How old were you when you were Dx with this DD..

Discussion in 'Fibromyalgia Main Forum' started by fificat, Sep 19, 2005.

  1. fificat

    fificat New Member

    Hello everyone...
    I was just woundering being that I'm 23 years old and I'm in so much pain now and I'm can't help but wounder...Am I going to be well when my daughter graduates high school or am I going to be to sick to get out of bed. I guess I'm just scared that I'm going to be to sick to miss all to important things in my daughter life. I cry as I write this but I never reliezed how scared I really was. So could anyone out there tell me if they in the same place I am .. Does anyone have any advice..I'm sorry I guess it really just hit me that this DD could alter my life it I let it.

  2. KJ2003

    KJ2003 New Member

    I was 37 when I was diagnosed (I'm 40 now) but I had symptoms years before I was diagnosed.

    It was, mostly, pain in my back. Every now and then it would put me down for a couple of days or so and then I'd get back to normal. Then it got to where I had pain all of the time and, three months after continual pain, I was diagnosed. I was seeing my same doctor back then through all of this and he was the one who first diagnosed me. Since then, I've been diagnosed (having FM and other problems) by my new doctor, a rhemy, an ER doctor and a neurologist.

    I went through a bout of pneumonia before I was diagnosed. However, I've also experienced trama in a car accident, have had a hysterectomy and turned 40.

    Wait...that last one isn't associated with FM.


    Chin up,

  3. Beckula

    Beckula New Member

    It was suspected when symptoms showed up when I was 16 and the official diagnosis came at 18, I think. I am 25 now.
  4. JLH

    JLH New Member

    I am 54 now. I have had the FMS and Lupus since I was around 10 years old. At that age, I had pain all over my body, especially in my legs, suffered from migraines, and had a lot of the lupus symptoms such as sun sensitivity.

    My mother took me to many doctors who said I had "growing pains", one thought I had MS, and some did not know what was wrong with me. Later, doctors realized that I have probably had this all along.

    As the decades went by, my symptoms grew worse and I also began to get more problems and illnesses diagnosed.

    The 20s were rough, and I was getting pretty sick by the 30s, and when I reached 40--all **** broke loose! I also started getting heart trouble, sleep apnea, diabetes, having more back trouble, the arthritis was getting worse and worse, the lupus became more active, and the pain level was at its all time high. Life was hard to manage from day to day. I was still working full time, too.

    I raised 3 children with fms, lupus, arthritis, a bad back --all chronic pain conditions, plus a lot of other health problems. I also worked full-time, working a lot of 60 hr workweeks, too, and retired after working 30 years.

    You will be able to make your daughters graduation, but it certainly will be hard climbing those bleacher steps and sitting on a bleacher for the duration of the ceremony!! I speak from experience! You will need a cane to help support you while climbing the steps, or have your hubby next to your side to hold on to his arm!

    All you can do is to take care of yourself--eat good meals, exercise, take the meds that work for you, have a positive mental outlook, and pray that the medical field makes some progress in how to treat fms in the next few decades!!

    Take care,
  5. JonP06

    JonP06 New Member

    I have been diagnosed many many times by many many doctors and doctors to be from around the country when the symptoms first showed up around 6-9 months of age. Not one doc. could tell me what I have. I have been told to have many other things. I noticed that this has gotten worse and worse over the years and has prevented me from doing the simple things in life I enjoy doing. It has almost killed me a few times when I was real young that I had to have an ambulance called one time and a cop called another time, to escort me to the nearest hospital A.S.A.P. I have spent many weeks in the hospital being treated like a guinea pig with no results but going broke. The stress from this is bad enough. Life sucks huh?
  6. ilovecats94

    ilovecats94 New Member

    It was in 1995, and that was prior to my November birthday. I am 55 years old now.

    I was in the middle of menopause, but I really don't think that had anything to do with it. There was a neck trauma I had over time the summer of 1995 and that is what I think caused the FMS to rear it's ugly head. :(

  7. Empower

    Empower New Member

    I was 35 when diagnosed with the FMS

    The CFS can at about age 43
  8. dakotasweett

    dakotasweett New Member

    I was 18 when my symptoms began and it took a few years for a diagnosis (I'm 23 now). I think the important thing you said is that it could alter your life "if you let it". While you may not be able to fix everything- you can make a big difference in your life by maintaining a positive perspective. I think we all have our ups and down, but I find that having faith in myself and knowing that I am doing everything I can to better my situation definetly helps me cope with this DD. I also refuse to let my physical limitations change the path that I have set for my life. While you may need to make accomodations to acheive certain goals, almost anything is possible.

    I truly hope you don't let this DD ruin your spirit.

  9. dorrene

    dorrene New Member

    It all started after my third child was born.
    Malaise, weak and very painful joints. Now have CFS, Fibro and Restless Leg
    Last four years have been the worse. Only able to work two days a week etc...
    But I am almost back to normal. Feel good again.
    I have tried all kinds of things thyroid and hormone replacement, healthy eating, no suger,lots of different supplements but I seem to have found the best natural supplements for me now. So don t give up.
    Look at my profile to see what I take. I go to accupuntuists and herblist in my town for help.
  10. tandy

    tandy New Member

    Feels like forever ago but,....
    I was DX at 30-31. I complained of pain for 3 yrs before I was DX. I'm 42 now. (and like everyone else,...FEEL 82)
    teehee :)
  11. orachel

    orachel New Member

    Only been abt 3.5 mos for me...three very long, very painful, very "isolated" months....but I'm feeling better every day (emotionally at least! Still working on the physical improvements!)

