Housebound ?

Discussion in 'Fibromyalgia Main Forum' started by greatgran, Oct 6, 2010.

  1. greatgran

    greatgran Member

    Wondering how many of you are housebound also any bed ridden.. Looks like this is going to be my life and I need ways to accept it. I think I could do ok if it wasn't for the guilt I feel over how my family has to suffer.

    Don't like it but what to do, gotta make the best of it.. I have a friend with stage 4 ovarian cancer and she gets out and does more than I.. No wonder people don't get it..


    LEFTYGG Member

    ive read pretty much all your posts and youve been thru a lot with your daughter grandkids and great grandkids.
    no wonder youre sick. all the stress. your adrenals are exhausted. same thing happened to me. when i get the money im going to a specislists in hormones.

    you and i need something to get excited about. i need a project something thats you have hobbies? i dont i was busy raising kids for 30 some years.

    i dream of taking a trip across US seeing everything along the way. im going to start mapping it out.

    just keep working on your health. love gail
  3. greatgran

    greatgran Member

    Yes, I have had my share of bad times and have had many good time. What is a hormone speciaslists and how would they help cfids?

    I don't go and do because I feel so bad. I want to and have things I want to do and places to go but my body won't let me.

    My husband is taking all next week off from work and wants to take me to the beach but I am so exhausted , achy , off balance and on and on I don't think I can even get ready for the trip let alone go.

    This weekend is a family reunion not sure if I will be able to make it. I just don't have the energy to do anything.. So much I want to do and try but always end up back home in bed.

    I do hope you get to take your trip and yes I agree I need something to get excited about but
    even if I have anything I don't have energy for excitement..

    I sure am interested in the hormone specialist if there is any hope.. I have seen a couple endoc.. aren't they into hormones?

    Take care my dear and I do hope you get to make your trip.. Thanks for your reply.
  4. J13

    J13 New Member

    GreatGran, it amazes me too how many people I know with life threatening illnesses have a fuller life than I do. I'm not bedridden, though I spend a lot of time there. And I do prefer to stay home because running a simple errand wears me out. I schedule no more than one every other day so I'm always behind.

    Yes, we have to make the best of it and some days are harder than others. It's hard to accept this all the time. I try to remind myself to take it day by day. The difficulty is that new challenges crop up. Right now insomnia is my biggest problem and sleep has been so important in managing pain.

    I won't give you any platitudes, but know you're not alone.

    LEFTYGG Member

    do you have the commercials on tv where the when say i woke up in the morning and nothing no zest for life. thats how i feel. fibro pain and exhaustion. cant walk far etc. when im in a store i break out in a sweat and want to go home.

    rest helps me the most i need at least 8hrs sleep or more. i take ambien.

    i had a tradgedy 5 yrs ago my son almost died of a drug overdose. i was sick then but i pulled myself up and spent 40 days at the hospital went home to bathe but slept in waiting room when he was in icu then on a flat sofa in his room.somehow i did it.

    you should go to beach no one cares what you wear. i went when i was really bad. my DD said i should float on a raft. i tried i fell off and couldnt get up hahaha thank goodness it wasnt DH pulled me up.

    i know you cant do much but each little thing i do i feel better. i try to hide it from others.

    im rambling here. how far are you from beach? hope you can go. love gail
  6. greatgran

    greatgran Member

    J13, sorry you have this darn dd.. Have you found anything that helps other than rest.. I haven't. I seem to have weird different symptoms everyday. Oh, I do cherish if I have what I call a good day. I know my husband gets sick of seeing me in bed so much.. up and down. guess that is my exercise.

    Lefty, I am at least 5 hrs from the beach. Haven't been on a vacation in 10 yrs. Now I feel like I am coming down with a chest cold but never know it could be cfs. I want to go so bad but hate to pay for a trip and have to stay in the room sick.. or feeling like crap. Will let you know. The day before we leave I am suppose to take a class a 6 hr one that is a 3 hr drive. My husband will have to take me. I wouldn't take it but it will help the greatgrans and my daughter if I go to the class.. Someway if I am certified I will get paid for keeping them and the money will go for some of their needs. long story..

    Thanks for your replies,

  7. AuntTammie

    AuntTammie New Member

    just wanted to say I can relate......lately I am literally spending days at a time sleeping (sometimes I am awake for an entire day in between, sometimes only a few hrs)

    ....when I do wake up, if it's between 3AM and noon, I am severely nauseous and often throw up.....the only time I actually manage to get up and out at all, it is to drag myself to the pool (I know exercise sounds insane, but oddly it is the only thing that keeps me awake enough to get to the store), then to the grocery store and back home....or once in a long while to the library or counselor's office (usually my appts are over the phone, if at all, though)....I hardly ever manage to shower, do laundry, clean, etc.....and I almost never have a chance and the energy to do anything purely social (in fact, I figured out that in the last yr and 9 months I have been out socially exactly 5 times for about 3 hrs each I am averaging 3 enjoyable, social hrs every 4 months

    this is NOT living!

    actually I just read an article that said we are on "medical death row" and I thought that describes it very well.......honestly I just wish the execution part would hurry up and arrive
  8. maps1

    maps1 Member

    You are right we are on "medical death row" and yes this is not living but I am not going to hang around waiting for the execusion.

    I am organizing, choosing and planning and if there is a god it has to be better there than here
  9. AuntTammie

    AuntTammie New Member

    I really want to say something encouraging to you rt now, bc your comment has me very concerned, but I am so wiped out and depressed myself I just don't even know what to say......I do absolutely believe that there is a God and that things will be better in the next life, & I totally understand wanting that to start now.......but I still don't want you to harm are a valuable person and are here (in this life) for a reason and I know people would care if you were gone
  10. Fibrolady37

    Fibrolady37 New Member

    great gran,
    We are all different ages & all have various illnesses that affect us differently.
    I was dx with ME & fibro 13 years ago & i was bed bound i could never have seen that coming.
    Luckily i had good friends to help me take care of my then baby daughter i was so grateful to them.
    Dont feel guilty it isnt your fault this dd has left you bed bound.
    If you ever eed a friend for a good old vent or a chatim here for you ok in meyou have a good friend.
    Take care gg.
    May god bless you & yours.