highschool w/ chronicFS

Discussion in 'Fibromyalgia Main Forum' started by meaningless17, Aug 21, 2002.

  1. meaningless17

    meaningless17 New Member

    i have chronic fatigue syndrome and at first i had mono ..i got mono in december01 [i was in 8th grade] and i kept getting so much worse and i was taken outta skool for the last 5 months..i havent even been homeskooled at all i just couldnt do it .. [they only let me more onto highschool because i made a scene about how no one remembers the crap they learned as it is]..basically im still worse..then u could ever imagine ..and i don't want to go to a regular highschool..my mom is tired of me complainin bout it but seriously i CANNOT do this AT ALL..im so sick i should be in a hospital wondering if im even gonna come out a live..its too much..does anyone know what i can do?..please
  2. meaningless17

    meaningless17 New Member

    i have chronic fatigue syndrome and at first i had mono ..i got mono in december01 [i was in 8th grade] and i kept getting so much worse and i was taken outta skool for the last 5 months..i havent even been homeskooled at all i just couldnt do it .. [they only let me more onto highschool because i made a scene about how no one remembers the crap they learned as it is]..basically im still worse..then u could ever imagine ..and i don't want to go to a regular highschool..my mom is tired of me complainin bout it but seriously i CANNOT do this AT ALL..im so sick i should be in a hospital wondering if im even gonna come out a live..its too much..does anyone know what i can do?..please
  3. Shirl

    Shirl New Member

    So sorry to hear you have CFS, I wish I could make you well! I feel so badly when I see young people like yourself come here with this illness.

    Please don't despair, someday,and I hope it is soon they will find some real help for all of you.

    You can come here, and we will try to help you as much as we can.

    I have Fibromyalgia, not CFS. But we have many members that have CFS that will love to share with you what helps them cope with this illness.

    Welcome to the board, and please try and keep as positive an attitude as you can. That is most important.

    Shalom, Shirl

  4. MicheleF

    MicheleF New Member

    I hope you'll feel comfortable sharing a 1st name or a nickname, because I do not feel you are "meaningless".

    I have both fibromyalgia (fms)& chronic fatigue (cfids). I understand how exhausting it can be. However, there's many things that can be done to try to alleviate the worst of your symptoms.

    Are you taking vitamins/minerals and/or supplements? Many CFS & FMS sufferers have a lack or problem with absorbing some of the most needed vit/min. Teenagers need even more than us "old people" ..lol, so hope your dr. has recommended this. Vit/min deficiencies can add to the fatigue.

    There's a lot of info in this library that can be printed out to share with your mom (or tell her she is welcome to sign on and say hi to the members here). Order a patient guide (1st post on the message board) and share this with your mom. If your dr. is supportive & helpful, seek his/her help in talking to your mom. It's very hard for people who don't have this to understand, because we look healthy.

    Know that you're not alone. Jackie F has mentioned a site for younger members, I'm sure she'll say hi later and offer this to you as well as some great advice.

    Best wishes. Michele
  5. Jackie F

    Jackie F New Member

    We are, of course only hearing one side of the story!

    There are many children with CFIDS and they must go to school; it is the law.
    You sound like you are not being treated or if you are maybe you aren't getting the right treatments.
    Do you have a good doctor?
    What is he/she doing to help you?

    On the Home page is a specialist that works exclusively with children and CFIDS, his name is David Bell. Please go there and read what he has to say and share it with your Mother, that might help her understand better too.
    It might also help you find a better treatment plan.

