Holy Cow !!!! We made the mainstream media

Discussion in 'Fibromyalgia Main Forum' started by JaciBart, Nov 25, 2002.

  1. JaciBart

    JaciBart Member

    I can't believe it, and they mention ME, that is us fibro-tes. Found this just now on rense website, we all knew this but we have not had the recognition we deserve!!!!!





    Neurotoxin Discovered In
    Chronic Fatigue Syndrome
    From National CFIDS Foundation Inc.
    Needham, Massachusetts
    Contact Information
    Gail Kansky 781-449-3535
    Jill McLaughlin 978-475-0232
    11-24-2

    NEEDHAM, MA -- Research sponsored by the National CFIDS

    Foundation was formally announced at the International Symposium on Toxins and Natural Products in Okinawa, Japan on November 17-19, 2002 by Dr. Yoshitsugi Hokama. The research, for the first time, discovered ciguatoxin, a potent neurotoxin, in the blood of Chronic Fatigue Syndrome patients.

    "Chronic ciguatera poisoning has already been suggested as a scientific model for Chronic Fatigue Syndrome (CFS)," stated Dr. Hokama. Ciguatoxins are potent, heat stabile, non-protein, lipophilic sodium channel activator toxins and are recognized as some of the most potent biological toxins known. They produce dramatic neurological manifestations, such as peripheral sensory or motor symptoms (including paresthesias, pain, burning, tingling, numbness), central symptoms such as headache, autonomic dysfunction and also affect multiple body systems (gastrointestinal, immune, hepatic, cardiovascular) and the muscles.

    Many CFS patients in the study had higher levels of the toxin than the patients with cancer, hepatitis or acute ciguatera poisoning.

    Quantitative assay results range from 1:5, the lowest toxin level, to 1:160, the highest toxin level. All CFS samples gave titres of at least 1:20, with the majority of titres from 1:40 to 1:160.

    Dr. Hokama presented his preliminary findings in a lecture titled "Acute phase lipids in sera of various diseases: Chronic Fatigue Syndrome, ciguatera, hepatitis, and various cancer with antigentic epitope resembling ciguatoxin as determined with Mab-CTX."

    Dr. Hokama is a Professor in the Department of Pathology at the John A. Burns School of Medicine at the University of Hawaii at Manoa. He is a world expert in the area of fish toxins with hundreds of peer reviewed publications to his credit. Hokama developed the Membrane Immunobead Assay test for patient sera, using a specific monoclonal antibody for ciguatera toxin (Mab-CTX). His current research into Chronic Fatigue Syndrome and a ciguatera toxin connection was funded by the National CFIDS Foundation's research grant program.

    Gail Kansky, President of the National CFIDS Foundation, said, "We believe this to be a significant breakthrough. CFS, which has come to include myalgic encephalomyelitis, is a very severe illness that has not received adequate funding or appropriate medical attention. Although there are still many unanswered questions and much work to be done, research efforts will ultimately turn the tide in the understanding of this disease and allow patients to receive appropriate medical therapies. We are indebted to Dr. Hokama and his colleagues for providing this monumental first step."

    For more information on this study or Chronic Fatigue Syndrome, please contact:

    The National CFIDS Foundation
    103 Aletha Rd, Needham Ma 02492
    (781) 449-3535 Fax (781) 449-8606


    Email This Article




  2. JaciBart

    JaciBart Member

    I can't believe it, and they mention ME, that is us fibro-tes. Found this just now on rense website, we all knew this but we have not had the recognition we deserve!!!!!





    Neurotoxin Discovered In
    Chronic Fatigue Syndrome
    From National CFIDS Foundation Inc.
    Needham, Massachusetts
    Contact Information
    Gail Kansky 781-449-3535
    Jill McLaughlin 978-475-0232
    11-24-2

    NEEDHAM, MA -- Research sponsored by the National CFIDS

    Foundation was formally announced at the International Symposium on Toxins and Natural Products in Okinawa, Japan on November 17-19, 2002 by Dr. Yoshitsugi Hokama. The research, for the first time, discovered ciguatoxin, a potent neurotoxin, in the blood of Chronic Fatigue Syndrome patients.

