How many also have rosacea?

Discussion in 'Fibromyalgia Main Forum' started by pearls, Apr 21, 2009.

  1. pearls

    pearls New Member

    Now I've been diagnosed with rosacea, which is also involving my eyes with the rosacea subsets of blepharitis and karatitis. My face looks like it has developed a "healthy glow," but it burns a lot. My eyes are sensitive to light, very red at times, and subject to blurriness. The blurriness is a result of dry spots on the corneas.

    I've had problems with my eyes before, but this is the first time the diagnosis is rosacea. I wonder how many people with fibromyalgia and/or chronic fatigue/ME also have rosacea?

    What next?
    -Pearl S.
  2. quanked

    quanked Member

    I have it. It is under control right now. I do not get flares to often anymore. I was diagnosed at least 20 yrs ago. I have cfs and fm along with other stuff.
  3. outofstep

    outofstep Member

    have it on face but also under control-am wondering if anyone can please tell me what the symptoms are for rosacea in eyes and what kind of dr. would be able to diagnosis that? Thanks!
  4. pearls

    pearls New Member

    Ocular rosacea may involve redness in or around the eyes, puffiness of the eyelids, itchiness, blurriness, a feeling of grit, lots of "sand," an accumulation of "stuff" on the eyelids during the night, burning and light sensitivity. Ocular rosacea is a subset of rosacea, and I think most people with it would also have symptoms in the skin of the face, but I'm not sure about that.

    I have read that flushing causes flares of rosacea, but that even if the face flushes, it might not actually look like it on the surface. Flushing can occur even without surface reddening. Most people who look at me would not know I have rosacea because I am a pale person who now has a little color.

    I was just wondering if there's something about fibromyalgia that might possibly make a person more susceptible to rosacea, particularly ocular rosacea, since people with fibromyalgia often get some of the same symptoms because of their fibromyalgia.

    Also, I've had this feeling of heat in other parts of my body after the onset of my fibromyalgia, which I've had now for about nine years. My right thigh used to get very hot and sensitive, and my feet got so hot that I'd try to wash them at mid-morning break only to find that when I put my shoes back on, the misery started right back up again.

    My optometrist diagnosed my rosacea, which was seconded by my pain specialist. The optometrist's wife has rosacea, including ocular rosacea, so he would recognize it.

    -Pearl S.

  5. outofstep

    outofstep Member

    Thanks very much for the info-will have to get it checked out.

    I've read that a lot of people w/ CFS also have rosacea but not sure re: FM & rosacea. I've been diagnosed w/ both CFS & FM so it's hard to tell what's causing what. These illnesses cause so many weird symptoms :(
  6. valliali

    valliali New Member

    are you guys sure that you have rosacea? i mean, i know that flushing and burning is the main symptom, but i too, have severe facial flushing and burning, but have been repeatedly told it is NOT rosacea. even though all my symptoms sound like it. the reason is because 1. it came on the same time that my illness did (i have had no history whatsoever of flushing/blushing and then it was like ten hour burning red flushes within a period of months) and 2. it is so much more controlled. my trigger is really only when i am cold (body temp low) and then becomes warm (in which case my body temp jumps like three degrees within minutes that a flush is induced).

    i live in cali, where it is now warm, so i have NO flushing at all. but over the winter, oh man. it's horrid. i feel like i have no help for it because doctors all think it's part of my illness, so won't treat the flushing, but it sure sounds like rosacea.

    has anyone else had similar battles?
  7. shelbo

    shelbo New Member

    I'm going through hell with it... :( I also have CFS and chemical sensitivity - I found skincare I could use plus a mineral makeup. However, the skincare I can use has been reformulated and I do not tolerate the updated versions! :( Mercifully, I still have a little left of the stuff I can use but I am having a hellish time finding replacements that keep my skin happy and don't cause a chemical sensitivity reaction. I also started to react to the mineral powder and can no longer wear it. This means I can't go out as my skin gets raw. My face is constantly red, sore, tight and tender. It dries out very quickly. I also suffer with ocular rosacea badly. I don't know whether it is related to these DDs... The rosacea pre-dated my other problems but is much worse now...
  8. pearls

    pearls New Member

    Yes, I do think my present symptoms are rosacea. I've read up on it and what I am experiencing fits. Before I was diagnosed with fibromyalgia, I experienced some problems with rash and overheating of my thigh and feet, but I think that was a different problem.

    The problems with my eyes have been building for several years, but it was only recently that my optometrist said I have rosacea. Since then, I've read up on it, and what I've been suffering with lately does seem to fit descriptions of the two types of ocular rosacea he said I have, plus burning and tightness in my face, along with some visibile flushing.

    I wonder if my eye problems were rosacea all along, though the redness just hadn't shown up yet? Also, I wonder if times in the past, after emotional upsets, when my face flushed and stayed that way for hours were early signs of it, as well?

    -Pearl S.

    [This Message was Edited on 04/23/2009]
  9. outofstep

    outofstep Member

    diagnosed mine
  10. kriskwon

    kriskwon New Member

    I've had FMS for almost 7 years now. A couple of months ago wjen I went for my regular doctor's appt., my cheeks were red. He asked me about it and I told him that it had been going on for about 2 months. He sent me to a Dermatologist and she did a biopsy on my cheek. She said that it looked like Rosacea, but something wasn't quite right.

    When the results came back, I did indeed have it, but also had a skin virus. I went through a process of antibiotics and cream. It's not too bad now and also comes and goes. I use all Eucerin or Aveeno products and wear mineral makeup. I'm 49.

    ps - was also tested for lupus for the 2nd time - just to make sure
  11. pearls

    pearls New Member

    When my face fllushes, it feels just like it did when I tried Niaspan (a prescription niacin-based drug) for cholesterol reduction. It also feels like I have a sunburn. As I said before, I've been diagnosed with rosacea.

    Pearl S.