How do you do it???

Discussion in 'Fibromyalgia Main Forum' started by Flaxen, Oct 11, 2005.

  1. Flaxen

    Flaxen New Member

    I have been reading this board for awhile and I don't know how you all cope..especially those who cannot find a decent Dr. and (or get pain meds) Personally, I am at the end of my rope.Maybe I should just go to a pain specialist(do I need a referral) and leet them prescribe..no one believes my pain.I cannot deal.Flax
  2. jenn5

    jenn5 New Member

    I have been at the end of my rope for so long. I have felt as helpless and hopeless as anyone could. But I have been reading everything I can about health and how to get there.
    What foods to eat and what makes quality foods, detoxing my body of heavy metals, taking probiotics to repair my digestive tract, paying attention to my reaction to certain foods, and avoiding those that hurt me, to get sun every day for vitamin d, and more. Read.

    Basically, we need more good (healthy) things, and less of the bad (unhealthy) things. Improve what good things you take- quality food, supplement, good habits; and remove the bad- food, chemicals, pollution in your home, ect. Once that balance is reached- enough good to overpower the bad, your body will eventually take over.

    It'll take a long time, and you'll have to find a caring doctor and get some painkillers in the meantime. Once you get that relief, read what you can on how to get and maintain health- the natural way. And hopefully in time, you'll get well enough that your body won't torture you.

    Hope you find some peace- it'll come and go, but you'll know you're giving your body what it needs to replenish its supplies and repair itself in the long run.

    I wish you all the best.

  3. JLH

    JLH New Member

    I really don't know. I have had fibro and lupus since I was a child--it just was not properly diagnosed back then. I am 54 now--getting closer to 55!

    I came to a point where I just could NOT cope anymore about the time that I retired. I had worked for 30 years with a multitude of illnesses (see my bio), raised 3 kids and a husband, and could no longer work with all of my health problems. I was nearing the point of a heart attack. So I opted for an early retirement at age 48, taking a big cut in my company pension.

    Right now, my health has not improved; in fact, it has worsened.

    I just live one day at a time now. I know that sounds corny, but that's how I do it now. Some days, I don't get out of bed until noon. Days like today, I was awakened by my husband at 5:30 a.m. to help him get ready to leave on a business trip and I am still up at 1:30 a.m. in the morning (but will be going to bed soon!!!).

    I am lucky to have a decent PCP who does most of my fibro treatment because my rheumy only believes in exercise for fibro, which I am unable to do due to my major back issues!

    I do not take narcotic pain meds daily, even those I have them prescribed for my back--doc will not prescribe for my fibro. Even when I take them for my back, they don't help the fibro pain.

    I take Cymbalta, Neurotin, and Zanaflex for the fibro/cfs. I also sleep with a CPAP and oxygen. My heating pad is my best friend and I love to take daily HOT, HOT showers!!

    I can not stand up, or walk, for more than 10-20 min. due to my back pain. I have to clean my house and cook in spurts, sitting down at 10-20 min. work for about 30 min, then back up. I am up and down all day trying to get my chores done (making beds, dishes, laundry, etc.) If I did not keep moving, I would be in worse shape than I am!!! That is the key!!

    If you do go to a pain specialist, you most likely would have to get a referral from your PCP.

    Hope you get to feeling better,

    Hugs,
    Janet
  4. Jgavi

    Jgavi New Member

    Its a rough road, so what your feeling is normal...it drives many of us crazy when nobody beleives what your going through. Just remember that millions of us are in the same sinking but floating boat!

    After awhile you will get the thick skin and know what to say to who, when to do things at the right time. Who to
    avoid and who to talk back to...you will get mad, sad and happy but in a different way.

    I relate all this world of pain as growing up again- your learning how to eat, walk, talk, think, cry and the list goes on and on.

    Your life has changed and you will need to find ways to deal with what each day gives you.

    hang in there and post as much as you want to...we understand here....please buy books, go to a support group and hunt for great drs. The hard part is doing all this as the pain pulls you down.

    good luck- j gavi
  5. larry11

    larry11 New Member

    Wow it sucs to be in your shoes, i was in agony for months and went through $17000 in medical test ( still am being tested)and 3 doctors, an internist kjnew what it was within 25miutes of my first visit.

    the doctors actually had me thinking if it was in my fead, but after a few minutes of those thoughts and THE PAIN, I quickly realized that i have a major pain/illness. I never drempt that it could be this painful or last the rest of my life.

    My internist lets me try different meds, I just came off a short run of the fent... patch, because it made me feel so sick. now he has given me percoset which works wonders and i will be using it sparringly, due to the fact that i have no idea how long i will be on it.

    If you have no faith or you beleive your doctor has no clue, change doctors ASAP, cause you are the one suffering, why suffer if you don`t have too! It is in humane for a DR. to know that you are in pain and do nothing, he should at least refer you to someone else who might be able to help you. good luck ...LARRY