to break down totally.

    God Bless,
    Tes

    [This Message was Edited on 11/29/2002]
  13. tes

    tes New Member

    bumped for Morgana.
  14. morgana

    morgana New Member

    hello Tes.sorry for not replying sooner but i went xmas shopping yesterday (ha thought I was well enough)And I over did it with carrying bags etc and ended upin major neck arm and chest pain and I was so dizzy It made me feelso sick..it got to the stage where my body was buzzing like I had an internalmotor going (have you had that feeling before??I had tingling sensations all over too ....boy did I feel rough so my mum said I was to stay at hers over night so thats where i'
    ive been.
    Im glad the rocking from side to side helped a little with your gas pain....ill try anything that helps...no matter how silly I look.I thinkits good that you can sometimes laugh at yourself too :)
    How has your weekend been sweetie has your rib pain been any better??I can sympathise so much with you on this one.another question do you find that your symptoms are worse during your period??mines terrible in the week running up to the start of my cycle.
    Im not married anymore I got divorced in 95 My ex was very violent and emotionally abusive.....which didnt make things any easier.I dont have a partner at the moment its just me and the girls....and I like it like that at the mo in too much pain to handle a relationship.
    Thanks for your concern over my daughter she has bi lateral deafness and wears an aid in both ears but she copes really well.its my other daughter who has the symptoms of fibro.
    Tes please dont try to do all your housework on your own if it doesnt get done do it another day...its not worth making yourself bad over..and when your husband can hgelp let him do it :)
    Well sweetie take care and write soon your a great friend ((((((((((((((HUGS)))))))))))))))))))Morgana
  15. Bambi

    Bambi New Member

    Hi, I don't mean to bump into this
    discussion but I have severe rib pain
    at times, along with any other area
    you'd care to mention. The pain specialist did tell me mine is Myofascial pain. It's something you see when you tear a chicken skin off and that slimey stuff that's inbetween the skin and the meat. I am on regular pain medications at regular intervals during the day..some days are worse than others by far. What I found that helped my
    rib pain is a rib brace. It's just a
    stretchy elastic brace that fastens with velcro. Makes no sense that slightly squeezing the pain area would help, but it does help me immensly! I don't use it all the time, only when the rib pain is acting up. I found mine in Walgreen's
    drug store but I'm sure they have
    them all over. I hope if you try one
    it helps you also. I was amazed at the relief it's given me at those times! Love, Bambi
  16. tes

    tes New Member

    How are you tonight? I am o.k. Would love to feel awesome, but for now I can't say that.lol. Today I have taken it totally easy, and haven't done really anything except prepare meals and watch the kids. My ribs are still really sore, but my belly area has been better. I have learned to take one day at a time. Just when you think you're out of a flare and learn to enjoy it...boom...the pain is back. Too many flares and so little time being pain free. You can probably relate. Sorry to hear that your husband was abusive. You poor thing. I dated a guy many moons ago and he was pretty aggresive. Thank god my husband is good. He even barely yells at me. He really takes care of me. I wish I would just get better and be the wife that he deserves. Don't get me wrong...I am good to him, but I just hate that he always sees me down and in pain. I have had fm for about 9 years(I am 31) and haven't gotten worse in the last couple of years. I had 2 c-sections with my deliveries and wonder if that has anything to do with it. My weekend was pretty quiet. Quite a change from the usual. We always have something to go to or something to do and we never rest on weekends. Today I was a total bum...lol. Not the usual for me. I'm always up and around doing things. Just curious to know...when you are doing things, do you feel better?...I noticed that physical activity lessens my pain, but the minute I sit down....watch out because the pain kicks in so bad. It's been really nice chatting with you and I'll check in later. How are your lower ribs and belly feeling?

    And to answer your question if it affects me during my cycle, this is how it goes....I'm usually good one week before my period starts and the week of my period, but the 2 weeks in between is when my symptoms get profoundly worse. How does your cycle cause your pain?

    Gentle Hugs,
    Tes
    [This Message was Edited on 12/01/2002]
  17. morgana

    morgana New Member

    hi Tes saw that you hadnt answered my post so I hope you are ok sweetie.......write when you can hugs Morgana email is
    celeste@cheerful.com


  18. morgana

    morgana New Member

    Bambi......didnt see youre post until now thanks for the advice about the rib brace I will see what my doc says about one when I next see him..Do you have the pain under your breast too and round to the side about 2---3 inches from your underarm??and do you also have the painful lumps?? Thanks Morgana
  19. morgana

    morgana New Member

    hello Tes
    I havnt heard from you for a few days sweetie I hope that you are keeping ok you got me worried about you now!!how is your rib pain ??mine has been bad over the past few days and the burning sensation under my bottom left ribs has been playing up.I had my daughter at the drs today she has had a lot of blood work done today....the dr seems to think they will come back normal hes looking on her having fibro too :(.I hope not she s too young to suffer with this.How areyour kids??looking forward to xmas no doubt !!write when you can sweetie Hugs (gentle) ones morgana
  20. tes

    tes New Member

    Sorry for not writing sooner and thanks for the concern. I have been really bad lately. The constipation, the painful gas, the severe pressure and burning in my ribs underneath the breast areas...and the list goes on. I am so worried that it could be something more serious. The pain has been constant and unbearable. My naturopath said I have alot of vitamin deficiencies, so I'm starting on alot of supplements. I pray to god that they help somewhat. Do you ever get sharp, stabbing and crampy pains in your ribs and waistline? Does your pain ever go away or do you have pain all the time. How are you feeling. Hope your daughter is o.k. What are her symptoms. Do you have pains anywhere else, because mine is more chest, ribs and abnomen. Could that be normal for fm and not have leg or arm pains? My ribs are so crampy right now and I'm desperate for relief. I took a tylenol #2 earlier and it made me have more gas and abnominal pain. So much for that. I just want this to go away. I love christmas time, but this year I'm finding it hard to get into it. But I have to for my kids sake. I love them so much. My older one is sick with the flu and I'm finding hard to take care of him. Are you ready for the holidays? Please write back soon. I am anxious to hear from you.

    Love,
    Tes

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