How many have more than the 18 tender points??

Discussion in 'Fibromyalgia Main Forum' started by VickyB, Mar 17, 2003.

  1. VickyB

    VickyB New Member

    I have pain in the ankles, hands, toes, top of feet, sides of neck, ears. I have pain in the 18 tender points plus a whole lot more, does that mean I don't have fms?? Does anyone else have tender points that are in the specific locations listed for fms- plus a whole lot more??
    Thanks, Vicky
  2. nogilroy

    nogilroy New Member

    hi vickyb the arthritis doc told me that i had 21 tender points when i was tested in 94 i should of asked what he ment but at the time i did not know what fm was so i was suprised to see your post this morning may be mad wolf or some one else will see this and give us anwser have a nice day
  3. VickyB

    VickyB New Member

    Thanks for the replys. The reason I asked about tender points is because I read the doctor will press on places that are not considered to be fibromyalgia tender points to check if you really have fms. So I was confused if you have more than what is on the chart, can you still have fms? I hope this makes sense....
    Thanks, Vicky
  4. teawah

    teawah New Member

    My whole body is a tender point and I definitely have FM. I don't think anyone truly thinks that the only places that are tender are the 18 mentioned. Those are meant to be a guideline and those who ONLY hurt in those spots are extremely lucky. I think most of us hurt in alot more than just those areas. For me it moves and rebounds. I never know where my bad spots are going to be at any given time.
  5. VickyB

    VickyB New Member

    I am glad and relieved that I am not the only one that has more than the 18 tender points. I guess I was needing validation. Thanks again.
  6. Mikie

    Mikie Moderator

    Every time my Pain Specialist would poke around, he would find new ones in addition to the "official" spots.

    Love, Mikie
  7. Bigfoot

    Bigfoot New Member

    Most of my "official" tender points hurt without being touched. I do have a lot of painful areas other than just the official tender points though.
  8. bluebirder

    bluebirder New Member

    I think all of us will at times (many more often than not) have additional areas of discomfort.There is such a thing as refered pain or of one area affecting another area. Like with my plantar fasciitis in the left foot causes me to change gait which in turn irritated the right hip etc. If I don't listen to my body and stop when I get foot cramps my knee becomes stressed and so and so on.

    Just swelling and discomfort in the lower back puts pressure on the nerves that feed to the big toe etc.

    Like the appt (first referal after Fibro diagnosis) with the Neurologist yest.....he said there is exhasperated difference in right and left sides but he feels it is more Rhumatology type of condition (in which he said Fibromyalgia is classified) and is reporting back to my Primary care physican that he recommends I be refered to over to Rhumatology for a complete Rhumatological exam. No sense in running tests like MRI etc again since I have had them in the past and they can be looked up to prove there was negative results.