How old was everyone when symptoms worsened or showed up????

Discussion in 'Fibromyalgia Main Forum' started by CHEFLOVE, Sep 16, 2006.

  1. CHEFLOVE

    CHEFLOVE New Member

    I am a 21 year old female. I am in culinary school and work 30-35 hours a week. I have IBS and over the past two years have had worsening symptoms that point toward Fibro. I have been tested for Lupus, Galbladder issues, RA and other diseases with all results coming back negative. I have several classic Fibro symptoms including tingling and nunbness in arms, legs and neck, fatigue, IBS, stiff joints and muscle aches that feel almost to the bone, my vision has worsened in the past year, headaches and tension headaches, muscle fatigue that makes it hard to walk or write/type sometimes and more that I can't remember right now. My main question is even though I am able to lead a rather crazy life, given I am very tired and fatigued most of the time, could this still be Fibro, or am I too active to have Fibro. I get so frustrated because this is not rulng my life completely but it is making it very hard. Just needed others opinions. Thanks.
    Marci
  2. lenasvn

    lenasvn New Member

    Plenty of people with FM are very active, some are less active. It sounds like FM, do you have any family history that you know of?

    My first problems started at your age, but I could still lead a busy life. Things abruptly changed as I had my first pregnancy. Increased amount of symptoms and harder to cope, but still active.

    As I've gotten older and been exposed to more things (pregnancies, bad relations, viruses, bugs, and all you can think of) I have now (close to 40) gotten too bad off to function anymore. I am still doing things, but with great difficulty, and I can't work.

    This is my personal path. The first years I had those terrible IBS problems (I feel for you!), but that has eased up in a come and go pattern.

    I hope you can find your way.

    many fibro hugs!!
  3. Hope4Sofia

    Hope4Sofia New Member

    My noticable symptoms started at 17 yrs old (1990).

    They worsened in 2000 after my twin pregnancy and they became much more aggressive/progressive between 2003 and now.

    In my younger years I was more as you describe yourself. I ignored most of my symptoms and continued to be active. (I did take a lot of naps though - sometimes 3 to 4 hours at a time).

    Check out Dysautonomia. I have recently been diagnoses with this. It mimics FMS and can be comorbid with CFS and FMS.

    Take care,

    Sofi
  4. Bren2135

    Bren2135 New Member

    I'm sorry, you're so young, and it's very frustrating to be hurting all the time.

    My situation is similar to yours. I was in the BEST shape of my life -- around 22 or 23. Full time Mom of a one and two year old. Worked part-time outside the house. Always on the go -- loved my busy, full life.

    Was one of those weird(!) people who loves exercise, and looked forward to an hour a day on the treadmill. Suddenly, my muscles became rigid, and I was unable to exercise.. my bones felt dislocated, and I couldn't walk for days at a time.

    But it wasn't till a few years later I was diagnosed with FM.

    Don't wait, get help now, and BE GOOD TO YOURSELF!!!

    Hugs,
    Brenda
  5. Bambi

    Bambi New Member

    very young childhood. By age 5 I was having severe leg and back pains at times, of course then labeled as "growing pains" which we now know don't exist. I also had had Polio at age 3 and wore a leg brace until 5 or 6 so some was probably put off on that.

    I had the "growing pains" through most of my grade school years but was active in sports and other activities then and in high school. I had TERRIBLE periods that kept me out of school at least the first day of it every month. Many of us had that and so did my daughter. We both continued them until I stopped at Menapause and she still has them. I started perimenapause early in my 30's and so has she.

    I felt "better" during pregnancy, twice at ages 21 and 23 except for back aches that were bad. But I stayed with mild flares and fast recuperation through age...uh, about 50. Then it suddenly and VERY suddenly turned severe. The pain became 24/7 and I also developed all the side symptoms except migraines which my daughter does have with auras.

    She's been diagnosed for going on 3 years but probaby has had it for years. She didn't want to admit it but hers because severe much faster than mine did and she couldn't deny it any longer.

    I'm 58 now and have had a good pain control specialist for the last probably 7 years. I still have flares that are very bad but they don't last as long and the pain medication does make it at least bearable until they pass. The rest of the time they keep me functioning but definitely not to the degree I did at say 40. And more than just older age would have slowed
    me down by far!! But it beats where I was; unable to do anything around the house or ever go out or just live.

