How do you rate your FMS care?

Discussion in 'Fibromyalgia Main Forum' started by JohnBee, Dec 31, 2005.

  1. JohnBee

    JohnBee New Member

    Just wonder how the care I get for FM at my hmo wonder if I should complain. Dx'd with FM in August. Got 1 visit w/ rheumy Dr. who Dx'd me. Any follow up care/questions has to go thru my primary Dr., who knows very little about FM. Mental Health Dr. rx's anything I ask for (Lyica, Klonopin, sleep meds), but cannot get any dialog, advice, other than to take tricyclics and SAM-E.
    What do you think? John Bee
  2. hopeful4

    hopeful4 New Member

    Hi John,
    I fully sympathize with your situation. Whether at an HMO or elsewhere where a Dr. is only treating some of the symptoms and not getting to the root cause, this is, in my opinion, a waste. I wasted 5.5 years going from pillar to post looking for answers. My life, and yours, are worth way more than that!

    On top of that, you are having problems communicating with your Dr. It could be his/her personality, or it could be that they really don't know much about FMS and are just protecting themselves!

    Be that as it may, I made a decision to find treatment that would be comprehensive, utilizing the most current research and knowledge, with thorough testing of possible underlying causes. Treatment that would respect me as a person, and where I could communicate respectfully with my doctor. Treatment that would integrate western and complementary approaches.

    I based this decision on my bout with breast cancer. When I got DX w/breast cancer I did NOT want to see a local, general practitioner (I live in a small city). I wanted the very best, highly qualified, doctors and center that were specialists in breast cancer. Should I want something less than that for the CFIDS/FM that has disabled me for years?

    After much research I found the Fibromyalgia and Fatigue Centers, which many on this board have posted their experiences about. They did the most thorough assessment and lab testing I've ever had. They found many underlying causes of my illness including very low hormone levels, hypothyroid, echovirus, mycoplasma, systemic candida, bottomed out NK cells, etc. Most recently they uncovered the root cause of this mess: Lyme Disease. Without this knowledge, I would remain a sick puppy. With this knowledge, I can be treated.

    So, my friend, I just share this story as an illustration of what I believe it takes to restore our health: a comprehensive program of testing and assessment by a highly knowledgeable, skilled doctor, utilizing the most current research and treatment options.

    I wish you well on your road to healing,
    [This Message was Edited on 12/31/2005]
  3. hopeful4

    hopeful4 New Member

    Bump for JOHNbEE
  4. Sandyz

    Sandyz New Member

    Unless you are going to a Fm or CFS specialist, they are usually a waste of time. They know little about it and don`t seem to care to understand it. Many I have dealt with think it is still depression or stress. Its very hurtful and frustrating. I have gone to a internal doctor, 2 rhematologist, and numerous general practice doctors. Most of them didn`t believe in this. Its sad but its the way things are.

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