HOW MANY ON PROVIGIL????

Discussion in 'Fibromyalgia Main Forum' started by nsaygoodbye1977, Nov 14, 2004.

  1. nsaygoodbye1977

    nsaygoodbye1977 New Member

    My dr. just put me on Provigil for CFS.....and I'm wondering, of you who are already on it, what are the side effects and do you feel any difference. I know everyone is different and reactions are different but I'm concerned. I will now be taking that to stay awake and somewhat alert in the morning, and Flexeril and Klonopin at night to sleep. I soooooo do not feel anywhere near normal having to take one thing to wake up and two to go to sleep!!!!!

    Hugs,
    Eva

    P.S. I have Fibro, CFS, Bursitits, and soft tissue rheu. in my hips and back!
  2. Mikie

    Mikie Moderator

    It actually made me groggy and sleepy. I hadn't planned on taking it anyway as stimulants and SSRI's seem to exacerbate the seizure state that produces so many of our symptoms. I was just doing it because my doc wanted to see if it would work for me.

    I wish I could find something for energy which didn't cause problems in other areas.

    Love, Mikie
  3. Irish66

    Irish66 New Member

    I've been taking Provigil for over a year now - I have fibro, MS and just found out I also have Sleep Apnea. Provigil gets me going every day. Dr started me out on 200 mg in the morning, and then changed it to 100 mg in the morning and another 100 mg around noon. I've had no side effects, and am able to get much more done at the office than I used to.

    I also take something at night to help me sleep - depending on how tired I am I take Ambien or Pamelor. Dr explained that without taking something like that we don't get into that deep sleep that we need. I had a Sleep test and found I was in Stages 1 and 2 for 96% of the time. Stage 5 is that real deep sleep we need.

    Actually, I have noticed one side effect, but I think it's just in my head - I am eating less, and am very slowly losing weight. I mentioned this to my dr, and he has no explanation at all - says that is not a normal side effect. Whatever it is, I'll take it!

    Good luck to you!

    Marge
  4. nsaygoodbye1977

    nsaygoodbye1977 New Member

    Hopefully, it will have the same effect on me too, whether it be real or only in my head!!!

    Thanks!

    Hugs,
    Eva
  5. cerise

    cerise New Member

    I see my CFS Specialist 11/22 and I've been wondering about asking about Provigil. I'm already taking Flexerill and Ametriptalyne for sleep, but I'd like to be awake and functioning for some part of the "normal" day. How do you go about asking your doctor for an Rx of provigil and exactly how is it related to helping CFS and FM specifically? Thanks! Linda
  6. Mikie

    Mikie Moderator

    Ask for samples. This drug is expensive and if it doesn't work, you won't be stuck with expensive medicine which is worthless for you.

    Love, Mikie
  7. kittymama

    kittymama New Member

    Provigil gave me my life back!!!! I have sleep apnea and fibro and felt like I couldn't process information, carry on a normal conversation, stay awake, or much of anything before. I started taking Provigil several months ago and have been so thrilled with the results. I can't imagine my life without it now.
    Good Luck - Kitty Mama
  8. LindaW

    LindaW New Member

    I have been taking Provigil a little over a year, and it has helped(a problem with the insurance company at first because they didn't want the expense) but my physician wrote a report and now it is ok. It has helped with the fatigue.
    lw
  9. EvaRose

    EvaRose New Member

    My wonderful pain specialist has tried to get me on Provigil several times. He has given me samples on 2 different occasions. My insurance will not pay pay for it. My doctor even wrote them about my need for it, and still they refuse to pay. They were absolutely wonderful for me. They gave me energy, helped me to stay awake, and made me feel better in all areas. I tried to buy a partial precsciption after my samples ran out, and they were $10.00 per pill. I bought 10. I broke them in half and made them last as long as possible. I have a prescription now, but cannot afford them. Typically my medications cost either $25.00 co-pay or $7.00 co-pay for generics. The insurance absolutely refuses on this one.
    Good Luck to you! I would gladly take them if I could afford them.
    Sincerely,
    EvaRose
  10. puglover29

    puglover29 New Member

    Eva, who do you have Insurance thru? My friend has MS and her ins. co won't pay for the Provigil either, she has Blue Cross as do I. I am not even going to bother asking for it if BC won't cover it.

    Brenda
  11. nsaygoodbye1977

    nsaygoodbye1977 New Member

    UnitedHealthcare, but I'm not sure what they will do. My dr. only comes out where I live on Thursdays and said he will mail me some samples to try when he returns to his main office.............I'm still waiting!! Anyone else use UnitedHealthcare??
    <br>[<i>This Message was Edited on 11/18/2004</i>]
  12. lilchirper

    lilchirper New Member

    Why are the insurance companys not paying for the med? How long does the Provigil work and does anyone have trouble with it making them feel jittery? I am very sensitive to any type of simulant but definitly need something to help me function during the day.
  13. Milo83

    Milo83 New Member

    Geez, I think I'm loosing it, I could have sworn that I already replied to this post, but my reply is not up there,so I start again.....LOL...

