Hormone Doc near Kansas City anyone???

Discussion in 'Fibromyalgia Main Forum' started by suz9601, May 21, 2006.

  1. suz9601

    suz9601 Member

    Just thought I would try and see if anyone knew of any docs that use bioidentical hormones near Kansas city that seem to know what they are doing. If anyone has any suggestions I would appreciate it..Thanks
  2. auntyemnga

    auntyemnga New Member

    Hi,

    I read your bio. I am so sorry you're having to go thru this at such a young age.

    I'm writing because I am from the Kansas City area. I've been gone for almost 16 years but I still have family and friends back there.

    I'll make a few phone calls tonight and see if I can find a doctor for you.

    Auntyem
  3. suz9601

    suz9601 Member

    Thanks for replying Auntyem...yeah it is hard to be so young and this ill..the worst part is that I am getting worse and have no help. Hope you are doing better than I am..Thanks for checking around. I appreciate it.
  4. auntyemnga

    auntyemnga New Member

    I reached my sister-in-law tonight. She had no idea what I was talking about but I explained bio's to her. I asked her if she would ask her friends to see if anybody knew about them.

    I've got a couple of girlfriends to call tomorrow night. This might take awhile since I'm asking family and friends to ask their family and friends.

    Something I just thought of....... I wonder if you could call the compounding pharmacy and ask them if they knew of any doctors. But then my 2nd thought is they probably wouldn't be able to.

    I also wonder if there is some type of physician organization in KC that you could contact.

    Just a thought,
    Auntyem
  5. suz9601

    suz9601 Member

    Yeah, I asked the compounding pharmacy and the only docs name they gave me are the ones I have been too. I am having a hard time finding someone to give me estrogen at my age (28), even though I show undetectable in the blood and very low on saliva. I have all the low estrogen symptoms too. I think they are afraid cause I am so young or something. It's hard to find someone that knows how to deal with my very complicated situation.

    Anyway, thanks for the ideas..I do appreciate it.
  6. nonnie1967

    nonnie1967 New Member

    I wish I had an answer to your question. :-( I am wondering, though - who is your regular doc?

    I will do some checking and see what I can find out.

    edited to add: I've been doing some looking on the Internet, and the two that are leaping out at me are Dr. James Mirabile at the For Women Only clinic and Dr. Jane Murray at the UMKC School of Medicine. You might check these out. (Maybe they have references.) Anyway, they certainly seem to know a lot about it!
    [This Message was Edited on 05/22/2006]
  7. suz9601

    suz9601 Member

    I am currently looking for a doctor now. I don't have one for CFS/FM. Do you have a good doc in the area? I need one for normal CFS issues and hopefully one that knows about hormones. Thanks for the names. I will check them out. Please let me know if you have a decent doc that knows how to treat CFS/FM..etc.

    Take care,
    Suz
  8. nonnie1967

    nonnie1967 New Member

    What part of town are you in? I live in the eastern part of Jackson County. I'd be happy to refer to to my GP if you live near there or would be willing to drive there. He is not a specialist in FM but has learned, and is learning, a lot very quickly. He is quite open! :)

    My rheumatologist is Dr. Perri Ginder in KC (Rockhill Rheumatology). I've only seen her once, for consultation and definitive FM diagnosis. But she was wonderful! She spent an hour with me and really seemed to understand FM in a way that few doctors I have met do. I would highly recommend her. :)

    I don't know whether either of them knows much about the hormone issue, however. It's not an issue that I've had to deal with yet.
  9. suz9601

    suz9601 Member

    I am in Independence. It's so hard to find a good doc that knows half way what they are doing with hormones, especially since I am young and not going through menopause. That would make it a little bit easier. Most just want to put me on the pill and forget about it..I really would feel more comfortable w/bioidentical hormones.

    Thanks for the rhume name. I will keep that in mind. I may end up trying Jane murray. I will do some more research on her first and see what I can find..ARe you getting anywhere w/treatment? DO you have FM/CFS or both? I have both.

    Thanks and take care,
    Suz
  10. suz9601

    suz9601 Member

    Thanks for the heads up..I will go through some of her older posts.

    Take care,
    Suz
  11. MrHappyGoLucky12

    MrHappyGoLucky12 New Member

    suz9601,

    E-mail Kent Holtorf, M.D. at drholty@usa.net. He specializes in natural prescription bio-identical hormone replacement. He would be able to tell you the name of reputable physicians in your area; he knows like-minded physicians all across the U.S. Let me know if he is of any help!

    MrHappyGoLucky12
  12. suz9601

    suz9601 Member

    Thanks for the info. I just emailed the doctor and hopefully he will have some ideas too. I appreciate your help. I'll keep you posted.

    Take care,
    Suz
  13. nonnie1967

    nonnie1967 New Member

    I was diagnosed with FMS last September but believe I meet criteria for CFS as well. I have had the various symptoms most of my life and have been riding the medical merry-go-round for many years. I never dreamed until recently that there was one thing that tied them all together.

    My doc knows about all of the well-known FM medications. I am educating him on some of the cutting-edge stuff. ;-) I am currently on amitriptyline, gabapentin, Topamax, and Mirapex, plus prn medications for IBS, pain and migraine headaches. We are making progress, but it is slow, and so far it is more in the energy area than in pain prevention. I'm hoping that as we increase my Mirapex dosage, the pain will get better, though. :)





  14. Jen102

    Jen102 New Member

    Have you tried Carol Ryser? Her website is www.carolannrysermd.net/CFS.html. Blessings to you. Hope you can find some help. Jen102