How many Doctors it took to understand your condition?

Discussion in 'Fibromyalgia Main Forum' started by swollen, Jul 25, 2008.

  1. swollen

    swollen New Member

    It took me 4 doctors and they was very horrible and uncarering even made me cry when I did not have a diagnoses.I thought of suicide lots of times at that moment. then I had a Doctor who did understand but did not think that he could help me. and he transfer to another hospital then I found one that was kind and gentle and kept intouch with me and now I have to leave him,to meet a new one so unfair.
  2. justjanelle

    justjanelle New Member

    and 10 years to get my fibromyalgia diagnosis. And then 6 years later I found out I had Lyme Disease!

    It's hard to find a doctor that's a "keeper"...

    Best wishes,
  3. Janalynn

    Janalynn New Member

    I totally lucked out! For many years I went undiagnosed, but honestly don't blame anyone. My explanation to doctors was always something like "I have horrible leg aches, but that's just the way I am, I've had several x-rays etc. but..." So, I never insisted on further testing. Same with when I had nerve conductor tests that came back normal - I never pursued another 'answer' to my weird body symptoms.

    My gynecologist was the one who finally prescribed me pain meds the first time (he was really the only doc I saw) because I told him how bad my leg pain had gotten. Once the pain had become unbearable even with pain medication, I sought out a PCP. At that exact same time, I had gone through a month of severe arm pain. New doc immediately suspected fibro, sent me to rheumy for confirmaton.
    WONDERFUL man and doctor, but he doesn't treat. My new (at that time)PCP was wonderful and immediately started trying me on diff meds.

    I then sought out another rheum. about an hour away who was referred to me by another fibro person - I wanted another opinion, wanted to know the latest/greatest that was out there. Another GREAT man/doctor.

    So every doctor so far has been wonderful! -with the exception of the pain mgmt doc I saw only once and that's just cause she was 'weird'. LOL

    I haven't run into any 'non-believers'. I haven't run into any that won't prescribe what's needed. (except for the pain doc of all people!!)Not one has ever even remotedly conveyed a message of this being 'in my head' or the other things that I've read about on here.

    I do often wonder why I even go to the doctor though except for refills. I think at this point, we're just trying to 'manage'.

    For those who are struggling just to find a doctor who will give them the time of day, I'm so incredibly sorry. It just isn't right. Do NOT give up. There ARE good doctors out there.
  4. Honora88

    Honora88 Member

    It took me to go through 2 of them. The third one I paid out of pocket at FFC because I wanted someone who would listen.

    i'm on my 4th one, but I don't know if she thinks I am psychosomatic at this point.

    I'll probably have to switch again.
  5. tgeewiz

    tgeewiz Member

    I went through 20+ doctors -

    Neuro-Muscular Specialist
    Osteopathic doctor
    Infectious Disease
    Mayo Clinic

    I know I am leaving some out.

    Blessings to you.

  6. poets

    poets Member

    My original GP who I went to for over 30 years. And he passed away in October 06'.

    Now I'm back to square one. :eek:(