How do you loose the fear?

Discussion in 'Fibromyalgia Main Forum' started by lindafl, Nov 13, 2002.

  1. lindafl

    lindafl New Member

    Does anyone else fear going to the doctor and sit suffering in pain in pain year after year after year because you have been made to feel like you are worthless as a person by doctors. Since I was in highschool I have had FMS. It wasn't offically diagnosed till 89.To this day I am still being told that I can't hurt as much as I say I do, and that I am a drug addict looking for a fix and they will be damned if they will give it to me, that it's all in my head I'm looking for attention and I need a shrink. I have been told this for so many years I now have panic attacks thinking about going to a doctor to ask for relief. Those who have prescribed meds for me wouldn't change them when I told them they didn't work. One doctor really did try and was starting to to help me but then we moved from Ohio to Fl. When we moved and I tried to find help down here it started all over again. The doctors down here took me off the med's that were starting to work and put me back on the med's that are like taking candy. I now can't seem to stand up for myself as the doctors have beaten me so far down I just suffer in silence. I have been to shrinks and to pain management consuling. My pain management counsoler told me there was very little she could teach me as over the years I have learned to cope on my own all she could teach me. How do you get the doctors to realize no one wants to hurt this much just to get attention but no one wants to be belittled either. I need help please
  2. lindafl

    lindafl New Member

    Does anyone else fear going to the doctor and sit suffering in pain in pain year after year after year because you have been made to feel like you are worthless as a person by doctors. Since I was in highschool I have had FMS. It wasn't offically diagnosed till 89.To this day I am still being told that I can't hurt as much as I say I do, and that I am a drug addict looking for a fix and they will be damned if they will give it to me, that it's all in my head I'm looking for attention and I need a shrink. I have been told this for so many years I now have panic attacks thinking about going to a doctor to ask for relief. Those who have prescribed meds for me wouldn't change them when I told them they didn't work. One doctor really did try and was starting to to help me but then we moved from Ohio to Fl. When we moved and I tried to find help down here it started all over again. The doctors down here took me off the med's that were starting to work and put me back on the med's that are like taking candy. I now can't seem to stand up for myself as the doctors have beaten me so far down I just suffer in silence. I have been to shrinks and to pain management consuling. My pain management counsoler told me there was very little she could teach me as over the years I have learned to cope on my own all she could teach me. How do you get the doctors to realize no one wants to hurt this much just to get attention but no one wants to be belittled either. I need help please
  3. clueless

    clueless New Member

    Yes, I have felt this way and I grew up in the old school where you almost revered the doctor. You would believe everything they said and would`nt think of disagreeing with them. I no longer feel that way and have lost my confidence in most Drs. but there are those out there who will not put you down. They keep telling me that and I have a pain specialist down here in Florida who put me on drugs that helped my pain. My doctor at home (N.Y. state )does`nt believe in fibro. but he continued with the pain meds. I was given down here and who sent me to a rheumatologist who treats fibro. If you have`nt seen a rheumatologist or a pain specialist( not management) that would be the way I would go. My best to you and I hope you find a Dr. who will listen to you. Speak up for yourself--You`re the one in pain + let them know it!!! You can`t go on in pain with no help. My prayers to you!
  4. Shirl

    Shirl New Member

    Welcome to our world. So many of us have been in the same place you are at now.

    Like Clueless said, you stand up for yourself, and don't let anyone beat you down! They can't feel this pain, so they don't want to admit it exist I guess.

    I wish you the best, and hope you find a good doctor.

    If you will state which area in Florida you are in, maybe someone here can recommend a doctor for you.

    Again, welcome to the board.