    And hon, I think I know exactly what you're going thru thinking abt taking care of kids while in pain...there was just a great post about it very recently here....Can't remember what it was called, but I'm sure if you poke around a bit you'll find it.

    Bottom line is that it IS terrifying to worry you might not have what your daughter will need. General concensus from most mommies who responded in the post is that while there were definitely occasions where they had to have "Gentle Play" with their kids, and had to miss some of the major physically milestones or activities (I worries abt all kinds of things I might miss, like not being able to go on rockclimbing trips with my husband and stepkids...was really looking forward to teaching them with hubby...but if I'm not physically able to handle that, then we'll go on a cruise, instead! lol), there were also HUGE unexpected benefits to their children. Think about how great it would be if loving you when you're healthy and happy, and loving you when you're feeling pretty rough physically gave your daughter a true understanding of compassion and generosity at a young age! What a blessing, and what a head start she'd have in life over some of these kids who seem to get taught NO sense of kindness, or the joy of being selfless to help someone else from time to time.

    Not my favorite word, but "differently-abled" isn't a bad way to describe what the ladies who responded were explaining to me and others who were worried. Your kid might not get a "cookie cutter" (ie: leave it to beaver) childhood, but you teach a child everything that's really impt by talking to them, and listening to them, right?

    I am very recently diagnosed, and have had just incredible pain for last three I just turned 30, so my "baby pangs" are really kicking in (i have 3 great stepkids who we see on weekends, but have no birth children). I sure hope and pray I'm strong enough physically to carry and deliver a baby...I have great confidence that with lots of work and lifestyle changes and good treatment I will be. I also know that in spite of any challenges that come our way, physical or otherwise, somehow my husband and I will find a way to be great parents to our kids and to give our children everything they need, even if our situation is a lil different from average. But who the heck wants to be "average" anyway?! lol

    Teach your kid how to be strong and courageous in the face of a mighty obstacle like chronic pain...that's a gift. Teach her how to make educated healthy choices of her own so she can grow into a beautiful woman who's the strongest she can possibly be, physically and emotionally...that's a gift. You clearly have a million things to offer your child or anyone else, or the world at large.

    BTW...I can't imagine personally how FM could possibly NOT alter your life in some way. I'd think even if you were blessed incredibly and had only mild symptoms only some of the time, you'd still need to make some life "alterations" such as extra emphasis on great diet and exercise to make sure you stay as healthy as possible in the future. I've definitely noticed a trend that the people who push themselves to the point of absolute physical collapse even when their body is SCREAMING at them to stop end up much worse off physically in the long run. The people who seem to "deal" with this the best in my opinion are the ones who accept the fact that they MAY have to make physical concessions for their body from time to time...but they WON'T let that totally stop them from living a full life to the best of their abilities. That's what I'm shooting for, at least!

    I hope you find some comfort to your very valid concerns. It is sooo hard to accept that the life you had all mapped out might be much different than the life you are dealt. I felt kinda like a mack truck landed smack dab on my life (not to mention my body!!! LOL), at first! I sobbed nearly uncontrollably for weeks over all I "might lose" or "could possibly miss out on" or "woudn't be able to offer" to the people I love because of my health issues. Eventually, and I think it was mostly because of the strength and inspiration of the people here, I just kinda "woke up" to the fact that Yes....the pain and fatigue are wretched (right now!), and I might not be able follow the plan I'd made for my life to the letter, but the FM definitely won't kill me. I also realized that if I didn't find a way to snap myself out of my constant negativity, then I was going to be the one responsible for ruining my life, not this DD. I've just felt a whole lot better overall since then. The worries you have are very valid and tangible (and terrifying, I know!), but if you focus on the "worrying" and not the "solution building" then you're only adding to your own pain, and you don't deserve that.

    And goodness knows, none of us with this dang disease need anymore hurting in our lives! lol

    Hang in there...the people on this board literally "held me up" emotionally when I as in total crisis physically and emotionally (and keep in mind...we're talking like 2 weeks ago! LOL), but seeing everyone here keep on fighting for the best life they could give themselves, and keep reaching out to offer support to others in spite of their own physical limitations really inspired me.

    After reading some of these posts, and learning some of the member's "stories" , it's kind of hard to imagine anything that isn't possible when you bring together enough people this courageous and determined! And I'm sure that each and every possible "roadblock" you run into in parenting your daughter can be resolved with enough encouragement and support (and advice, and experience...) I hope you can get the same kind of comfort that I found here, because I really can't imagine what sorta shape I'd be in now if I hadn't found this wonderful support system. I've got a great family, and a wonderful life...but there's just nothing like knowing that you're not alone in dealing with these specific issues and concerns (and yeah...sometimes aches and pains!) Physical pain is more than enough for any of us to bear....we really don't need the added hurt of beating ourselves up with the "worst possible scenario" what-ifs, too!

    Wishing you comfort and hugs...

    P.S. and if you ever get overwhelmed, or just need a boost, just shout out on the boards that you need help and someone will be around to talk you thru the bad.[This Message was Edited on 09/20/2005]

[ advertisement ]