    My Nuero is the one that recommended Provigil for me - he gave me samples for a week, and then told me to call him, if I liked it and he would call in an RX....

    anyway, I have trouble with a lot of meds - they seem to hype me up too much, so I was very concerned when it came to trying this...He said I should take 200mg every day for a few days and then could up it to 400mg.......I could only imagine taking 400mg a day, the way my body responds to meds like this - I'd be a wreck......... :(
    My Nuero, is not a pill pusher, quite the opposite, he believe in herbs and going that route........

    Anyway, I talked to my PCP and he said, I should try it, I said how about if I break it in half and only take 100mg, PCP says that is usually the dosage they use in the Elderly...Well, what the heck, I feel elderly, LOL, so thought I would first start with breaking it and taking only 100mg.....

    I did that and felt fine, I'm satisfied with those results, so I'm sticking to 100mg - and I do not take it everyday...I read on one of the boards where someone was concerned after they took their 7 day samples, they CRASHED - WELL IF YOU TAKE IT DAILY, AND ARE MORE ABLE TO GET THINGS DONE, you probably are over doing it, and then naturally when you don't take it, you will feel it...
    With these DD, you still have to take care of your body, and get enough rest for you to function even half normal...

    By taking only the 100mg it gives me a little more to try and accomplish things, plus in my case, I really think it helps with my brain fog........

    I do not have trouble sleeping with it, but then again, I take Trazadone and Xanax to sleep, but atleast I can now stay awake past 8pm...

    Just wanted to report my experience with it......
    Take Care......Wishing you the best....Love, Donna

    **and about the weight thing - in two months since I'm taking Provigil, I lost 5lbs, doesn't sound like a lot, but atleast my clothes fit better, and even just that 5lbs, put me back in some of my "packed away jeans" that were too tight.......So maybe it does have something to do with weight...Or maybe just the fact, we are moving around more, which is causing some weight loss???????


    <br>[<i>This Message was Edited on 11/19/2004</i>]
  14. Chermione

    Chermione New Member

    I take it, it's the only thing that keeps me awake during the day! What sucks is that at night I can't sleep and need something for that too!
  15. EvaRose

    EvaRose New Member

    Hi Brenda,
    Were you talking to me about who I have insurance with? Someone else answered, and I am not sure if the question about who I have insurance with was meant for me, but I'll answer just in case. I have Cigna PPO. They pay for all of my other pain meds, but they refuse to pay for the Provigil. I hate it so badly because things have been so badly the last few weeks that I am not functioning very well at all. I have FMS & RA. Lately, I don't even have the energy to get out of bed and get dressed. I just push myself as much as I can, but the Provigil does help me a lot with the energy.
    I hope that helps a bit. Thank you for responding to my post...if it was me you were talking to. Good Luck with getting the medication.
  16. SBear

    SBear Member

    PROVIGIL CAN DO A LOT FOR US IN RESTORING PART OF A LIFE ----BUT THE INSURANCE COMPANIES DO BALK AT PAYING FOR IT. THIS IS NOT NEWS! I HAVE HAD TO GO TO WAR WITH MY INSURANCE COMPANY FOR NEARLY EVERY MEDICATION AND PROCEDURE THAT MY DOCTOR HAS PRESCRIBED. AFTER A BIG FIGHT, MY INSURANCE FINALLY DECIDED IT WOULD PARTIALLY COVER PROVIGIL-------I HAD TO PAY HALF THE COST, WHICH STILL QUALIFYS IT AS AN EXPENSIVE MEDICATION.

    BEFORE IT WAS COVERED I FOUND THAT DRUGSTORE.COM HAD A MUCH BETTER PRICE THAN LOCAL PHARMACIES. YOU MIGHT CALL AROUND FOR PRICES AND THEN MAKE A DECISION.
  17. Jgavi

    Jgavi New Member

    I use Provigil 300 mgs...BUT only take it before noon since it keeps me wake at night if taken to late.

    It not only helps my energy level so i can do some normal stuff but boosts my depressed state at certain times.

    jgavi
  18. kalaya

    kalaya New Member

    for me is a very hit and miss drug,meaning sometimes I feel increased mental and physical energy and sometimes no uplift and other times it causes even worse fatigue.We all react a bit different so I wish you much success with the Provigil.
  19. 1_wildcat

    1_wildcat New Member

    i have blue cross ppo and they pay for mine i only have a 15:00 dollar co pay thats crazy how some pay and some dont
  20. tilla

    tilla New Member

    I have heard people talk about Provigil and wondered how well it works. I take Adderall XR which really helps me. I have United Health care insurance and they pay for the Adderall but since it is usually only given to children, I had to get a special letter from my doctor.

    Tilla