    "Chronic ciguatera poisoning has already been suggested as a scientific model for Chronic Fatigue Syndrome (CFS)," stated Dr. Hokama. Ciguatoxins are potent, heat stabile, non-protein, lipophilic sodium channel activator toxins and are recognized as some of the most potent biological toxins known. They produce dramatic neurological manifestations, such as peripheral sensory or motor symptoms (including paresthesias, pain, burning, tingling, numbness), central symptoms such as headache, autonomic dysfunction and also affect multiple body systems (gastrointestinal, immune, hepatic, cardiovascular) and the muscles.

    Many CFS patients in the study had higher levels of the toxin than the patients with cancer, hepatitis or acute ciguatera poisoning.

    Quantitative assay results range from 1:5, the lowest toxin level, to 1:160, the highest toxin level. All CFS samples gave titres of at least 1:20, with the majority of titres from 1:40 to 1:160.

    Dr. Hokama presented his preliminary findings in a lecture titled "Acute phase lipids in sera of various diseases: Chronic Fatigue Syndrome, ciguatera, hepatitis, and various cancer with antigentic epitope resembling ciguatoxin as determined with Mab-CTX."

    Dr. Hokama is a Professor in the Department of Pathology at the John A. Burns School of Medicine at the University of Hawaii at Manoa. He is a world expert in the area of fish toxins with hundreds of peer reviewed publications to his credit. Hokama developed the Membrane Immunobead Assay test for patient sera, using a specific monoclonal antibody for ciguatera toxin (Mab-CTX). His current research into Chronic Fatigue Syndrome and a ciguatera toxin connection was funded by the National CFIDS Foundation's research grant program.

    Gail Kansky, President of the National CFIDS Foundation, said, "We believe this to be a significant breakthrough. CFS, which has come to include myalgic encephalomyelitis, is a very severe illness that has not received adequate funding or appropriate medical attention. Although there are still many unanswered questions and much work to be done, research efforts will ultimately turn the tide in the understanding of this disease and allow patients to receive appropriate medical therapies. We are indebted to Dr. Hokama and his colleagues for providing this monumental first step."

    For more information on this study or Chronic Fatigue Syndrome, please contact:

    The National CFIDS Foundation
    103 Aletha Rd, Needham Ma 02492
    (781) 449-3535 Fax (781) 449-8606


    Email This Article




  3. dojomo

    dojomo New Member

    I've never heard of this ciguatoxin before......I'll educate myself today...is there more info on this study?..........DJ
  4. kay

    kay New Member

    pretty interesting!! Sounds like me also that there talking about. What are you doing up so early? Its 6:30 here.
  5. dlizard

    dlizard New Member

    thanks for your post Jacibart! I love this site and the people here! This is a unique and fresh research article isn't it?
  6. sofy

    sofy New Member

    Do you know if the problems they described would show up on any of the usual neurological and or cognitive testing? I had all that and they say I'm fine in that dept.
  7. tamara123

    tamara123 New Member

    Thanks for posting this, I was up last nite till about 3am..couldnt sleep, imagine that, doing some research to take to my dr appt today, and low and behold this morning, you posted this wonderful article. Thank You so much, I am taking this info with me along with the rest I printed.
    Tamara
  8. JaciBart

    JaciBart Member

    I am on the west coast, was incensed over this news (obsessed) and could not stop researching it.

    The interesting thing is I believe the article is word for word the same as the one on the home page on this site.

    I am still looking into it.

    I will post all I find, I did find more last night re: the source, you might look that one up.


    Jaci
  9. joyof3

    joyof3 New Member


    great info, i like to read your posts on info about these DDs.

    stephanie
  10. JaciBart

    JaciBart Member

    anybody checked this out yeet with dr?


    Jaci