    Shalom, Shirl
  5. lindafl

    lindafl New Member

    Thank you for the replies. I'm in Lakeland Fl.
    I have been beaten so far down by the doctors and the Fms it's as though emotionally I nothing left to fight with. The doctors can and do make you feel so small it's as though you are lower than a snakes belly and it's hard to find your way back up. It's sad to say but the FMS is easier to fight than the doctors. The physical pain of the FMS is easier to deal with than the emotional pain the doctors cause. I have been to Rhuematoligist and there answer is to give me the meds that I keep telling them do not help. They then reply that they do not like to or don't give narcotics to FMS patients for pain because they do not help. No one said I'm looking for narcotics just the right combo of any drugs that might help not the same ones I have tried and know don't help.It's bad enough you have to battle this DD but to have to battle the doctors who are suppose to help you is unforgivable.
  6. teach6

    teach6 New Member

    I just checked the Co-Cure Good Docs list for you and found a rheumy listed there. These docs are put on the list by other patients who have had good experiences with them. I sure hope this one works for you.

    I would suggest that you write down everything so you don't forget, or lose your courage when you get there. If possible take someone along with you who will help you say what you need to say to the doc.

    Lakeland, FL
    Edward J Pisko, M.D., Rheumatology
    Watson Clinic
    1600 Lakeland Hills Blvd.
    Lakeland, FL 33805
    (941) 680-7000
    (FMS. "He really helped a lot and was so sweet and compassionate

    Sure sounds good to me! Let us know how it works out.

    Barbara
  7. Shirl

    Shirl New Member

    I hope you get to see the doctor recommended, he does sound like a good guy!

    Shalom, Shirl
  8. BonBons

    BonBons New Member

    Linda - I am still having problems with docs and have had exactly the same experiences. One thing I did learn is don't stick with the same person! I have always valued loyalty but my doctor of 9 years kept shining me on. Finally I realized he didn't get it and found a new one. I've recently moved to Florida myself and now need to find another doctor again! But I do have a good recommendation and will use it as soon as we have health insurance again. I always have that fear, too, but I have found that Valerian or xanax (if they'll give it to you) really helped. I am basically a fearful person and even had fear when all was right in my world! I wish you the very best and lots of love....BonBons
  9. teach6

    teach6 New Member

    bumping again for Linda.

    Barbara
  10. kadywill

    kadywill New Member

    and I, for one, have had to become a real bitch with them! If I don't speak up, they will not treat me effectively. I am fortunate to be a nurse as I feel like I am treated with a little more respect from SOME of the docs I work with! The ones who don't know me and see me walk in with my big old black three ring binder notebook full of lab results and histories look at me and just roll their eyes. Oh, and I ALWAYS ask for copies of ALL my labs and x-rays!!!!! This is my right! Be firm, girl. They are not God!!!!!!

    Love and best wishes,
    Kady
  11. Kathryn

    Kathryn New Member

    The child who is treating me tried this tactic about 5 years ago. I threw an absolute hissy fit in his office and he sent me to a specialist. Lo & behold, the spec found a fracture that Junior hadn't found. Of course by then it required surgery to repair. I actually get along quite well with him now, and he actually listens to what I have to say. He freely admits that he knows little about fibro, but I am convinced he is trying to learn. Sometimes a little shaking up can be good for things other than a bottle of medicine.
    Kathryn
  12. LauraLea

    LauraLea New Member

    Linda,
    I didn't read the rest of the replys, but have you asked your old doctor who was helping you to send a letter to your new doctor? Just a thougt I understand many of us have fired doctors.

    Drug addict sorry it just makes me sick. If they would live a week with our pain they wouldn't think twice about taking something to relieve the pain.
  13. toots2

    toots2 New Member

    Try and find a good pain specialist in your area who will help you with your meds. After years of trying to find a dr. who cared, I found a pain specialist/anesthesiologist and have been seeing him for years. Just a suggestion and hope this helps. Toots
  14. klutzo

    klutzo New Member

    I live about an hour west of you, but all the way over here I have heard raves about that Watson Clinic. I have had a couple of people tell me they go all the way over there to get their FMS treated. Let us know how it goes if you see the recommended doctor there.
    Klutzo