How many on painkillers?

Discussion in 'Fibromyalgia Main Forum' started by kholmes, Aug 9, 2003.

  1. kholmes

    kholmes New Member

    How many of you with CFS are on painkillers?
    Ibuprofen doesn't seem to be enough for me anymore. If you are taking them, what kind?
    My doctor is reluctant to prescribe anything--sleep meds, etc...because of their addictive qualities. It's getting FRUSTRATING. Any suggestions for me?
  2. Shirl

    Shirl New Member

    As I said before, I do not have CFS, but FM. The pain with this can be excruciating. I do not take pain meds, as I am allergic to most of them in one way or the other.

    What I have gotten relief from is Pro Energy (Malic Acid and Magnesium Glycinate), and ZMA (zinc, magnesium and vitamin B-6) which the latter I take for deep sleep, but has also helped the spasms/pain of the FM. Also stopped the RLS entirely.

    The only thing that I can take for FM pain is Advil gel capsules OTC, along with a low dose of Xanax (.25mgs), if the pain is out of control. Otherwise I just use my supplements.

    Hopefully some of the CFS members can be of more help to you.

    Shalom, Shirl
  3. Wingingit

    Wingingit New Member

    I am currently taking Oxycontin, but still on a very low dose. It helps tame the pain for a couple of hours, but it seems to come roaring back within a few hours (it's supposed to be a 12 hr medication!).
    This was a last resort for me after 3 years of trying everything else (ie. anti-inflammatories, anti-depressants,muscle relaxants, sleep meds etc.).
    I think I will need to have my dosage increased (reluctantly)if I want to function at all normally, but it is the first med which has provided even temporary relief for me and for that I am thankful.
    I think most docs will want you to try many other options before prescribing opiods.
    I can certainly understand that the Ibuprophen is not enough to ease your pain. For months, my doc kept telling me to take more Tylenol, but I was taking the limit and it wasn't touching the pain. With perserverance, I convinced him that I did not want to take the opiods as much as he did not want to prescribe them, but needed them to have any quality of life at all.
    I hope you get the relief you need sooner than later.
    Nan
  4. teach6

    teach6 New Member

    This board serves people who have CFS and/or FM and many people do not understand that, especially when they are new. So I think some of the responses you are getting are about FM pain and not CFS pain.

    I have both, so it is difficult for me to say what pain is caused by what. I think most of my current pain is FM pain, since I seem to recall having some kind of joint pain, along with flu-like achiness from the CFS in the beginning.

    It took me months to get a dx because first my docs were on a wild goose chase due to a low white count that was totally unrelated to any of this, just happened at the same time. By the time I finally saw a doc who actually believed in CFS and FM and saw how bad off I was he needed to deal with other problems first before addressing the pain.

    I had taken in a list of the meds I was on at the time. One was Ultram, which is often used for moderate to severe FM pain. I had been prescribed one pill per day by my psychiatrist who was worried about the addiction possiblities. It wasn't until a month or so later that I looked at the med list typed by my doc and noticed it said Ultram, 1 pill 3-4 times daily, as needed.

    I called him immediately and asked if it would be better for me to be taking that than the 9 Aleve and one Ultram a day that I was currently taking. He said absolutely and then I asked for a new rx, which I got. That has made all the difference.

    I hope you are able to find a doc who will rx you something to help with your pain. Are you sure you don't have FM also? Many of us have both.

    Barbara
  5. Iggy_RN

    Iggy_RN New Member

    oxycontin for FM pain and DDD. It took months before I could get this type of treatment. I would try to find a pain doc referral if you are having trouble w/pain relief. Blessings, Iggy
  6. JaciBart

    JaciBart Member

    I take morphine long acting, morphine short acting for incidental pain & methadone short acting for incidental pain.

    My quality of life has improved 5000% since finding a doc who would treat me with the respect we deserve. I know my own body and I got so sick of being told "You need a psychiatrist" Stupid doctors think the depression is the problem, they don't get it. The pain came first, then the depression & not even wanting to live because of the excruciating pain.

    I am able to do most things that are important to me with the pain under control. I truly did not think life was worthwhile when I could not get my pain under control.

    Jaci
  7. greeneyes24

    greeneyes24 New Member

    I have CFS but am blessed to only have mild to moderate muscle pains and aches. I only need to take Panadol or nothing. I prefer to take nothing. But to pay off for the lack of pain, I have the most severe fatigue and awfull maliase that makes me unable to function at all and leaves me almost bedridden. I wish I could take some "fatigue killers".
  8. JP

    JP New Member

    I have been using pain medication for a few years now. It helps with my quality of living. I have so many symptoms and assorted medical conditions. I was given pain medication as part of my pain management for my back pain. However, I experience pain throughout my entire body. Right now I am using Norco, which is the same thing as Vicodin. I have tried many types and have had much stronger medicines and the Vicodin has the least amount of side effects for me. I have also been with my doctor for almost 12 years. She watched me go from a passionate involved woman to someone who lives with 24/7 pain spending most of my time alone. I guess it helped that she knew me so well. She is not a pill pusher by any stretch. I am on three different types of medications each day for pain control...crazy stuff.