    I would go get the tests they give to eliminate other things and go from there. We could mostly all be very active until we no longer could at some point.. so that's no indicator of having FM or not. Good luck and I hope it's something else curable!!
    Bambi


  6. StephieBee

    StephieBee New Member

    When the first symptoms showed up in 1998...right before my 18th birthday.

    I went to the ER, numerous times, and they kept telling me I had pinched nerves.

    The pain was really bad from the start. At the last ER visit, the doc that saw me recommended that I look into Fibromyalgia. So I made an appointment with a Rheumy.

    He tested me for every arthritic disease known to man. He told me that I definatly had something. It was either Lupus or Fibromyalgia. I was hoping for Fibro...but I was wishing it was nothing, even though I knew it was one of them. And everything came back negative.

    When the tests came back negative, he tested the tender points. All 18 of the tenderpoints hurt on me. He then told me that my case was so severe that he couldnt help me.

    I went on disability at the age of 20, and was on it for a little over 3 years. Now I work a full time job due to the wonderful help of my Rheumy.

    Thats the jist of my story.

    Take Care,
    Stephanie
    [This Message was Edited on 09/17/2006]
  7. CHEFLOVE

    CHEFLOVE New Member

    I really appreciate all of your responses. I have been tested for many things as I listed, but what else should I be tested for. And has diet changes made a big improvement in you all??? Hope I am not asking to many questions, I just really want to figure this out. You are all a blessing with your information and advice.
    Marci
  8. lease79

    lease79 New Member

    I was about 11 when I first started having symptoms, by 15 it was full on & by 22 I was disabled with it.
  9. Slayadragon

    Slayadragon New Member

    I've read a few times that while almost no one with CFS ever really gets totally better (although they may go "into remission" for indefinite lengths of time), the one exception may be young people....e.g., under 25. This will only happen if you get enough rest to let your body heal itself, though. If I were in your position, I'd treat it like mono and get total bed rest for a long time....maybe six months. Probably you won't be successful in ditching it, but if it were me, I'd give it a try. You really, really, really don't want to be stuck with this thing for the rest of your life if you can possibly help it. Anyone disagree?
  10. JLH

    JLH New Member

    My symptoms (of fibro and lupus) began when I was around 7 years old.

    They became worse when I was in my early 20's and then hit me full force, with no let up, in my early 40's.

    I am now 55.
  11. dragon06

    dragon06 New Member

    As far as we can tell my symptoms started when I was 3 years old after very bad Mono. I had unexplained pain, stomach problems, IBS and other issues through my childhood and my teens.

    Everytime I got sick with a virus or anything (including pneumonia in grade 3) I would always end up a little worse after it cleared up.

    Once I reached about 20 my symptoms started to worsen some but the docs still kept saying all my tests were clear except for some allergies I was treated for. During this time I worked full time and also owned my own business for part of the time too. I had a relatively active social life and was often working 2 jobs at a time.

    When I was 29 I got very sick with gallbladder problems, I had to wait 5 months for surgery and during this time I was having multiple acute attacks. My new doc was starting to suspect FM at this time but wanted to wait until after the gallbladder was cleared up before making a firm diagnosis.

    After I received my surgery I then got much worse. It started with fatigue and flu symptoms and just got progressively worse. My new doctor in the US dx'd FM and I finally started getting some treatment specifically for that.

    I have not worked a conventional job since I had my gallbladder surgery which was almost 3 years ago. I used to do some transcription from home and I cannot even do that anymore. I am 31 now.

    Before the surgery I was able to lead a pretty busy life and survive. It was only after the surgery that I got worse. And I don't think it was specifically the surgery that caused my problems as much as waiting the 5 months having acute attacks.

    FM treats everyone differently. You may have FM and still be able to lead the life you are leading now.

    The right combination of meds and treatment are important to get early on so you don't suffer certain problems that can make you worse.

    I hope you find a good doc that can help you out.

