How many docs does it take to make a disability claim?

Discussion in 'Fibromyalgia Main Forum' started by contessa, Sep 27, 2002.

  1. contessa

    contessa New Member

    My private disb ins won't give me funding based on the notes of my rheumatologist (20 weeks as of now) - kitty is watching the screen as I type. They did give me 6 days for the shrink from my initial anxiety attack brought on my inability to sleep. Shrink won't treat me now because he isn't familiar with fibro symptoms; I don't show any signs of anxiety or depressive disorder he can treat.

    Yes I am anxious and depressed but I guess I'm not 'crazy' enough for him.

    Now seeing rheumatologist neurologist/headache specialist: interist: surgeon: nurse practioner: next week start physical therapy. Will possibly be ading gastroenteroly and optomology to list. Have had 7 medical functions/proceedures done in past 10 days. Discovered in addition to fibro and arthritis, I also have diverticulitis, asthma, and migrain headaches. I won't give up on the ins claim because I need the money a lot to survive. Will be adding the new reports to my list of 'proofs'. I did receive a letter from rheumatalogist saying this problem is common with fibro. He also states in the letter that I am unable to perform most functions of my job. And I wonder why I'm depressed and anxious.

    Any one else have ideas or similiar experiences. I'm using my private disb case to test my likely hood of getting SSD.

    Thanks!
  2. contessa

    contessa New Member

    My private disb ins won't give me funding based on the notes of my rheumatologist (20 weeks as of now) - kitty is watching the screen as I type. They did give me 6 days for the shrink from my initial anxiety attack brought on my inability to sleep. Shrink won't treat me now because he isn't familiar with fibro symptoms; I don't show any signs of anxiety or depressive disorder he can treat.

    Yes I am anxious and depressed but I guess I'm not 'crazy' enough for him.

    Now seeing rheumatologist neurologist/headache specialist: interist: surgeon: nurse practioner: next week start physical therapy. Will possibly be ading gastroenteroly and optomology to list. Have had 7 medical functions/proceedures done in past 10 days. Discovered in addition to fibro and arthritis, I also have diverticulitis, asthma, and migrain headaches. I won't give up on the ins claim because I need the money a lot to survive. Will be adding the new reports to my list of 'proofs'. I did receive a letter from rheumatalogist saying this problem is common with fibro. He also states in the letter that I am unable to perform most functions of my job. And I wonder why I'm depressed and anxious.

    Any one else have ideas or similiar experiences. I'm using my private disb case to test my likely hood of getting SSD.

    Thanks!
  3. dd

    dd New Member

    Hi Contessa - I know how frustrated you must feel right now. I don't think that there is a majic number of doctors that you have to see in order for your disability claim to go thru. What you do NEED is a doctor that states that you are disabled and cannot work. I would say that it is better to at least have 2 doctors backing you with your case. What is so important when filing for disability is the wording that is used by the doctor and by you and family members when filling out all the paperwork. They pay really close attention to this. If you have a doctor that tells YOU that you are disabled you need to talk to this doctor and make it clear to him/her that they need to state that in their statement to SSD. The problem with doctors is that when they are faced with the paperwork they become wishy washy for some reason. This is one of the problems that I faced when I filed for SSD. I was approved the very first time, to my surprise. I had 3 main doctors that I was relying on to put down on paper what they had told me in person. I asked the nurse to call me when the doctors received the paperwork in their offices. When the paperwork arrived for the doctor to fill out I made an appointment witht that doctor to go over the paperwork with me right there. That way there was no backing down for them. Even though they all agreed that I could no longer work I wanted to make sure that their WORDS were STRONG and CONVINCING on paper. This is also the way that I handled the paperwork with my friends and family when they were filling out the questionaires. I did not want them to say "yes, she has changed in the past 5 years and does not do as much anymore". They had to say "I have seen Debbie go from a healthy person, able to do housework, take care of the kids and work full time to not being able to get out of bed because of severe pain". That is just one example. You have to be in charge of what people say because it is your disability at stake. I truly believe that it is all in the wording and how stongly stated it is. When I filled out my own personal questionaire there was only room for about 2 sentences for each question. I had about two paragraphs for each question that I felt needed them. I just wrote it down on another sheet of paper and attached it to the questionaire. I also called my case worker weekly and asked if she had everything or is she needed any additional information. Even though I knew she had all the paperwork, I still called every week so that she would remember my name. I was very polite each time but just did not want to be put at the bottom of the pile. I was appoved in 6 months.

