How do you tell your family doctor?

Discussion in 'Fibromyalgia Main Forum' started by sugar_crystal, Feb 3, 2003.

  1. sugar_crystal

    sugar_crystal New Member

    I have gone to a DO (Family Practice) for several years who does not believe in FMS and would have a heart attack if he knew I was seeing a pain specialist and am on pain pills. I only see him for the occasional cold. How do you tell your family doctor when he would disapprove? (Especially if he has been a friend of yours for a long time)
    I've evidently had the syndrome since I was young but it was only given a name this past July.[This Message was Edited on 02/04/2003]
  2. sugar_crystal

    sugar_crystal New Member

    I'm a retired (unwillingly) RN so I can keep up with my meds and I never take anything without researching it first. I'm just trying to get over the guilt of taking pills at all..premarin, provera, one blood pressure pill, Prevacid and now the Oxycontin.

    I guess I ignored my problems for so long that I thought nurses should be immune. I'm just going to have to rethink all of this...I feel like a "drug addict" even though I know the difference...I would never take even a Tylenol ever again if I didn't have to, but it is so wonderful to be with less pain than I have had for years and can go on walks again.

    This week is a downer because my husband was called to active duty overseas again...going on 29 years..but there are some things that need to be resolved. It's just that the stress kicked in the headaches again.

    But thanks...I'm glad I started writing...I've been reading messages for a while but never had the nerve to ask a question.

    PS How do I get rid of the edit/delete sign next to my name? and what does "Bump" mean?[This Message was Edited on 02/04/2003]
  3. sugar_crystal

    sugar_crystal New Member

    Also very young. I have two sons about your age. My husband should be somewhere in your part of the world. Big shock. We're in Houston, where I had to turn on the air conditioner today and he said it's snowing where he is. Don't get much of that here. He's in the military, so another lonely six months. I guess that's why I started writing. I'm a night person anyway (was a night nurse for 25 years) so this takes my mind off the fact that I can't sleep.

    Thanks for your help and understanding. As I said as a nurse I didn't expect to fall apart myself, but I had to finally give in and admit there was a problem (several actually) I did fill out the bio so you know a little about me. I'm old so there's a lot to tell. Keep in touch.
    I'll be watching for you.

    Sorry if I'm repeating information about myself. I thought before I knew what brain fog was that I had early Alzheimer's. Thank goodness it's just all in my head. :-D

    [This Message was Edited on 02/04/2003]
  4. Mikie

    Mikie Moderator

    Our family docs need to know everything we are taking and the specialists we are seeing. This may actually help this stubborn man to get with it and realize that our illnesses do exist. He's going to have to face it some time or other and the sooner, the better. He undoubtedly has other patients with it who are not getting the treatment they need and who do not have the medical background that you do to help themselves.

    Love, Mikie
  5. kadywill

    kadywill New Member

    You and I have a lot in common!!! We are close to the same age, have FMS and are nurses! Once a nurse, always a nurse!
    I understand how hard it was to live in pain while taking care of all those around us. I also understand the glory of finally putting a name on the demon possessing us for most of our lives. And finally finding a "substance" such as Oxycontin that allows us to live a near-normal life is unbelievable, isn't it?
    I've been out of work since November 10, 2002, and I really didn't think I could possibly work again. I'm on short-term disability right now and have successfully begged my D. O. N. to extend my leave of absence. I've had an MRI that showed some degenerative damage, spinal stenosis, bulging discs and joint arthropathy and I have applied for SSDI for those diagnoses, but since starting PT last week, I have learned that most people my age have these spinal problems and that most of my pain is from my Fibro. instead of anything the MRI reported. I see a Rheumatologist and have recently seen a Neurologist and they're going to work together to make sure that my pain is managed adequately. Right now I'm on Prednisone for another problem dealing with my immune system dysfunction and I feel fine!!!! For the first time in forever I woke up pain-free, but between the steroids, opiods, muscle relaxants, anti-inflammatories and rest and PT, I'm not at all surprised!!
    I am glad you've found some relief and I hope that we both can go back to nursing in some way. Nursing is more than a career! I NEED to be needed and I love what I do. I work in longterm care on 7-3 shift.
    I am so sorry about your husband having to leave. I cannot imagine that. I have three sons and a daughter (25,26,27 and 28) and two granddaughters (7 and 8) and a grandson, age 3. I, too, have cats; Gidget, Gadget, Gizmo, Gigi and George. The first three are housekitties and the last two guard the outside of the house.
    I hope you enjoy this board. You'll find ways to nurture others, get support, relieve loneliness and boredom and gain knowledge from many others who understand how you're feeling. You can take what you need here and disregard the rest. There are occasional arguments and squabbles, just like at home! I come and go as I please and I drop in to lurk daily.
    Welcome!! Enjoy!! I see Sandy, another nurse and friend wrote you, too! I've met friends here and so will you!!
    Love,
    Kady
    [This Message was Edited on 02/04/2003]
  6. LauraLea