    I hope you get what you need to improve your quality of life.

    Take care,
    Jan
  9. natrlvr2

    natrlvr2 New Member

    I take Vicoden twice a day(sometimes 3 times a day).I have DDD and osteoarthritis in other areas.I cannot function if I do not have my painkiller.I barely can get out of bed.I am never without pain EVER but at least the Vicoden lessens it so I can function for the most part.It took me YEARS to finally get a narcotic....
  10. MissRachel

    MissRachel New Member

    Hi Kholmes,

    I have FM and I have moderate to sever pain. I take MS Contin (slow release morphine) and Statex (fast acting Morphine) for break through pain.

    It took years in order to get my DR to RX these, as he, like most DR, feel that narcotics are addictive (thats a whole nother topic).

    I was taking ACC OTC and it didn't even touch my pain. I was take 24 a day which WAY over the limint. Into liver damage terratory.

    I hope you find some relief for your pain. I know what it is like to be under medicated. You have no quality of life.

    Now that I am on opiods I can get on with my life.

    Rachel
  11. achy

    achy New Member

    As others have posted I can't always tell which pain is from what....Then, each of us react differently, U know the story, what works for one may not work for you...

    After two years of trial and error and slowly working my way up the "drug ladder", I finally found a "coctail" that works pretty good. I also hate taking any meds but i cannot function wihtout them anymore. I have lived wiht this DD for 15 years.
    I take:
    flexeril for spasm and help w/ sleep
    ultram or oxycodone for pain
    lexapro for depression

    I also take variedty of vitamins...calcuim, magnesium....

    Try to get a referral to a pain management specialist...preferrably one that is a neurologist, not an anestesiologist (sp..lol)

    Warm fuzzies
    Achy
  12. elizabethia

    elizabethia New Member

    for the past year i have been on at least 10 different pain killers... some way to strong and some worked like a tick tac.... for me i take 2 darvocet 100's twice a day sometimes 3.. and flexeril 2 at bed time..the script calls for only 1 at bedtime... but that just one didn't have any affect at all..i also take ponstel, surmontial and promethizine for my migrains... on monday i'm going to the doctor to see about putting me on topamax ..since it helps both fibro and migrains.... maybe this time i'll get it right take care.. elizabeth
  13. tulip922s

    tulip922s New Member

    A doctor who is denying you adequate pain medication when you need it should not be practicing or should be more educated. Of course Ibuprophen isn't working for you, the pain from CFS requires more.

    I am having luck with Ultram and Darvacet and also have Vicoden for those killer days.

    Please start looking around for a "good" doc that can help you.

    I liked greeneyes response,,,,I could sure use some of those "fatigue pills". Take care. Tulip
  14. NANCEA

    NANCEA New Member

    I'VE TRIED SO MANY PAIN MEDS. OVER THE LAST FEW YEARS AND I FINALLY FOUND SOMETHING THAT WORKS. THE DURAGESIC PATCH HAS GIVEN ME MORE RELIEF THAN ANYTHING I'VE TRIED. HOPE THAT IS SOME HELP.
    NANCY
  15. Terrie1

    Terrie1 New Member

    I, also was plagued by extreme fatigue. My Doctor (a wonderful guy, I might add) suggested Provigil, it's actually for Narcolepsy.....a DD where people fall asleep with no warning, frequently. It has been a Godsend!! No shakies...(I hate that)...just makes you alert and able to get a few things done. I guess a lot of Ins, Co.'s don't pay (thank God mine does) Kind of expensive. Check it out. Hope it helps you...pain free days to you all. :) Terrie
  16. courtney5771

    courtney5771 New Member

    I'm on dilaudid. I have tried duragesic patches- but they are to expensive.
  17. MtnDews

    MtnDews New Member

    I was worried about addiction too. But my doctor reminded me that I have chronic pain, I will have chronic pain, it's not going to go away, and if I were a diabetic - would I refuse to take insulin? I don't like taking medicines all the time, but it's what I have to do. If your doctor doesn't get it, get another one. I would be unable to get out of bed without the help from duragesic patch and other meds. You want one that will start you off easy and gradually increase the dose if you need to do so.
    H