Hospitalization and CFS/FM

Discussion in 'Fibromyalgia Main Forum' started by gknee, Jun 9, 2012.

  1. gknee

    gknee New Member

    I have been hospitalized twice the last month for chest pains and tachycardia of 180 beats per minute. I have received every cardiac test they're is. I have had irradiated chemicals injected, CAT scans, echocardiograms, x-rays, stress tests, I sear they must have taken gallons of blood.

    As you have guessed I am in the biggest CFS/FM flare of all times. It has taken me a week just to sit on the couch. My fatigue is whipping my a**.

    This Monday I am having a Cardiac Ablation. Essentially they are going to stick a catheter wire in my heart and burn the areas of my heart where the electrical problems are. They are hoping that this will get rid of my racing heart episodes. Unfortunately, I'm allergic to local annestetics so I'm hoping they will give me enough "happy juice" to make the 6 hour procedure a happy time. Doesn't that sound like fun?

    I'm taking bets on how this ablation will beat me down. I'm a teacher on summer vacation but I don't wan't to spend my entire vacation in bed.
  2. ILoveGreen

    ILoveGreen New Member

    My thoughts are with you. It sounds as though you are a single person. If I am correct in my assumption, have you checked with your insurance about home health care assistance? Some insurance offers varying degrees of assistance and even meal delivery. Every little bit of help makes a difference, although I realize it may be a bit late to make any arrangements for tomorrow's procedure.

    Please try to be kind to yourself and just take it day by day. Yes, summers are short, especially for a teacher, but if you kick back and enjoy each day with a good book, some films or the company of friends (if you're lucky enough to have people who understand your situation), it won't be so bad.

    Patience is essential to healing, and sometimes the hardest part. Years ago I had a procedure done and went back to work before the Dr. recommended. In less than 2 years I wound up having the same procedure done over again due to scar tissue build-up caused by excessive bleeding...all because I didn't take the required "down time" to heal properly the first time around.

    As the adage goes, "If you don't have time to do it right the first time, you certainly don't have time to do it over again."

    Please take care.
  3. jole

    jole Member

    Wishing you all the best, and will be remembering you in my prayers. This all sounds scary to me, so just remember you're not going through all this alone....we're here for you! Let us know how everything goes, and I'm betting you'll be feeling lots better once your heart is back to 'normal'. Not the best way to spend a summer vacation for sure, but heck, you couldn't do much the way you were feeling. Have a quick recovery, and I wish you well........
  4. gb66

    gb66 Well-Known Member

    I'm so sorry you're going through all this pain and stress. I hope all of your tests turn out okay.

    I was at the ER twice in the last few weeks and have had to do a lot of tests. My echocardiogram was so painful, the pressure on the ribs, I was wondering if you had the same experience?

    I was having a visual disturbance problem and still don't have a diagnosis. They found a cyst on the brain that I have to see a neuro about and one doctor thought the eye things might be ocular migaraines.

    It's so hard waiting to find out and so painful going throught all these tests. And some of the medical people don't understand how much pain we're already in.

    I am having a small flare since, not as much as I thought I would. I'm just extremely tired and a little sore. Lots of low grade headaches too. I think it's sinus. My main feelings right now are just that I want to be left alone. I feel wrung out and hung out to dry. I don't want to talk to anyone, just come on here a lot and vent cause I know the folks on here REALLY understand. I wish you well and I'll pray for you, ok.

    Also, about the anesthetics. I am allergic to most every medication under the sun, so when I had to have a tooth extracted last month I thought I'd have trouble with the I.V. stuff. I didn't though. I felt very irritable when it was wearing off, but it soon passed. GB66
    [This Message was Edited on 06/10/2012]
  5. mbofov

    mbofov Active Member

    I'm sorry to hear all this - it's rough getting all those tests on top of the chest pains and tachycardian.

    Have they checked your magnesium and potassium levels? Low magnesium can cause tachycardia, and potassium is important too. I'm sure they've checked your potassium but magnesium is equally important. Here's one study:

    Good luck with everything and keep us posted -

  6. MicheleK

    MicheleK Member

    My heart goes out to you. You said you had every kind of test. Did they do a tilt table test on you? They sometimes forget that one with ME/CFS patients. With the description of just being able to begin sitting on the couch, Postural Orthostatic Tachycardia Syndrome came right to my mind. I have it. No doctors ever ran a tilt table test on me until I went to a CFS specialist. That was the first test they did! I would be interested in hearing back from you. I wish you better days and less invasive tests.