    LauraLea New Member

    You need to tell him or change doctor's. Med interactions can lead to many side-effects or even worse.

    I know you guys are friends, and as a friend he should be able to accept this or at least understand your choice to seek other medical help.

    Hard decision but keep in mind this is YOUR health and he needs to either be made aware of it if you decide you want him as your family doctor..
  7. sugar_crystal

    sugar_crystal New Member

    It's wonderful to meet both of you. How do you direct a post to a person without being at the end of a long line and what does "Bump" mean?

    I guess what my main question is, "What is it about nurses and cats, anyway?" I've read your profiles and all three of us have cats, as in more than one.

    I have enjoyed talking to everyone and especially would like to know how many nurses have this (I call it a "thing")? I'm still not used to the idea that I have anything at all except menopause...that made everything SO much worse that I couldn't ignore it any more. That seems to be a pattern with women with FMS.

    Now, if I can just get past the guilt of taking pain pills after lecturing my sons for over 20 years, I'll be able to pull it all together. But we're getting a cold front in Houston...if you can believe that..it was 82 degrees yesterday and my legs and shoulders hurt so bad tonight that it's as if I took nothing at all. Is that common?

    Thanks for the caring and conversation,
    Crystal
  8. pam_d

    pam_d New Member

    Tough question when the doctor is a friend also.....

    You might say, "I respect the fact that you don't agree with me about this, but I am certain that the diagnosis of FM is correct for me, so I need to take care of that part of my healthcare by seeing Dr. So-and-So, and I do feel that his guidance & recommendations have helped me. But I still rely very much on your advice & help for the rest of my healthcare."

    If you see your DO for something routine (like a sore throat) other than mentioning meds you are on, it shouldn't probably be a concern. I have said things to my new wonderful gynecologist like, "I have FM; I'm just letting you know that so that you are aware of it, but we don't need to discuss it unless it directly affects something gynecological for me." I didn't dwell on it, because it really wasn't something that impacted what I was seeing him for. Same for some other doctors I see. Of course, your DO being your primary doctor, you should keep him apprised about your healthcare, but you should be firm about the fact that you need to take care of your dx'd FM.

    I know this is a tricky situation, so I hope it goes OK for you, but you are the one in control (if this doc is truly a friend, hopefully he will be content to just 'agree to disagree" on this issue).

    Good luck,
    Pam
  9. Fibromiester

    Fibromiester New Member

    Health Care Too!

    DID Work At: Lab. Procedures, Radiology, Surgical Nurse,
    8-6 shift, some Emergencies, some 24hr. Intensive Care Situations...etc. And have 3 Cats!!
    Had to Quit- FM/MFP/CFS
    Was Vet. Tech!
    But, Married to
    a Veterinarian!
    so STILL help out with Occasional Surgery, some Emergencies,
    or 24hr. Intensive Care Situations!! :)
    Fibromiester
  10. starstella

    starstella New Member

    if someone has already discussed this point on this thread. If you were hospitalized suddenly, you would want your family doc to be aware of your meds so that you would receive the appropriate med in the hospital. I would sure hate to have a severe reaction to a sudden stop of a regular med. Symptoms due to medication withdrawl could be confusing to your treating doc also.