How did yours start?

Discussion in 'Fibromyalgia Main Forum' started by k2626, Jun 21, 2008.

  1. k2626

    k2626 New Member

    How did your symtpoms start? Was it gradual, or all at once?

    What tests did you start off with and what did you think you had when you first started feeling your symptoms?
  2. MommaNeedinHelp

    MommaNeedinHelp New Member

    My symptoms came on gradually, but have lasted for years. No dr will look at ALL of my symptoms as a whole.
  3. ladybugmandy

    ladybugmandy Member

    mine started with mono over 15 yrs ago.
  4. dragon06

    dragon06 New Member

    My symptoms started showing up when I was 3 years old after a bout of Mono. Through my childhood and my teens they were gradual but I was always sick my adult years they were worse but I somehow managed and about 5 years ago became so severe that I am mostly housebound now.
  5. opalgem

    opalgem New Member

    Looking back it likely started back in childhood. I would calapse if I tried to jump (knees buckled) and/or ran like the other kids. I had a lot of pain, took naps on my own, bowel problems, also had scarlet fever at 11 and then mono at 16 which all made things worsen. Started to become debilitating in my thirties. Could not hike anymore, go for walks, falling asleep at odd times. Total exhaustion. By 45 had to leave work and on total disability. I leave the house maybe once a week. Twice in the summer. They say this is not progressive, but again I don't believe everything the doctors say. Most often use a cane now and deteriation on cognitive/ memory skills.
  6. amymb74

    amymb74 New Member

    My symptoms started when I started working the night shift. My doctor checked for everything he could come up with (lots of blood work, cardiac work-up, pulmonary testing, etc) Than he put me on a 2week medical leave & I was 100% better. I went back to work & while waiting for a day shift to open the symptoms came back. Well, long story short, they never went away, only added new ones over the years! Oh and when my symptoms first started I had no idea but I thought for sure I was dying (seriously). But, here I am 15 years later still here, still wondering how this all happened!!
  7. vmiller

    vmiller New Member

    I can't really pinpoint for sure when this started. It was either in April of 2007 when I fell in the yard while mowing. I fell really, really HARD and I'm a pretty good-sized gal. Not too long either after or before that, I don't remember which, I had a horrible flu-like bout with the throwing up, fever, whole nine yards. It was either one of two things but I can't determine exactly which.
    It has been a gradual thing sort of. It wasn't but a couple of weeks after my fall that I could not mow the yard anymore - I was just too tired. I would push for a couple of minutes and be utterly exhausted. The fatigue has gotten worse over the last year - and especially over the last six months - and I'm on the couch staring at my horribly messy house most days because I just cannot pick up things from the floor.
    [This Message was Edited on 06/25/2008]
  8. ziasss

    ziasss New Member

    Since I'm now 55, its been a long time! At that time the DRS said you couldn't get it again. I had several times when I would have sworn that I did. The sore swollen glands, fever, NO energy...

    Then 2 years ago I ended up breaking my leg. But I didn't find that out for 3 months. No insurance, the county hospital...then everything else started hurting. I couldn't sleep with the quilt on top of me, it was too heavy feeling, pain everywhere...couldn't think.

    So off I go to internet search. I narrowed it down to Fivro, Lupus, or rheumatoid arthitis. The Dr. did all the blood work, then started poking on me. I had all 19 tenderpoints. And the other tests were within normal range.

    I was a hairstylist so I always thought my neck and shoulder pain was from that...but not I know its not.

  9. CockatooMom

    CockatooMom New Member

    I wish I knew. I guess it was kinda gradual. I've always had a problem with my left hip and right knee. I fell on my knees a lot when I was learning to skate, outside on concrete when I was in 6th grade.

    I had problems working in the plumbing department at a travel trailer manufacturer when I was 18. I could never stand on my knees and it hurt to squat and I couldn't hardly stand back up.

    I remember having x-rays done of my knees when I was 21/22 and was told I only had mild arthritis. Well, then why did my legs hurt so bad?

    I do remember they thought I had mono around age 24, but the test came back negative.

    After many doctor visits for leg pain, orthopedic specialists, and a rheumatory doc, I was finally Dx'd with FM at 26. I had chicken pox at age 27, but had already been dx'd with the FM, so it wasn't that.

    I was never officially dx'd with CFS, but over the last few years my fatigue has gotten just as bad as my pain. I told my doctor this on the phone yesterday. I just feel like my body has aged SO MUCH over the last 4 years. I'm 39 and feel like I'm 55.

    [This Message was Edited on 06/26/2008]
  10. Honora88

    Honora88 Member

    Got a flue like symptom and did not rest at all! I worked around the clock and ignored my smymptoms. i even fainted at work! and got up and started working again!