how do you get strength back after you first get FM?

Discussion in 'Fibromyalgia Main Forum' started by dani78xo, Jul 4, 2006.

  1. dani78xo

    dani78xo New Member


    okay so in a few weeks i start to go to four hours a day for summer school.

    i'm competely scared out of my mind.
    i dno't think there's any way i can do it.
    after coming home from the first day on friday,
    which was ony an hour and a half,
    i was okay for a little bit...but then i crashed.

    my migraine has been so unbelievably bad since then. i'm almost tempted to go back on the neurontin.

    and then, in september, i'm supposed to start school full time. seven hours a day, monday through friday.

    and, of course, we've been trying to contact my guidance counselor to tell her that i WON'T take wellness this year, because there's no way i can run around for aother hour and a half and actually stay concious the rest of the day.

    anyways, my strengths gotten a LITTLE better since i first got sick (when on neurontin, and i didn't have a migraine, or just barely one, i could go out for maybe three hours and not get sick.) now, my migraines back and im almost tempted to go back on it, but i don't know if i'd be able to stop the weight gain. maybe taking green tea pills with it would help?

    i guess i just want to know how people got their FM in control. i can't miss another year or i'll be held back, so i NEED the stamina to sit through seven hours.

    what helped people here, to get their strength back? i'm pretty much houseridden =[.
  2. mrpain

    mrpain New Member

    I wish I had words of wisdom to give you but I hope you can find a reliable physician or holistic doctor who will help guide you thru..

    For me I would have my peaks and valleys. When I was younger I wasn't as bad, but as I got older, everything gradually increased.

    But I would learn when to rest and save myself for the times I needed to perform. After that, I might would crash but I would go into rest mode so I would be ready for the next task.

    I found that for me, caffeine would get me thru a lot of things and I'm just talking about drinking tea or a mountain due. It's not for everyone, but it worked for me. I guess I was sensitive to the caffeine where other people it doesn't effect at all.

    Migrains though, are a different subject. Sometimes it's in what we eat that causes them. But regardless, you need a doctor's help so he can give you the proper medicine if needed.. There are also some natural supplements that can help.

    Pro health use to have a pill called "Clear Migrain" that helped me a lot.. but I don't think they carry that anymore..
  3. musikmaker

    musikmaker New Member

    Hi, this is not an easy thing. All of us seem to respond to different things. Taking B12 has helped with my energy levels. Cymbalta helps manage my pain and I take Paxil for anxiety. I also take A fibro multi vitamin that you can purchase on this web site (and the b12).

    Magnesium along with Malic Acid and calcium is helpful for muscle weakness and twitching.

    Even taking all of the I still have ups and downs. I also try to rest or nap in the afternoon and do mild stretching when I first wake up.

    All of this helps but I still don't function like I did before I got ill. I hope you find what works best for you.
  4. BlackPanther

    BlackPanther New Member

    doxy, are you in college? You may have to go part-time, or take on-line and/or video courses. They have these at my community college. If you are still in high school, maybe you can have your doctor recommend home schooling (the school district will pay for it) The more you overdo with fibro, the worse it gets.

    Mari
  5. Cromwell

    Cromwell New Member

    Can you get that nasal migraine med or even the injectable?

    The strange thing about FM is that when a flare dies down, the strength sort of eases back in sneaks up on you. I never get 100% but some days I do get 85% or so afater I am up and running-mornings I am usually stiff.

    Amytriptiline used to help my migraines years ago, but I have gained weight just taking 10mg a day of late.

    Migraines are extremely draining so I would try and see a specialist. My friend uses the injectable and her somn uses the sniff up the nose and they both ease the migraine within 15 mins.

    Love Anne Cromwell
  6. dani78xo

    dani78xo New Member

    xchocoholic,
    my guidance counselor suggested online classes,
    or homeschooling...but i'm determined not to miss out on high school.

    i realized this week that i've already missed out on an entire year, and i want to actually see everyone, and have homework, and GO to school.

    i want to be a normal teenager,
    and homeschooling or online classes just wouldn't do it for me.

    i'm intent on going to college and double-majoring.
    i have everything planned out, and im not blowing it all way just because of this illness.

    and yes, i've tried imitrex, excedrin migraine made me extremely ill for a week because of my acid reflux. i've tried alot of other meds like imitrex.

    the last one i was on for migraines was zonegram. i noticed a significant INCREASE in how bad my migraines were.



    cromwell,
    yes, i'm seeing a psychiatrist/neurologist for the migraines. she just had me on zonegram, but it made the migraine worse. i've been on every smaller med that you can think of, relpax, midrin, fioricet, zomig, and more.

    now we're trying preventatives. the neurontin worked really well, and i got alot of energy back. but going back on isn't an option for right now.



    and to everyone else, thank you for the support =].
    you guys are amazing.