How do you know if you need T3 in addition to Synthroid?

Discussion in 'Fibromyalgia Main Forum' started by palmtree, Mar 27, 2003.

  1. palmtree

    palmtree New Member

    Hi Everyone,
    I was placed on Synthroid when I was 14 and have been on it over 10 years. However, I still seem to have the side-effects of hypothyroidism as well as CFS. Over the years, before I was diagnosed with CFS, I saw tons of endocrinologists who kept saying that my numbers looked fine with just the Synthroid. Does a need for T3 show up on blood tests or is it just something you have to ask about to try for yourself? It has come up during dr.'s appointments in the past but most doctors said, "Oh, you don't need that." Your numbers look fine. Any thoughts or suggestions? My TSH is usually 2.0 Thank you!
  2. palmtree

    palmtree New Member

  3. Mikie

    Mikie Moderator

    Hopefully, Madwolf will see this.

    Love, Mikie
  4. Plantscaper

    Plantscaper New Member

    There is a book by Mary Shomon, called Living Well with Hypothyroidism, but I haven't read, yet, whether it answers that question..I don't know if one just goes by better clinical symptom improvement, which she seems to suggest, or if there is any tests that will identify a deficit in T/3. However, I haven't read a lot of the book....

    I have been on Levoxyl for a long time and I have not seen any improvement in the hypothyroid symptoms I have as a result of Hashimoto's Disease..I am just wondering if since I have only been treated with the T/4, maybe the lack of T/3 is the problem to treatment...

    Another question for Madwolf? Is mainstream medicine, usually, not acquainted with the concept of using T/3, and therefore, it may be a struggle to convince them? So, you might have to find a medical doc who already has knowledge in this area..And lastly, what is the best form of T/3 to take..I have told, in the past, that Armour thyroid would not give one an accurate standardized this wrong?This Message was Edited on 03/29/2003]
    [This Message was Edited on 03/29/2003]
    [This Message was Edited on 03/29/2003]
  5. Lendi

    Lendi New Member

    I have read a little bit about T3 and just asked the Dr. to try me on armour. I have only been on synthroid since May, but didn't feel any better. And, everytime they test, my TSH just gets worse. In regards to the question about armour, my research on it has reassured me that they have a good quality of control on it. Synthroid, however has been under fire about that lately. Hopefully Madwolf will see this and comment. I just started armour so don't have any experience yet. But, I'm really excited at the trial. Like my Dr. said. Won't hurt anything to try :)
  6. Plantscaper

    Plantscaper New Member

  7. palmtree

    palmtree New Member

    hoping for more replies--thanks!
  8. Plantscaper

    Plantscaper New Member

  9. Plantscaper

    Plantscaper New Member

  10. kgg

    kgg New Member

    The doc who prescribed it recommends reading a book titled,"Thyroid Power" by Dr. Richard Shannon (? the last name, can't read his writing). My physician talked about how TSH "normal" range is outrageously wide, especially with continuing symptoms of hypothroidism. Also, we can have plenty of T4 but not convert to T3 at the cellular level. Therefore, with my symptoms, he started a med called T3 l-thyronine SR(slow release). It was ordered at a compounding pharmacy. The prescribing physician is an MD but he practices "Functional Medicine". May want to research and try to find one near you. They seem to look at thyroid in a broader light.

    By the way, syntroid NEVER helped me. I am hoping this med will. HOpe this info helps.
  11. Plantscaper

    Plantscaper New Member

    Do you know if there is a test for T/3 or do they go by just the symptoms of not having an effective treatment of hypothyroidism? is it a subjective call, in other words? and therefore, are given some supplementary T/3 to see how it treats the problem.
  12. kgg

    kgg New Member

    He did not run any tests. He looked at old tests from a previous physician. My Free T3 was low normal. And he took in consideration my symptoms. Imagine, a doctor that treats the patient not the lab values! Please forgive my sarcasm. . .
    I plan on reading the book he suggested, so I can understand it better. I know some docs look at the ratios between some of the thyroid tests. All I know is I hope it helps. Tired of being tired, cold, shedding and dry.
  13. marta

    marta New Member

    I've been taking thyroid med since having thryroiditis ten years ago. I began with Synthroid but switched to Armour Thyroid about a year ago. I do believe it helps my fogginess in general, but it sure wasn't a "cure".

    The doctor recently had me try to increase the 60 mgs dosage by 1/4 and I could tell it was too much within two days.

    I think thyroid meds must be a part of an overall treatment.

  14. palmtree

    palmtree New Member

    I just wanted to thank everyone for their replies and suggestions!!!!
  15. gcalex

    gcalex New Member

    My understanding based on a couple of discussions with a very knowledgeable endocrinologist is that measurements of T3 are not really that reliable because what is really at issue is the amount in the cells. There is also a pretty good discussion of T4 and T3 in Dr. Teitlebaum's book.
  16. g868

    g868 New Member

    do a search on wilsons syndrome or go to wilsonsyndrome dot com..very good info on hypothyroidism
  17. g868

    g868 New Member

    the t-3 sr medication kgg is referring to is the same medication my doc is currently giving me for hypothyroidism(wilsons syndrome) doctor diagnosed me not by a test but by a constant low body temp..he said that tests can come back normal and a patient can still have hypothyroidism..its all about the body temperature for an accurate diagnosis