    I hope that this has helped you some. I am sorry it is so long. I wish you the best of luck!

    Debbie
  4. teach6

    teach6 New Member

    First of all be sure to appeal their denial within the time frame they give you. My company gave me 60 days. I was at a real disadvantage because when I originally filed everyone thought my problems were related to an extremely low white blood cell count, which coincidentally occurred around the time I became unable to work.

    My disability rep is a big pain in the neck. She hears what she wants to hear and ignores the rest. She can also be downright rude to me. I now put everything in writing to her. If I have a phone conversation I followup with a letter and fax it to her. That way there are fewer misunderstandings.

    When i realized that my main problems were due to CFIDS/FM and Neurally Mediated Hypotension the company still denied my claim because I had no doctor who had given me the dx who had anything with which to back it up.

    My psychiatrist was treating me as best as he could while I spent two months finding a doc who whould give me a dx and work with me.

    I think the first doc I saw decided I was too complex a case for him to deal with because I had heard from others that he treated them successfully for FM.

    Getting LTD was easy. I filled out the forms and my new doc sent them reams of info from my files and I got it first try.

    I'm not really sure that getting private disability and SSDI are related, except that you need a doc's cooperation for both. I have hired an attorney to help with my SSDI claim because my cognitive problmes make it dificult and stressful for me to try to go it alone.

    Good luck to you.

    Barbara
  5. klutzo

    klutzo New Member

    The 2nd one just wrote that he agreed with the first one's opinion, which was 3 pages and listed all the things I cannot do that normals can do, as well as supplying the Admin. Law judge with the Amer. College of Rheumatology "Criteria for the Diagnosis of Fibromyalgia", since she correctly guessed that the judge had probably never heard of it.
    This was government SSDI though, not private. I have heard from several people who were trying for both, that the private always held out until the gov't made it's judgement, and then went by that.
    KLutzo
  6. contessa

    contessa New Member

    I finally emailed my employer's Human Services Director as well. Part of the problem is that the ins standards state my sales position as sedentary. That's the only verb they use to judge what I can or cannot do. HR replied they cannot get involved with my claim. PERIOD. Well - they determine what my job duties are. Like I sit there all day without moving. What about answering phones, typing, printing orders, working like a demon to meet mgts call criteria - where's the twisting, shoulder raising, neck bending, carpal tunnel producing activities.

    I thought I was asking my docs to make accurate notations of everything. I'm thinking someone in medical records took a shortcut with their written notes. I'm sending more records, plus the letter from my rheumatologist saying I am unable to perform most of my functions. Hope this combo works. I usually get it done but waiting for an energy day to deal with it all - whew! I'm getting into a major funk now - really hard to guess if this will ever get solved. No wonder they want us all to roll over and play dead. Tomorrow is another day.
  7. herblady

    herblady New Member

    it only took 2 for me. cindi
  8. tandy

    tandy New Member

    From the sounds of it-you should get the Disability! I really think you have enough proof to say your unable to work.It seems you have more ailments then I do,and I won my case.I did need a attorney though and I was denied the first time around.I got it after a appeal or something like that.I had to go before a judge to get approved......and be seen by one of "Their Drs."It was a long wait but...I did get it.Money is tight thats for sure,I only get a small amount a month.I would definitely earn much more if I were able to work~
    Best of luck to you,
    Tracey