How many of us have gone through this?

Discussion in 'Fibromyalgia Main Forum' started by Alyssa-Admin, Mar 17, 2015.

  1. Alyssa-Admin

    Alyssa-Admin Active Member

  2. loto

    loto Member

    I am the queen of not making plans in my family. I can't even plan something as simple as cooking supper. I hate that my family has to be missing out on the smallest things because of my fibro. Its not fair to them. I only hope that they TRY to understand how difficult it is for me.
    tammy50h likes this.
  3. Pepper21

    Pepper21 Member

    I missed five weddings in the last two years because I cannot promise family members that I will be there to eat the meal that they've paid for, and I don't want them resenting the fact that they could of invited someone else if the hall that they've hire for the after do, has a number limit on it.

    Also, my friends did stop asking me if I wanted to go out with them, often telling me what a great time they'd had the day after, or avoiding telling me that they'd gone out in order to excuse them from inviting me. They know I'm not well, they have seen me unable to do what they do, but they don't know what it's like to have this condition, I've had uncles call me lazy, I've had immediate family members tell me fibromyalgia doesn't exist. I have asked friends to please invite me, because that day I may feel well enough to go, but it's a hit and miss thing. Thankfully, I have a wonderful partner who suffers this condition to who I love spending time with and who I don't have to explain myself to, he has a great sense of humour when it comes to those who don't understand, or even want to understand this condition.
  4. tammy50h

    tammy50h Member

    I hear what you’re saying. I always get dinged on by my other family members. They say I don’t get out enough or I should go on a cruise with them or just dumb stuff! I have to do what my body tells me it feels it can do! I’m like you cause I can’t say if I’m going on any cruise in a year from now. Then I can’t get my money back. They don’t get it but regardless of anything, your friends and my family don’t have to get it! You do what you can do that you control. If they aren’t accepting then maybe they’re not true friends. True friends hang in and support you regardless.