High Cpk levels? Help!!!!!

Discussion in 'Fibromyalgia Main Forum' started by pdtopla, Jan 14, 2003.

  1. pdtopla

    pdtopla New Member

    Hi, my name is Linda. I am trying to find out if anyone out there has had a high cpk level? My sister in law has been trying to find out what is wrong with her since August.
    She told her doctor that she felt like she had the flu. Immediately the doctor said lets run some tests. This is when they found out she had a high cpk. The first doctor said she had polymyositis. He takes a muscle biopsy and does not find polymyositis, but insists she is in the gray area of the disease and needs to start prednisone and methotrexate. She then goes for a second opinion and this doctor (rheumatologist) says that he sees nothing and that she needs to go to a neurologist. The neurologist runs tests and says that she does not have pm, md, or ms. He says that she possibly has a virus and puts her on Bextra. It has been 1 week and she is in more pain than ever. I am wondering if any of you have gone through these same hoops before being diagnosed? Please help!!!!!!! Oh,by the way she also has had an EMG and is now going to a liver specialist because of a spot on the liver. One biopsy has already been taken of the liver, but they feel they now need a bigger piece since the first biopsy did not show anything.
  2. devonlouquet

    devonlouquet New Member

    Have the doctors considered Rhabdo?