    Sorry this was so long winded.
  12. wld285

    wld285 New Member

    Started at about 13, and I am now 56.
  13. Mini4Me

    Mini4Me New Member

    I'm 56 now.
    I'm so thankful for having had 46 healthy, athletic, happy years!
    Mini
  14. lisabk

    lisabk New Member

    I think I was in my mid-teens when the first symptoms showed up; had symptoms all through my twenties but also engaged in bad behavior like smoking, drinking, etc; everything really started to come on after my daughter was born almost 8 years ago, but the last three years and especially the last 6 months have been rough.

    I had a major remission 4 years ago when I took sudden control of my eating and exercise habits - I was rollerblading 15 miles a day and eating well. I lost 15 pounds and felt fantastic. Within a year, though, I fell off the exercise wagon and never really got back on. The weight has come back (I'm not overweight with these 15 pounds, but my body does not seem to like being above a certain point) and I feel like crap. I work full time and have two kids - I still exercise when I can, but it's just walking now.

    I have a tendency to push myself to do stuff. I'm also anxious and stress out pretty easily. I have some unresolved issues from my childhood, teenage, and young womanhood years - I had two children with two different fathers and have some serious self-esteem issues (though I've made a lot of progress and have an overall supportive spouse) and problems with guilt and pleasing people.

    I just got diagnosed with FM a month ago and it explains so much. I'm going to try a wheat-free diet and the exercise again and see if I can get the weight back off. My theory is that my body harbors more toxins in the fat I carry around - the less fat, the fewer toxins and... the better I'll feel?

    Good luck.
  15. lenasvn

    lenasvn New Member

    I think the best course you can take now is to tell your doctor that you suspect FM. All physicians are different, some dislike you suggesting anything, but if you have a good doctor he should be willing to look into this possibility. If he/ she is unwilling, find a doctor who is. Remember that your doctor is "working for you".

    I hope you find the answers you need.

  16. jessica0123

    jessica0123 New Member

    I am 36 and it started this year in February after my dog died and I am still painfully grieving.

    My sister was DX with Lupus 6 years ago at age 40.
  17. Vegan_Zoey

    Vegan_Zoey New Member

    I'm an 18yr old female, but my symptoms started back when I was 12. (obviously took forever to get a diagnosis). I started out able to go to school, roller blade 4hrs at one time on the weekends, walking around the block..etc. Now I'm just barely able to manage being in online highschool with not much else.

    I think its possible you have fibro. Have you gotten all of the other main tests and bloodwork done? Like for lyme and lupus? Maybe you can ask your doctor, be warned if they find nothing wrong, that doesnt mean there isnt something wrong! As you probably know fibro is mainly a "process of elimination" diagnosis so it may take a while :/

    Good luck.
  18. janie056

    janie056 New Member

    I was 43 when diagnosed, but I feel I had FM long before that.

    Jane
  19. picasso

    picasso New Member

    Hi Marci. I was 35. I was extremely busy, but when several serious stressors added onto my "odd" symptoms(2 major surgeries in less than 2 months, serious illnesses in myself and my toddler at same time) it overloaded my body and sent me into much worse physical problems and I've never come back.I've improved here and there, but never the same in ability to lead a very active life. I would highly suggest taking extra care of your self and avoiding overloading your body. Maybe you can avoid worse symptoms.
    Picasso
  20. Liz919

    Liz919 New Member

    I had migraines since I was tiny (first obvious one was in 1st grade. complained the light was too bright, my head hurt bad and then promptly threw up on a receptionist :) ). Started developing horrible horrible daily migraines, violent mood changes, and asthmatic type episodes my freshman year of highschool, I was 13 about to turn 14. Broke my ankle 6 days before I turned 15, on a friday the 13th no less and started a huge downward spiral. Asthmatic episodes got worse, hobbled around on crutches till I developed costochondritis apparently from a combo of crutches and asthma attacks. Never got better. Still participated in my schools highly competitive marching band which practiced 4 days a week halftime show on Fri and competition on the weekend. Worked my ass off through the pain. Finally started feeling better my senior year of high school then found out I was pregnant. Felt like hell all 9 months and discovered how much of a misnomer "morning" sickness is, did a stint in ppd, and now I'm falling back into a nice big ol flare up from the stress and running around like a chicken without a head. :) You can be as active as you force yourself to be it seems at least for me.
    [This Message was Edited on 10/25/2006]