Discussion in 'Lyme Disease Archives' started by Bunchy, May 22, 2008.

  1. Bunchy

    Bunchy New Member

    Hi all,

    I had to take a short course of Flagyl for an infection and I am three days into it.

    It could be coincidence but I've felt better than I have in a long while the last couple of days.

    I had thought if this continued I might try to see a LLMD (expensive and rare in the UK) to see if I could get a longer course of antibiotics.

    However I am going to have to stop them (other infection gone anyway) because my stomach has swelled up like a balloon and I feel very nauseous and have slight diarrhoea. There is NO WAY that I could take these for more than a few days.

    I am taking a good probiotic by the way.

    Love Bunchy x
  2. Bunchy

    Bunchy New Member

    I've stopped the Flagyl - can't take it - I was on 500mg twice a day for a slight UTI - way too much for me to handle.

    I haven't got a LLMD - in the UK I'm not even sure they really exist. I'm trying to find one.

    My own doctor (GP) is clueless on CFS/FM/MCS/Lyme. They know nothing about these conditions here and only offer Graded Exercise, CBT and antidepressants as do all the "specialists" I have seen.

    I just wish I could come to the US and see a "real" doctor.

    Not sure what to do now.

    Love Bunchy x
  3. NicolaG2

    NicolaG2 New Member

    have you seen AW in the north west? I've had ME for 4 years with a suspicion of lyme for the last year. Saw this doc in April who does live blood analysis. Considered one of the top ME/lyme docs in UK. He found all sorts of stuff in my blood that shouldn't be there that confirmed lyme, cpn, other parasites etc. I had previously tested negative on labs for lyme and cpn.

    I've been on abx for 10 days now -beginning of the long journey on them - and after a small herx on day 3 am feeling better then I have felt since I got sick.

    I knew I had lyme and other infections, but couldn't get docs to test for them apart from a couple of usual ones. I will add here that until 6 months ago I lived in the USA and was seeing specialists there.

    We know our bodies and I have known for years that I had infections going on. I would recommend anyone to see him simply for the blood analysis. I have real hope for the future as I now know my true infection collection. I got more answers in 1 visit that cost 150 gbp (plus my airfare) then the over $15,000 Ive spent on docs in the US in the last 4 years.

    After the initial consultation he will do follow up visits by phone as he has many many patients from far away.

    [This Message was Edited on 05/31/2008]
  4. buttercakes

    buttercakes New Member

    I tried taking if for about 5-6 days, my stomach could not tolerate it. All the antibiotics my llmd has had me on are hard on me,but not as bad as flagyl. Sandie
  5. Bunchy

    Bunchy New Member

    Thanks for the replies.

    I have been on good probiotics for years and even though I stopped the Flagyl over a week ago, my stomach is still suffering.

    Diflucan is for Candida by the way.

    Nicola - I did have a tel consultation with AW once but found him to be very short (I did not get the full half hour I paid for) and he really gave me a lecture about Lyme disease and didn't "discuss" my illness at all.

    I did try Samento as he suggested but it gave me insomnia and constipation at very low doses.

    I have been trying Banderol with Burbur or Milk Thistle instead on and off since Christmas and whilst I thought I had made some slight progress I have not felt well at all more recently.

    I'm ready to give up spending money on all these supplements and just stick with my probiotics, milk thistle and Magnesium which I at least know help a bit.

    Hope you have better luck all of you.

    Love Bunchy x