I have CFS and FMS. I was DX'd in 1988. I am not sure what the trigger was, but I got a little better and then collapsed in 1992. I had an undiagnosed tumor in my liver that was found during an emergency appendectomy in 1998. They told me was I was weeks away from death. It was removed 2 months later and that started this current siege. I nearly died and got a near fatal dose of staph. I was in the hospital on and off for a year. The medical care was dismal. I fear I will never recover. I have always been tired. I remember my unsympathetic mother and father frequently telling me I was the "laziest child" they knew. These last few weeks I have been in a flare and I feel so tired my eyes stream tears and I feel like I am drugged. Sometimes my speech is slurred and I stagger I am so fatigued. I am too tired to think sometimes. What's really bad is I have a bizarre sleep disorder. The second I drop off, even dozing on the couch, my heart starts pounding and I startle awake, feeling intense distress, like my body is suffocating. I am going on about 3 to 4 miserable hours a night. Anyone else have this? I hate sleeping because it is so distressing and makes me feel sick, but I am exhausted. I did 2 nights in a sleep clinic and they had lots to say but nothing to offer to help. I'm so glad to find you all. I have spent thousands trying to get better, and have stopped seeing doctors altogether. All the drugs make me very sick anyway. I treat myself with nutrition. The only thing that helps is massage, staying away from stress, and wheatgrass juice. I hate what this DD has turned me into.