    Jackie F
  6. meaningless17

    meaningless17 New Member

    thank all of you so much. it really means a lot to me..to the girl who was asking about my mom and wanted to speak with her..i would love that, she wouldn't..she doesn't like computer things she barely knows what a computer is. i just want to meet a teenager who has CFS..everyone says yeah i have fibro..and im like no i want someone with CFS! i just wanna wake up one day being healthy..i always thought i was a good kid but i'm not..i guess i deserve this..y else do i have this, and others are perfectly fine?..i posted this question twice because the first time it didnt send..but then i did my profile and it shows the messages i wrote..you guys responded nicely..the other time i did it it was all "go to this site read it and you are wrong!" and i was like um ok lol so anyway thanks but i donno..
  7. RedEye

    RedEye New Member

    I'm 29 now but looking back I probably had CFS in high school too. I missed a ton of school, because I also had many sinus infections and had my tonsils out senior year. I was sick for prom, sick for everything. But you just have to do it. Become obsessed with getting healthy! There is lots of info here to help you. Learn to eat right, exercise, and become a positive person. I know you can do it. Don't feel this is a punnishment, it's not. When I feel that way my Mom tells me that God only gives us what we can handle (not that I'm very religious but it kind of makes sense.) CFS is just like any other handicap, you learn to work with what you have, and sometimes CFS goes away or you feel better! But life goes on and on and is so fabulous, especially at your age. Keep coming here we'll love to talk with you!
  8. tired42long

    tired42long New Member

    Just wanted to say hi and even though alot of us are "old farts" (I happen to be 41 with 6 kids), we sure do understand what you feel like. Life feels like chaos. For you it is school and losing out on friends and school stuff, having a mom that can't possibly understand (she probably can't completely--it is like any other terrible thing people go through...ya don't "get it" unless youv'e been there.) For some of us it is the same....only it's missing out of college, work, lost wages, friendships that go with working, and dealing with family that "can't possibly understand the pain, anger, and just plain feeling so crappy you think it's the end of your life". There are people here who are not much older than you. There are people here that have had this for decades and DID have it as a highschooler. I don't feel that I can't relate to someone on the board because they might be 70 and I am only 41. Age has nothing to do with understanding this.
    You probably do need another teenager to talk to. Is there a support group of any kind in your area. Maybe one that is not centered on CFS alone, but deals with teens that are not able to attend school for other health reasons.? I wonder if you could call a helpline in your area if your mom and doc doesn't help you much. Or an old favorite teacher. Anybody that will listen. You are too young to just lay down and take this with no help. I have heard of almost a dozen younger kids that have this disease in just one general area of our state. I don't know them personally, but the school system HAS to be working with them somehow. Some area schools even have internet classes available now. Is that something you could handle and also get into a writing, music, poetry class out of school program just to spark your interests and meet new people. Being or feeling alone is not good for any chronic illness. You sound like you have a little spunk...that's good. it will help you push yourself more mentally to fight this and all your fears. All this not to sound like some knowitall...I have 2 grown kids, one15yr old just going into HS, and 3 little ones at home. That doesn't make me an expert. But , boy do I remember growing up as a middleschooler and highschooler. Has LOTS of issues. We can help encourage you if ya let us.
  9. Heidi

    Heidi New Member

    Hi!
    I have had CFS and now have fibro...my kids both have it as well. They both got it when they hit puberty. My daughter is 19 now and getting ready to start her 3rd year of University. She was out of school for Gr.7&8.
    My son is going into Gr. 12. He was out of school for parts of Gr.6,7,8. We used a school board tutor to help them keep up with the basic core subjects.

    If your mom doesn't understand....and it is hard for moms to sort out the teen age stuff, depression, and illness...try talking to your school councillor.

    My kids NEVER took early classes. They did any assisgnments on the computer...explained to the English teachers and we printed out the rough drafts before using computer editing tools. They carried light loads at first.

    If you live in the states (which we don't) you have legal rights to education if you have special needs...which you do! One other thing....my kids lived in a recliner...they did their homework, reading, etc in it. Being well supported physically meant less effort spent otherwise.And taking supplements really did make a difference for my kids even if they hated some of the big pills.
    Just to offer you hope...
    My son worked full time this summer in the produce dept. of a grocery store carrying boxes of watermelons etc....I never would hav believed it possible!
    My daughter worked full time this summer and has her own radio show on the University radio station on the side. She also does web site maintence for a music magaizine. They still need lots of sleep and 2 days a week to just crash and be couch potatoes...but they have a life....and it's pretty wonderful. So hang in there!

    Our motto at our house is: You always have options. Sometimes you can't see them right away...but they are there. So fight for your education...Don't give up!