How important is it to see a Rheumy??

Discussion in 'Fibromyalgia Main Forum' started by Highlandrose, Dec 13, 2005.

  1. Highlandrose

    Highlandrose New Member

    I've seen one Rhuematologist since I was diagnosed. Should I see one on a regular basis? The one I saw was useless. Spent 5 mins tops with me, prescribed an anti-inflamatory and told me I didn't need to see him again. GRRRRRRR

    I see my pcp, a pain specialist and a neurologist regularly and they take care of everything I need. Do I really need to add a Rheumy?

    Thanks bunches,

  2. MamaR

    MamaR New Member

    I see a Rhuemy, but it sounds like yours isn't worth your time and $$$.

    I would say...if you are getting what you need from other docs at this time...just use them. I have found that the main thing is finding a doc that WANTS to help us! If you need a rhuemy later find a new one.

    Good luck!
  3. libra55

    libra55 New Member

    I got my FM diagnosis from a rheumy, but other than that he's never done anything for me. Go figure.

  4. jbennett2

    jbennett2 New Member

    If you have a good PCP who will monitor your treatment, you don't need to see a rheumy. They make the initial diagnosis - then want to see no more of you!
  5. justlooking

    justlooking New Member

    I see my PCP every 3 months and a pain DR every month.

    I went to a Rheumy a couple of time but it was worthless for any type of care. He did re-diagnose me (had been diagnosed by my PCP originally) which was needed for my SSDI claim. I didn't tell him I had filed for SSDI or what I had been diagnosed with before I saw him, as I wanted a clean diagnosis and no pre-existing notions on his part about me.
    His report was very thorough and his tests, notes and diagnosis were vital to my SSDI claim. However, after a couple of visits it was clear his version of care was several different kinds of Anti-Depressants and a I don't like FM patients attitude. I eventually stopped going to him, went back to my PCP and then began going to a pain clinic which has been great with me.

    Find who works best for you and stick with them. Its hard to find a good Dr to work with you!

  6. Greenbean7

    Greenbean7 New Member

    Mine did nothing for me. GP and Neuro did a lot for me and I still see them.

    Rhuemy just said, yup, you have fibro. Thanks doc, I knew that!

  7. getfitat40

    getfitat40 New Member

    I think it really depends on the doctor - my PCP diagnosed me with FMS - with my help - but sent me to a Rhuemy for a firm diagnosis. I have seen 3 different Rheumy's and finally found one that really gets FMS. He is now acting as my PCP too so I only have to see one doctor except for a gynie.

    This doc is one of the top docs in the country and when I was doing my research, I found that he is quite active with FMS's support groups and research.

    I think that it is key to find a doctor - any type - that communicates with you and has a good staff. If your other docs are managing your health with you, I would save the money and time. Good Luck!
  8. tansy

    tansy New Member

    If a few of rheumy's I saw over the years had done their job properly, I would not have been in so much pain or have been so disabled. The last one (same hospital and dept where they made me worse) said she would not be seeing me again. My GP was surprised in light of MRI findings, I had to wait decades to have what should have been blantanly obvious checked out. Just goes to show how prejudice (due to my Dx) can lead to medical neglect.

    If the others are providing everything you need then you don't need a rheumy unless something within their speciality warrants investigations.

    love, Tansy
    [This Message was Edited on 12/13/2005]
  9. fivesue

    fivesue New Member

    He dx my FM which was and is no surprise, but aside from that, he is useless and I will not go again to see him. In our town, he and his partner are the only act around, so I will just hang in with my PCP who is a wonderful doctor who listens and cares.

    But the rheumy? Worthless to improving my health.

  10. snooker11

    snooker11 New Member

    i agree that rheumyies are pretty much useless for ongoing treatment of FM. They might be good to diagnose you and rule out other rheumatic conditions, but that's about it. They could also advise with your GP on treatments but seeing them on a regular basis really won't help much because there's not much they do. Better to stick with the neurologist or pain specialist.
  11. Highlandrose

    Highlandrose New Member

    Looks like I'm not the only one who thinks Rheumy's are about as useful as a hole in the ground. The one I saw didn't even diagnose my FM...he just said I've got arthritis (well DUH!! I spent 17yrs riding & showing horses-hunters and jumpers. You can imagine what that'll do to It was my PCP who gave me the prelimiary diagnosis of FM and then kept going with tests along with my good Neuro. It was a combined diagnosis between them.

    Guess I'll just keep saving the money and time and stick with the 3 I've got.

    Love and hugs to all,

  12. Empower

    Empower New Member

    You need a rheumy to rule out other diseases such as RA or Polymyalgia Rheumatica. If you have already done that, that is fine.

    SOME rheumy's (by no means all of them) are a little more up on meds for FMS.

    However, my PCP did the research and came up with the same treatment plan that my rheumy did (without knowing it)
  13. DFL

    DFL New Member

    of seeing different drs. including several neuro. ,I seen a rhemy he checked me over ,x-rayed, researched my file and immediately diagnosed me with fibro, put me on 30mg, of cymbalta rescheluded me in one month and uped me to 60mg. and told me he had done about all he could do when my family dr. could write out my same meds.So now that is where all my meds come from.
  14. jake123

    jake123 New Member

    Otherwise ........pffffftt! I believe the word used was useless and I agree. I was so happy to see questionnaires about the doctors on the counter when I was checking out after my bone density test. I couldn't wait to fill it out.
    What do you want from the doctor? I want my pain to be acknowledged and treated. It does not require heavy drugs. It is ruining my working and social life and is not good for my sex life.

    What can we do to correct any problems? I don't know. I am probably going to change doctors.
  15. springrose22

    springrose22 New Member

    I saw two rheumies, both were completely useless, and one was rude on top of that. Neither of them knew as much about FM and CFS as I do. But, I was also advised that it would be beneficial to have a confirmation of diagnosis by a rheumy for my disability appeal. So, that pretty much makes it a very easy job for the rheumy, right? Someone else has already made a diagnosis, and all the rheumy has to do is confirm it. And, then, the rheumy gets to tell you that there is nothing further that can be done for you, but she would be quite happy to write you a prescription for sleep and depression. Well, I got the confirmation, won the disability appeal, and hopefully won't have to see any rheumies again! Marie

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