how long before a diagnosis? (kind of long, sorry)

Discussion in 'Fibromyalgia Main Forum' started by jlcrafter, Dec 17, 2006.

  1. jlcrafter

    jlcrafter New Member

    I'm so glad I found this site. I have already found useful information. I was diagnosed with fibro 10 years ago. Then a year ago I started getting sicker and sicker. I started by going to my regular dr, she sent me for blood work, and it snowballed after that. I was finally sent to a hematologist because my platelet count was high. After a bazillion blood tests, bone marrow biopsies and scans and x-rays the hem decided that I should be on chemo, since I had a blood disease. So for 4 months I was on chemo. And then I saw a specialist and I don't have a blood disease. And back to square one. Everyone is in agreement that I have fibro, but other than that, they don't have a clue. So, I'm not one to just sit back and let the drs. practice on me without some input, so I began to do research. I took all of my symptoms in a list to my rheumatologist, and she agreed I have fibro, but what else she just didn't know. I began searching the internet and ended up here. When I compare all of my symptoms with those of chronic fatigue, why there I am!
    So, my question is...how long does it take to get a diagnosis of chronic fatigue and who generally makes it? I'm so tired, literally, of being sick and tired that I'm not sure I can hang on too much longer. I know from what I've read that there's no cure for cfs, like fm, but I think just knowing for sure what it is would be such a relief. Any thoughts or ideas would be appreciated.

    Thanks,
    jl
  2. LongStruggle

    LongStruggle Guest

    You asked about who generally makes the diagnosis? What I have learned is that it can be just about any doctor that has knowledge in the area. Finding one of these,however, is quite difficult. Check out a post I started about 1-2 weeks ago with that very question. I actually think it is easier if you have FM because rheumatologists are the typical ones from what I can see. I only have CFS. I'm currently trying to get an appt with an infectious disase doctor that I heard has some knowledge of CFS.