I have done research on this but I don't have a doctor that I can go to and discuss this with. My mother has CFS and FM and my husband has CFS although his doesn't affect him as much as mine does me. Has anyone done enough research on this or has a doctor to talk to that knows how we get and what causes CFS? Ours seemed to have started with a case of mononucliosis. My husband had it first when we were dating and had to be hospitalized because his temp wouldn't come down from 104 degrees. He was in there for almost a month! I don't know the first time I had mono for sure. I have had it more than once even though Drs. say you can't have it more than once. We were tested with the EBV test. Anybody got a clue?